Today on Seizing Life®, we speak with Cindy and Elvin Angulo about their daughter Vera’s Sturge-Weber Syndrome diagnosis and its connection to epilepsy.
The numerous types of seizures and the widely varying impacts of epilepsy are two key factors contributing to the public’s misunderstanding of the condition. This week on Seizing Life® we speak with parents who have two children with epilepsy that manifests very differently, and discuss the implications this has had for their family.
In a rebroadcast of an episode from June 2019, Dr. Charles Marcuccilli, Director of Pediatric Epilepsy at Rush University Medical Center in Chicago, explains why epilepsy is so misunderstood, discusses the stigma around it, and suggests what patients, caregivers and healthcare professionals can do to increase awareness and education around epilepsy.
CURE Epilepsy CEO Beth Dean explains how the organization funds research, why it remains “patient-focused” in its mission, and what areas of epilepsy research offer the most promise for finding cures.
With students preparing to head back to college campuses, we revisit several previous episodes in which students with epilepsy and their parents share experiences and offer advice about choosing and attending college.
Today on Seizing Life, we speak with epilepsy researcher, educator, and patient Dr. Steve White. Dr. White has been involved in the field of epilepsy research for over 40 years, is a former CURE Epilepsy grant-recipient and a current member of the organization’s Scientific Advisory Board. He is also an epilepsy patient, having experienced his first seizure in 2010.
A mother’s awareness of infantile spasms and persistence contributes to a positive outcome for her daughter.
Epilepsy patient, counselor, and author Jon Sadler discusses living with epilepsy for more than 50 years and how his experiences have shaped his perspective on epilepsy and informed his efforts to become a counselor and help fellow patients and caregivers.
After the loss of his fiancé to SUDEP, Geoff Applegate a single-parent was left coping with his own grief while also learning how to help his young son understand the loss of his mother.
When Paul St. Pierre encountered a lack of understanding of epilepsy at his school, he and his mother, Colleen, took action to ensure that all schools in the state of New Jersey were educated on epilepsy and seizure safety.