A mother uses her nursing knowledge to advocate for her son’s epilepsy care and surgery.
Category Archives: Family
Best of Seizing Life 2023
This week on Seizing Life®, we revisit several compelling conversations from the past year in our Best of Seizing Life 2023 compilation episode.
Infantile Spasms Diagnosis and Treatment Journey Inspires Children’s Book
This week on Seizing Life® Kate Kostolansky shares her daughter’s infantile spasms diagnosis and treatment journey, and explains how these experiences inspired a children’s book to help newly-diagnosed families.
An Extraordinary Life of Autism, Epilepsy, and Advocacy
This week on Seizing Life® Barbara D’Amora tells us about her son Nicholas, who lived with autism and epilepsy and became an active and inspirational advocate for the autistic community despite being nonverbal.
Pursuing Effective Epilepsy Treatment and Running for Research
This week on Seizing Life® Clare Phelps shares the difficult diagnosis and frustrating treatment journey of her young daughter Sophie, whose epilepsy has so far been treatment resistant.
The Caregiver Journey: A Father’s Story
This week on Seizing Life®, father and therapist Bud Hager discusses the daily responsibilities and the overarching emotional journey of parenting a child with a rare disease.
Teen Tennis Player Remains on Court Despite Seizures and Stigma
This week on Seizing Life® Reid Rainwater and his father Ryan share Reid’s epilepsy treatment journey and the impacts of epilepsy and stigma on his education and tennis career as one of the top young players in Oklahoma.
From LGS to Surgery to Just Being a Kid: A Mother Shares Her Son’s Epilepsy Journey
This week on Seizing Life® Colleen Jendreas shares her son Owen’s epilepsy journey and discusses the two interventions that have significantly improved his quality of life.
Epilepsy Can’t Stop Young Girl’s Competitive Spirit
This week on Seizing Life®, the Tsane family share daughter Christiane’s epilepsy diagnosis and treatment journey, and explain how they manage her seizures while nurturing her love of competitive running.
Unleashing Your Inner Mama Bear
Epilepsy advocate Kate Neale Cooper and host Kelly Cervantes share their experiences parenting children with epilepsy and offer advice on advocating for your child’s epilepsy care.