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Epilepsy Resources

Browse our collection of epilepsy resources for more information on types of epilepsy, diagnosis, treatment, and more.

See a filterable list of all identified epilepsy genes:
Epilepsy Genetics Initiative: Epilepsy Genes

 

Information about the genetics of epilepsy:
Epilepsy Genetics Initiative, a Signature Program of CURE

 

Information about genetic testing in epilepsy:
CURE: Why exome sequencing for epilepsy is important

 

Participate in a genetic testing or exome sequencing:
Learn more and enroll with Epilepsy Genetics Initiative (EGI)

 

Tracking your seizures in reports for your care team:
Learn more and sign up for SeizureTracker

 

Read personal stories and news about epilepsy genetics:
EGI: personal stories involving exome sequencing

Veterans

Information for veterans who have been affected by post-traumatic epilepsy (PTE)/traumatic brain injury (TBI):
CURE: Treatment and Prevention of Post-Traumatic Epilepsy (TAPTE)

 

More information for veterans with epilepsy:
Veterans Health Administration (VA): Veterans and Epilepsy – Basic Training

 

Information on prevalence of epilepsy among U.S. Iraq and Afghanistan War Veterans (2002–2015):
Morbidity and Mortality Weekly Report (MMWR): Epilepsy Among Iraq and Afghanistan War Veterans — United States, 2002–2015

Youth

Information for about special education and related services for youth with disabilities:
National Information Center for Children and Youth with Disabilities (NICHCY): Questions and Answers about IDEA

 

Protecting students with disabilities:
U.S. Department of Education, Office of Civil Rights - Education of Children with Disabilities

 

How to request aids and services for postsecondary students with disabilities:
U.S. Department of Education: Auxiliary Aids and Services for Postsecondary Students with Disabilities 

 

Adults

Information about self-management in epilepsy:
Managing Epilepsy Well (MEW) Network

 

Information about making an accommodation request with your employer:
Job Accommodation Network: Ideas for Writing an Accommodation Request Letter

Information about uncontrolled or refractory seizures:
What does uncontrolled or refractory seizures mean?

 

More information about treatment of intractable epilepsy:
Health Technology Assessment Group: Management of Treatment-Resistant Epilepsy

Adults

About SUDEP:
Patient Info: Sudden Unexpected Death in Epilepsy

 

Information about Sudden Unexpected Death in Epilepsy (SUDEP):
Epilepsia: Sudden Unexpected Death in Epilepsy: Terminology and Definitions

 

Information about risk factors in SUDEP:
Epilepsia: Combined analysis of risk factors for SUDEP

 

Youth

Information about the prevalence, causes and risk factors for sudden death in the young (SDY):
National Heart, Lung and Blood Institute: Frequently asked questions about SDY

Helping Your Patients

A Guide to Clinical Epilepsy for Physicians
NCBI: An Introduction to Epilepsy

 

Responding to epilepsy patients and/or employers about workplace safety:
American Epilepsy Society (AES): Physician’s Guide to Worksite Safety

 

Physician/Clinician Resources

Responding to epilepsy patients and/or employers about workplace safety:
American Epilepsy Society (AES): Physician’s Guide to Worksite Safety

 

Assessing the cognitive and behavioral effects of epilepsy for adults:
American Epilepsy Society (AES): Practice Tool for Cognitive and Behavioral Effects of Epilepsy: Adults

 

Assessing the cognitive and behavioral effects of epilepsy for children/adolescents:
American Epilepsy Society (AES): Practice Tool for Cognitive and Behavioral Effects of Epilepsy: Youth

Learn More About Epilepsy
About Epilepsy
What is Epilepsy?
About Epilepsy
Diagnosis & Therapies
About Epilepsy
Personal Stories