This week on Seizing Life® Kate Kostolansky shares her daughter’s infantile spasms diagnosis and treatment journey, and explains how these experiences inspired a children’s book to help newly-diagnosed families.
Author Archive: john-boston
An Extraordinary Life of Autism, Epilepsy, and Advocacy
This week on Seizing Life® Barbara D’Amora tells us about her son Nicholas, who lived with autism and epilepsy and became an active and inspirational advocate for the autistic community despite being nonverbal.
A Young Woman’s Journey with Jeavons Syndrome
This week on Seizing Life®, recent college graduate and CURE Epilepsy summer intern Kiley Flowers joins us to talk about Jeavons syndrome and share her personal journey with this rare form of generalized epilepsy.
Pursuing Effective Epilepsy Treatment and Running for Research
This week on Seizing Life® Clare Phelps shares the difficult diagnosis and frustrating treatment journey of her young daughter Sophie, whose epilepsy has so far been treatment resistant.
From Hiding Diagnosis to Advocating for Awareness: A Young Woman’s Epilepsy Journey
This week on Seizing Life® Mariah Mayhugh recounts her epilepsy journey, from hiding her diagnosis to becoming a passionate advocate for epilepsy awareness.
A Teen Uncovers the Emotional Impacts of Childhood Seizures
This week on Seizing Life®, we speak with Hailey Yoon about the emotional and psychological impacts that childhood epilepsy may have even years after seizures subside.
Comprehensive Epilepsy Centers: An Insider’s Guide
This week on Seizing Life® Dr. Dave Clarke gives us a thorough overview of the specialists and services available at comprehensive epilepsy centers and offers advice about when and how to access these care options.
Love, Marriage, and Epilepsy
This week on Seizing Life® we speak with epilepsy advocates and married couple Tiffany and Chris Kairos about the impact that epilepsy has had on their marriage and professional lives.
The Caregiver Journey: A Father’s Story
This week on Seizing Life®, father and therapist Bud Hager discusses the daily responsibilities and the overarching emotional journey of parenting a child with a rare disease.
Epilepsy Researcher Compounds Lab Work with Fundraising
This week on Seizing Life® Dr. Patrice Jackson-Ayotunde discusses her 20+ years of epilepsy drug research and her decade-long epilepsy fundraising efforts.