Personal StoryThrough the support of family, friends, and medical professionals, I have been able to fight the fight. I will not stop until I have an answer.
Personal StoryJessica at 2019 Epilepsy Awareness Day at Disneyland; she is the mother of an amazing little girl who was diagnosed with epilepsy at 6 months old.
Personal StoryI cannot stop the seizures, I cannot control the side effects, I cannot protect her from epilepsy – but oh yeah, I can be a voice, I can share my story as a parent, I can do what I can to raise funds. I can advocate for her.
Personal StoryThe Maffie family has always been close. Mom and Dad – Lisa and Bobby – encouraged their sons – Anthony and Austin – to stay active, follow their passions, and lead with empathy. When Anthony was diagnosed with epilepsy at age 16, they were a strong support system for him. Whatever the challenge, this family is in it together.
Personal StoryMy 4 sons, Henry, Lucas, Blake, and Phillip, are 15, 12, 10, and 7, respectively. They are all neurodivergent and have epilepsy. I, myself, was diagnosed with childhood absence epilepsy as a kid, and autism and OCD as an adult.
Personal StoryFor Gillian, a career in health administrator is a platform to bettering epilepsy advocacy. It creates wider access to the resources needed for epilepsy patients.