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Episode #126 - Infantile Spasms Diagnosis and Treatment Journey Inspires Children’s Book featuring Kate Kostolansky

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https://media.blubrry.com/seizinglife/content.blubrry.com/seizinglife/SL126-Infantile_Spasms_Diagnosis_and_Treatment_Journey_Inspires_Children_s_Book.mp3
Family

Category Archives: Family

Infantile Spasms Diagnosis and Treatment Journey Inspires Children’s Book

Posted on October 4, 2023October 4, 2023 by john-boston

This week on Seizing Life® Kate Kostolansky shares her daughter’s infantile spasms diagnosis and treatment journey, and explains how these experiences inspired a children’s book to help newly-diagnosed families.

An Extraordinary Life of Autism, Epilepsy, and Advocacy

Posted on September 20, 2023September 20, 2023 by john-boston

This week on Seizing Life® Barbara D’Amora tells us about her son Nicholas, who lived with autism and epilepsy and became an active and inspirational advocate for the autistic community despite being nonverbal.

Pursuing Effective Epilepsy Treatment and Running for Research

Posted on August 23, 2023August 22, 2023 by john-boston

This week on Seizing Life® Clare Phelps shares the difficult diagnosis and frustrating treatment journey of her young daughter Sophie, whose epilepsy has so far been treatment resistant.

The Caregiver Journey: A Father’s Story

Posted on June 14, 2023June 14, 2023 by john-boston

This week on Seizing Life®, father and therapist Bud Hager discusses the daily responsibilities and the overarching emotional journey of parenting a child with a rare disease.

Teen Tennis Player Remains on Court Despite Seizures and Stigma

Posted on May 3, 2023May 8, 2023 by john-boston

This week on Seizing Life® Reid Rainwater and his father Ryan share Reid’s epilepsy treatment journey and the impacts of epilepsy and stigma on his education and tennis career as one of the top young players in Oklahoma.

From LGS to Surgery to Just Being a Kid: A Mother Shares Her Son’s Epilepsy Journey

Posted on April 19, 2023May 10, 2023 by john-boston

This week on Seizing Life® Colleen Jendreas shares her son Owen’s epilepsy journey and discusses the two interventions that have significantly improved his quality of life.

Epilepsy Can’t Stop Young Girl’s Competitive Spirit

Posted on February 22, 2023February 22, 2023 by john-boston

This week on Seizing Life®, the Tsane family share daughter Christiane’s epilepsy diagnosis and treatment journey, and explain how they manage her seizures while nurturing her love of competitive running.

Unleashing Your Inner Mama Bear

Posted on January 11, 2023January 11, 2023 by john-boston

Epilepsy advocate Kate Neale Cooper and host Kelly Cervantes share their experiences parenting children with epilepsy and offer advice on advocating for your child’s epilepsy care.

Kids Ask Docs the Darndest Things About Epilepsy

Posted on December 28, 2022January 24, 2023 by john-boston

This week on Seizing Life® kids ask pediatric neurologists about epilepsy. Dr. Kristen Park of Children’s Hospital of Colorado and Dr. Adam Numis of the UCSF Benioff Children’s Hospital answer questions from kids on a wide variety of topics related to epilepsy.

Managing Epilepsy with the Stress of The Holidays

Posted on December 14, 2022December 14, 2022 by john-boston

This week on Seizing Life®  Neuropsychologist Eva Alden joins us to offer advice for those with epilepsy and their caregivers for coping with stress, anxiety, depression, and travel during the holidays.

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