I took a brief break from overseeing CURE’s research efforts last week to attend a CURE Benefit in Boston hosted by Anne Finucane & Mike Barnicle as well as Susan & David Axelrod. I’m so grateful to them for being such wonderful hosts and would like to thank all those who attended.
At the event, CURE’s founder Susan Axelrod spoke about the importance of epilepsy research and highlighted our plans to work with the Department of Defense on Post-Traumatic Epilepsy. I had the opportunity to speak about recent CURE-funded research that may lead to important diagnostic and treatment advances.
The 2018 Boston Benefit for the Cure was a wonderful opportunity to get together with members of our passionate community who are dedicated to finding a cure.
Couldn’t attend the Boston event? Read on… you can participate in other ways. Our next online webinar will feature news about promising anti-epileptic drugs in development. Or, if you’re looking to attend an event in-person, I’ve included information about CURE’s next Day of Science events as well as additional news and events that I’m excited to share with you.
Dr. Laura Lubbers
Promising Anti-Epileptic Drugs in Development ? Webinar
This free webinar will outline therapies in development for epilepsy and seizures, including promising therapies for patients with treatment-resistant epilepsy and children with severe epilepsy. The webinar will also focus on drugs that may not only reduce seizures, but improve treatment of the underlying disease.
The webinar will be presented by Dr. Jacqueline French, a professor of Neurology in the Comprehensive Epilepsy Center at NYU Langone School of Medicine and Founder/Director of the Epilepsy Study Consortium. Dr. French’s presentation will be followed by an interactive Q&A session.
The information session is scheduled for Wednesday, April 18, 2018 at 1pm EDT / 2pm CDT. The webinar is free, but you do need to register.
2018 Epilepsy Scholarships: Application Deadline April 15
The deadline for CURE’s 2018 Educational Enrichment Fund (EEF) Scholarship is right around the corner! Applications are due to CURE by April 15, 2018 at 11:59pm CDT.
Made possible by the generous funding of Lundbeck, CURE’s EEF Scholarship program provides a one-time scholarship (up to $5,000) to be used toward coursework that will advance personal knowledge in the field of epilepsy as it relates to research, health education, awareness, and/or advocacy. Anyone diagnosed with epilepsy, immediate family members, and/or caregivers of someone with epilepsy are encouraged to apply.
Register Now for Day of Science: Philadelphia and Chicago
CURE’s Day of Science event series kicks off in June! Day of Science is a free, educational, networking opportunity for patients, families, medical professionals, researchers, and all those touched by or interested in learning more about epilepsy.
Join us to hear about the latest in epilepsy research and what it means for patients and families, participate in a live Q&A with epilepsy expert panelists, and join small roundtable discussions with the experts. Registration is now open for CURE Day of Science at Children’s Hospital of Philadelphia and Lurie Children’s Hospital of Chicago. Additional locations will be announced in the coming months.
Interested in volunteering? Please contact the Day of Science team at DOS@CUREepilepsy.org or (312) 255-1801 if you are interested in volunteering in Philadelphia or Chicago.
Get Your Limited Edition Hamil-Time T-Shirt
It’s Hamil-Time to find a cure for epilepsy! Get a limited edition Hamil-Time t-shirt, available exclusively on OMAZE’s website. HAMILTON’s Miguel Cervantes and his daughter Adelaide are shown here wearing the Hamil-Time t-shirts. Adelaide was diagnosed with epilepsy at just 7 months old. Proceeds from the Hamil-Time tee will support CURE’s mission of funding epilepsy research initiatives.
Infantile Spasms/Seizure Medication Access Survey for Families and Providers
Have you recently had problems accessing medications for Infantile Spasms or Seizures? The Infantile Spasms Action Network (ISAN), which CURE is a part of, wants to hear from families and providers like you. If your medication access has been limited by availability, payment difficulties, or other issues, tell ISAN about your experience. They will use this information to reduce barriers to medication access.
Next CURE Events
Get Your Shoes On – FITT and Fashion for a Cure for Epilepsy
Promising Anti-Epileptic Drugs in Development
1:26 The Art of Epilepsy 2018
3rd Annual Ella’s Race for a Cure
Day of Science
All Upcoming Events