In observance of SUDEP Action Day on Wednesday, October 20, we speak with Dr. Elizabeth Donner about all aspects of SUDEP (Sudden Unexpected Death in Epilepsy). In this thorough and thoughtful discussion, Dr. Donner explains what SUDEP is, what we know and don’t know about it, how it can occur, who is most at risk, and, most importantly, what people with epilepsy and their families can do to lessen the risk of SUDEP.
Author Archive: john-boston
A Brave Little Girl’s Journey with Sturge-Weber Syndrome
Today on Seizing Life®, we speak with Cindy and Elvin Angulo about their daughter Vera’s Sturge-Weber Syndrome diagnosis and its connection to epilepsy.
One Family, Two Different Epilepsy Diagnoses
The numerous types of seizures and the widely varying impacts of epilepsy are two key factors contributing to the public’s misunderstanding of the condition. This week on Seizing Life® we speak with parents who have two children with epilepsy that manifests very differently, and discuss the implications this has had for their family.
Epilepsy… It’s Complicated (rebroadcast)
In a rebroadcast of an episode from June 2019, Dr. Charles Marcuccilli, Director of Pediatric Epilepsy at Rush University Medical Center in Chicago, explains why epilepsy is so misunderstood, discusses the stigma around it, and suggests what patients, caregivers and healthcare professionals can do to increase awareness and education around epilepsy.
Funding Epilepsy Research: How CURE Epilepsy Advances Science to Find a Cure
CURE Epilepsy CEO Beth Dean explains how the organization funds research, why it remains “patient-focused” in its mission, and what areas of epilepsy research offer the most promise for finding cures.
Epilepsy and College: Students and Parents Share Advice and Recommendations
With students preparing to head back to college campuses, we revisit several previous episodes in which students with epilepsy and their parents share experiences and offer advice about choosing and attending college.
From Epilepsy Researcher to Epilepsy Patient: A New Perspective
Today on Seizing Life, we speak with epilepsy researcher, educator, and patient Dr. Steve White. Dr. White has been involved in the field of epilepsy research for over 40 years, is a former CURE Epilepsy grant-recipient and a current member of the organization’s Scientific Advisory Board. He is also an epilepsy patient, having experienced his first seizure in 2010.
Infantile Spasms: Awareness, Observation, and Intervention
A mother’s awareness of infantile spasms and persistence contributes to a positive outcome for her daughter.
Living and Thriving with Epilepsy
Epilepsy patient, counselor, and author Jon Sadler discusses living with epilepsy for more than 50 years and how his experiences have shaped his perspective on epilepsy and informed his efforts to become a counselor and help fellow patients and caregivers.
After SUDEP: A Journey of Grief and Hope
After the loss of his fiancé to SUDEP, Geoff Applegate a single-parent was left coping with his own grief while also learning how to help his young son understand the loss of his mother.