American Epilepsy Society Draws 4000+
In the middle of our east coast excursions, CURE trekked out west to San Diego for the 66th Annual American Epilepsy Society meeting. Susan Axelrod spoke in the Presidential Symposium about the Institute of Medicine report released earlier this year. With more than 4000 researchers, patients, advocates, clinicians and other health care providers, there were a record-breaking number of attendees.
[Read more about the meeting]
Mild Brain Cooling After Injury Prevents Epileptic Seizures
CURE is proud to report that through our funding, researchers at the University of Washington have discovered that mild cooling of the injured brain prevents the later development of epileptic seizures. Their findings will be published in an upcoming issue of Annals of Neurology.
[Read the full story here]
CURE Catches Up on the East Coast
CURE has much to be grateful for this season. It was a whirlwind month and we had so much fun visiting Boston, New York and Washington, DC. Our friends and supporters came out swinging at Fenway Park for our 2012 Boston benefit chaired by Anne Finucane and Mike Barnicle. Our heartfelt thanks to Mika Brzezinski & Joe Scarborough for their loyal support and commitment to CURE.
In New York, CURE Board Member Connie Milstein and her husband JC de la Haye St Hilaire hosted an intimate reception where Mayor Bloomberg was awarded the Friend of CURE award.
The very next evening, in DC, Connie & JC hosted yet another gathering at their home, where Vice President Biden delivered amazingly moving remarks about epilepsy. To listen, click here.
For more on how CURE has been spreading the word city by city, visit Susan's blog.
A heartfelt thank you to our hard-working hosts and generous supporters around the country!
Welcome, Samantha and Meg!
CURE is thrilled to welcome two great additions to CURE’s staff: Samantha Kreindel as Communications Director and Meg Schneider as Development Director.
Samantha joins CURE after working as an account executive at a communications firm in Washington, D.C. She is excited to combine her skills in public relations with an issue close to her heart. Samantha is passionate about educating others on epilepsy – and helping people understand just how important it is that funding for research to find a cure continues. A Cleveland native, she’s happy to be back in the Midwest after nearly 5 years on the east coast. She can be reached at Samantha@cureepilepsy.org
Meg brings to CURE experiences from two of the largest voluntary health organizations --The American Cancer Society and the Leukemia & Lynphona Society—having worked with special events, individual giving, strategic philanthropy, sponsorship, and stewardship. She is looking forward to helping raise awareness about epilepsy, and building relationships with supporters. Meg can be reached at Meg@cureepilepsy.org
The CURE 2011 Annual Report is now available to be viewed online.
CURE has so many ways to get involved! Check out our website on how to host an event, share your story, or contact your local representative to express what a cure means to you.
Slash Another ‘Stache!
In the name of bipartisanship, friendship, fatherhood and facial hair, renowned Republican strategist and commentator Alex Castellanos has offered up his own mustache in support of research in epilepsy. After David Axelrod slashed his ‘stache on Morning Joe, the political pundits went on CNN where Alex agreed that if another 500 donations are made to CURE, he will shave live on The Situation Room! Catch the whole segment here. Then get on over to www.slashthestache.com to donate! We are more than halfway there but still need your help to make Alex’s facial hair fall.
Advocates Host 1st Annual Lecture Series in Oklahoma
Epilepsy awareness advocates Renzi Stone and his wife Lee Anne recently hosted The Isaiah Stone Pediatric Epilepsy Lecture in memory of their son Isaiah who died from Sudden Unexpected Death in Epilepsy (SUDEP). Dr. Angus WIlfong, Medical Director of the Comprehensive Epilepsy Program at the Texas Children’s Hospital led a panel along with Dr. Yu-tze Ng, Chair of Child Neurology and Director of Epilepsy for OU Children's Physicians. Renzi and Lee Anne have committed their time to raising awareness about the prevalence of pediatric epilepsy and how to provide care for children who are diagnosed. They have been leading the efforts to recruit more epileptologists in the Oklahoma City region – no easy feat. CURE commends their hard work and dedication!
[For more on the lecture series, check out this article in the Oklahoman.]
Lapham Speaks Out in Support of Bill
On December 17, CURE Board Member Gardiner Lapham testified in support of a NJ-state bill that would require medical examiner training of SUDEP and request decedent’s medical information and brain donation for research. Passing of the bill would indicate significant progress toward identifying additional cases of SUDEP and help collect information to put toward research into causes of SUDEP. CURE is so proud of Gardiner and looking forward to movement of this bill! Read Gardiner’s compelling testimony here.
[Read the bill here]
Patriots for CURE
CURE would like to thank Diana Greenlee and the Liberty High School Patriots for CURE for their continued support – and commitment to raising awareness for epilepsy - from across the country in California. In addition to this great article in the local newspaper, the Patriots for CURE also held numerous fundraisers throughout the year of which proceeds benefited research in epilepsy. Thank you for all your hard work!