This week on Seizing Life® epilepsy researcher Dr. Chris Dulla provides information about infantile spasms, from detection and diagnosis to current research and future improvements in treatment.
Author Archive: john-boston
Epilepsy in Women: Challenges, Concerns, and Considerations
This week on Seizing Life® Dr. Elizabeth Gerard discusses concerns specific to women living with epilepsy. From puberty to menstruation, contraception, pregnancy, and menopause, we explore managing epilepsy through all stages of a woman’s life.
NYC Marathoner Achieves Seizure Control and Runs for Epilepsy Research
This week on Seizing Life® Peter Burpee shares his experiences with absence and tonic clonic seizures and explains why he’s running for Team CURE Epilepsy in the upcoming NYC Marathon.
Searching for Answers, Providing Support, and Understanding Grief After the Death of a Child
This week on Seizing Life® Dr. Richard Goldstein, Associate Professor of Pediatrics at Harvard Medical School, discusses his research into both Sudden Unexpected Death in Pediatrics (SUDP) and the grieving process of bereaved parents.
Infantile Spasms Diagnosis and Treatment Journey Inspires Children’s Book
This week on Seizing Life® Kate Kostolansky shares her daughter’s infantile spasms diagnosis and treatment journey, and explains how these experiences inspired a children’s book to help newly-diagnosed families.
An Extraordinary Life of Autism, Epilepsy, and Advocacy
This week on Seizing Life® Barbara D’Amora tells us about her son Nicholas, who lived with autism and epilepsy and became an active and inspirational advocate for the autistic community despite being nonverbal.
A Young Woman’s Journey with Jeavons Syndrome
This week on Seizing Life®, recent college graduate and CURE Epilepsy summer intern Kiley Flowers joins us to talk about Jeavons syndrome and share her personal journey with this rare form of generalized epilepsy.
Pursuing Effective Epilepsy Treatment and Running for Research
This week on Seizing Life® Clare Phelps shares the difficult diagnosis and frustrating treatment journey of her young daughter Sophie, whose epilepsy has so far been treatment resistant.
From Hiding Diagnosis to Advocating for Awareness: A Young Woman’s Epilepsy Journey
This week on Seizing Life® Mariah Mayhugh recounts her epilepsy journey, from hiding her diagnosis to becoming a passionate advocate for epilepsy awareness.
A Teen Uncovers the Emotional Impacts of Childhood Seizures
This week on Seizing Life®, we speak with Hailey Yoon about the emotional and psychological impacts that childhood epilepsy may have even years after seizures subside.