CURE: Epilepsy Resources

Epilepsy Research Resources

American Epilepsy Society
342 North Main Street
West Hartford, CT 06117
(860) 586-7505
www.aesnet.org

For funding for epilepsy research, go to:
www.aesnet.org/go/research

Epilepsy Phenome/Genome Project
EPGP is an NINDS study looking for siblings who both have epilepsy, and people who have other specific types of epilepsy.
www.epgp.org

Institute of Medicines
www.iom.edu/Reports/2012/Epilepsy

National Institute of Neurological Disorders and Stroke
NIH Neurological Institute
P.O. Box 5801
Bethesda, MD 20824
(800) 352-9424
(301) 496-5751
www.ninds.nih.gov/index.htm

RE (Rasmussen's encephalitis) Children’s Project
http://rechildrens.com

SUDEP Aware
Suite 350, 283 Danforth Avenue
Toronto, Ontario M4K 1N2
Tel: (416) 556-8770
Email: info@sudepaware.org
www.sudepaware.org

Other Resources

Alternating Hemiplegia of Childhood (AHC) Foundation
www.1inamillionahckids.org

Calvin's Story
www.calvinsstory.com

Coping With Epilepsy
www.coping-with-epilepsy.com

CDC
Centers for Disease Control & Prevention
www.cdc.gov/epilepsy
800-232-4636

Dravet Foundation
www.dravetfoundation.org

Dravet.org
PO Box 66599
Baltimore MD 21236
www.dravet.org/

Epilepsy Therapy Development Project
www.epilepsy.com

Epilepsy Foundation
www.epilepsyfoundation.org
For Spanish speakers, call
1(866)-748-8008

Hope for Hypothalamic Hamartomas
http://hopeforhh.org

Ice Epilepsy Alliance
www.ice-epilepsy.org

International Bureau for Epilepsy
www.ibe-epilepsy.org/about-us

International League Against Epilepsy
http://www.ilae-epilepsy.org

Lennox-Gestaut Syndrome (LGS) Foundation
http://www.lgsfoundation.org/
631-509-0206

Long QT Syndrome
www.longqtsyndrome.net

Matthews Friends
The Ketogenic Diet
P.O. Box 191
Oxted
Surrey RH8 0WL
England
011-44-788 405811
www.matthewfriends.org

My Epilepsy Story
myepilepsystory.org

Talk About It
www.talkaboutit.org

The Anita Kaufmann Foundation
www.akfus.org
(201) 655.0420

The Charlie Foundation
1223 Wilshire Blvd.
Suite #815
Santa Monica, CA 90403
ketoman@aol.com
www.charliefoundation.org
(800) FOR-KETO (367-5386)
310-395-6751

The Matty Fund
http://mattyfund.org
(401) 789-7330

Understanding Infantile Spasms (IS)
www.infantilespasmsinfo.org

CURE | Citizens United for Research in Epilepsy is providing these epilepsy-related materials as informational and educational resources. CURE does not warrant, and hereby disclaims, the accuracy, completeness, or timeliness of any information contained in these materials. CURE does not, in any manner, endorse, recommend or guarantee the individuals or companies that have authored these materials, the services they provide or the availability of such services. In no event shall CURE be liable for any information included in or omitted from any resource, or for any decision made or action taken by you in reliance on such information.