In a rebroadcast of an episode from June 2019, Dr. Charles Marcuccilli, Director of Pediatric Epilepsy at Rush University Medical Center in Chicago, explains why epilepsy is so misunderstood, discusses the stigma around it, and suggests what patients, caregivers and healthcare professionals can do to increase awareness and education around epilepsy.
With students preparing to head back to college campuses, we revisit several previous episodes in which students with epilepsy and their parents share experiences and offer advice about choosing and attending college.
Today on Seizing Life, we speak with epilepsy researcher, educator, and patient Dr. Steve White. Dr. White has been involved in the field of epilepsy research for over 40 years, is a former CURE Epilepsy grant-recipient and a current member of the organization’s Scientific Advisory Board. He is also an epilepsy patient, having experienced his first seizure in 2010.
Epilepsy patient, counselor, and author Jon Sadler discusses living with epilepsy for more than 50 years and how his experiences have shaped his perspective on epilepsy and informed his efforts to become a counselor and help fellow patients and caregivers.
For many people, their 20’s are an exciting time of personal and professional growth. It may be the first time you’re on your own, beginning a career and making new friends. Your world is a mix of social activities and work responsibilities. You are young, ambitious, and in the prime of your life. Then, out of nowhere, you have a seizure, and find yourself navigating a new world of doctors, neurologists, tests, and medications in an effort to balance epilepsy with your busy life.
Lauren Panco was 26 years old, in the midst of a promising career with a fast-growing company, engaged to be married, and enjoying a busy professional and social lifestyle when she suddenly suffered a seizure. On this week’s Seizing Life®, Lauren, now 32, discusses the disturbing initial diagnosis she received, her concerns about the impact of epilepsy on her career, and how she has navigated workplace challenges with a determination not to allow epilepsy to define her. Lauren also offers advice for communicating with employers and co-workers and making the decision to have a baby as a woman with epilepsy.
Author and journalist Liane Kupferberg Carter speaks to us about her journey raising a son with a dual diagnosis of autism and epilepsy.
College students Emma Cardwell and Nathan Bliss discuss their experiences growing up with a sibling who has epilepsy.
Alek Stewart has lived with seizures since he was a teenager. But a sudden and dramatic increase in frequency caused Alek and his wife Brittany to make adjustments to their daily lives, and inspired them to create a community, build epilepsy awareness, and support scientific research.
We talk to Angie Froehlich about parenting a teenage daughter living with epilepsy.
A newly diagnosed patient educates herself on epilepsy to advocate for the treatment and therapy that works best for her.