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NINDS welcomes your comments on DRAFT 2014 NINDS Benchmarks for Epilepsy Research

Story LandisOn April 17-19, 2013, the National Institute of Neurological Disorders and Stroke (NINDS) hosted Curing the Epilepsies 2013: Pathways Forward, the third in a series of Curing the Epilepsies conferences held in partnership with epilepsy advocacy and professional organizations to assess progress in epilepsy research and help set an agenda for future years. As an important outcome, these conferences have led to development and revision of Benchmarks for Epilepsy Research, which reflect shared priorities across the epilepsy community for research toward clinically meaningful advances in understanding and treating the epilepsies. With input received during and prior to the April 2013 conference, NINDS has developed draft 2014 Benchmarks for Epilepsy Research as a framework for focusing research and benchmarking progress over the next five to ten years.

NINDS has posted the draft 2014 Benchmarks for open comment through November 4, 2013, at www.ninds.nih.gov/2014benchmarks, and welcomes feedback from researchers, individuals with or affected by epilepsy, professionals in epilepsy care, nongovernmental organizations, and any others with an interest in epilepsy research.

Responsibility for achieving goals highlighted by the Benchmarks is shared by all members of the broad epilepsy community, so we look forward to hearing from you.

Thank you for your continued efforts to advance epilepsy research.

Story C. Landis, PhD
Director, NINDS


 


More about the Epilepsy Research Benchmarks

NINDS 2014In March 2000, leading scientists, health care providers, and leaders of voluntary health organizations came together to discuss what it would take to find a cure for epilepsy, defined as preventing epilepsy in people who we know are at a higher risk of developing it, and "no seizures, no side effects" in those who are already being treated for the disorder.

This landmark White-House initiated conference, "Curing Epilepsy: Focus on the Future," was sponsored by the National Institute of Neurological Disorders and Stroke in collaboration with the American Epilepsy Society, Citizens United for Research in Epilepsy, Epilepsy Foundation, and the National Association of Epilepsy Centers. The conference encouraged scientists nationwide to take a new look at methods of understanding and treating seizures and resulted in the establishment of the first set of Epilepsy Research Benchmarks to guide future research directions.

In 2007, over 400 researchers, physicians, patients, family members and voluntary health organization leaders came together on the NIH campus to participate in the second meeting in the series, "Curing Epilepsy 2007: Translating Discoveries into Therapies," organized by the NINDS in collaboration with epilepsy research and voluntary organizations. After a review, it was determined that the epilepsy research community had made substantial progress on many of the Benchmarks since the 2000 meeting. Attendees at the 2007 Conference met to evaluate the original Benchmarks and discuss new research directions. Participants voted on the topic areas felt to be most promising, as well as those in need of attention to focus on moving forward. The result was the 2007 Epilepsy Research Benchmarks.

This past year, NINDS hosted the third conference in the series, “Curing the Epilepsies 2013: Pathways Forward,” and has drafted the latest Epilepsy Research Benchmarks.

 

Feedback deadline: November 4

 

 

 

CURE For questions, please contact the CURE office, 312.255.1801, or email info@cureepilepsy.org.

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