This week on Seizing Life® Barbara D’Amora tells us about her son Nicholas, who lived with autism and epilepsy and became an active and inspirational advocate for the autistic community despite being nonverbal.
Category Archives: Advocacy
Pursuing Effective Epilepsy Treatment and Running for Research
This week on Seizing Life® Clare Phelps shares the difficult diagnosis and frustrating treatment journey of her young daughter Sophie, whose epilepsy has so far been treatment resistant.
From Hiding Diagnosis to Advocating for Awareness: A Young Woman’s Epilepsy Journey
This week on Seizing Life® Mariah Mayhugh recounts her epilepsy journey, from hiding her diagnosis to becoming a passionate advocate for epilepsy awareness.
Love, Marriage, and Epilepsy
This week on Seizing Life® we speak with epilepsy advocates and married couple Tiffany and Chris Kairos about the impact that epilepsy has had on their marriage and professional lives.
Epilepsy Researcher Compounds Lab Work with Fundraising
This week on Seizing Life® Dr. Patrice Jackson-Ayotunde discusses her 20+ years of epilepsy drug research and her decade-long epilepsy fundraising efforts.
A Daughter’s Diagnosis Inspires Concerts for Epilepsy
This week on Seizing Life® Matt Perrone shares his epilepsy journey, discusses the impacts of epilepsy on his mental health, and explains how his daughter’s diagnosis spurred him to create EpiPalooza.
From Desperation to Hope: The Founding and Future of CURE Epilepsy
This week on Seizing Life Susan Axelrod, CURE Epilepsy founder, and Barbara Kelly, the founding Research Chair, discuss the past, present, and future of the organization and epilepsy research.
Sharing Epilepsy Diagnosis After Decades Leads to Climbing for Research
This week on Seizing Life® Carmen Zannier shares her 35 year epilepsy journey, discusses her recent decision to go public with her diagnosis, and explains how her passion for mountain climbing has led her to raising funds for epilepsy research.
Kids Ask Docs the Darndest Things About Epilepsy
This week on Seizing Life® kids ask pediatric neurologists about epilepsy. Dr. Kristen Park of Children’s Hospital of Colorado and Dr. Adam Numis of the UCSF Benioff Children’s Hospital answer questions from kids on a wide variety of topics related to epilepsy.
Remembering a Brother Lost to SUDEP and Finding Hope in Community
CURE Epilepsy Board Member Hannah Whitten shares her experiences growing up with a brother with epilepsy and the tragedy of losing him to SUDEP.