This week on Seizing Life ®, Channing Seideman shares her epilepsy story from her first seizure to a diagnosis of juvenile myoclonic epilepsy and tells us how she found safe ways to continue skiing and horseback riding.
Category Archives: Living with Epilepsy
A Young Woman’s Epilepsy Journey of Acceptance, Empowerment, and Advocacy
This week on Seizing Life college student Kiara Mowat shares her epilepsy journey from her diagnosis in 2018 at age 14 to her first year in college. Hear this personal epilepsy story from an amazing young woman.
Addressing and Reducing Epilepsy-Related Deaths
Today on Seizing Life®, Gardiner Lapham discusses the creation of PAME (Partners Against Mortality in Epilepsy) a group that aims to raise awareness of mortality in epilepsy in order to reduce epilepsy-related deaths.
Learning to Manage Cognitive Challenges for People with Epilepsy
Today on Seizing Life®, Dr. Elaine Kiriakopoulos explains the HOBSCOTCH program, a personalized program that helps people with epilepsy manage and improve memory and cognition to lead happier, more productive lives.
Personal Epilepsy Experience Inspires International Epilepsy Advocacy
This week in honor of International Epilepsy Day we speak with Julianna Shinnick about epilepsy care, stigma, and advocacy in the Mahenge region of Tanzania in East Africa.
Genetic Testing & Counseling for Epilepsy From Genome to Exome and More
This week on Seizing Life we take a deep dive into genetic testing and counseling; what it is, how it works, what it can provide for patients and families, and what it may promise for the future of epilepsy knowledge and care.
The Best of Seizing Life 2021
This week on Seizing Life, we revisit several compelling conversations from the past year in our Best of Seizing Life 2021 compilation episode.
A Family’s Epilepsy Journey: From Diagnosis to Surgery
This week on Seizing Life we speak with Daniel, Paula and David Allbeck about their family’s journey with epilepsy from Daniel’s initial diagnosis over 15 years ago to the results of his recent brain surgery.
SUDEP: What To Know and What To Do
In observance of SUDEP Action Day on Wednesday, October 20, we speak with Dr. Elizabeth Donner about all aspects of SUDEP (Sudden Unexpected Death in Epilepsy). In this thorough and thoughtful discussion, Dr. Donner explains what SUDEP is, what we know and don’t know about it, how it can occur, who is most at risk, and, most importantly, what people with epilepsy and their families can do to lessen the risk of SUDEP.
Epilepsy… It’s Complicated (rebroadcast)
In a rebroadcast of an episode from June 2019, Dr. Charles Marcuccilli, Director of Pediatric Epilepsy at Rush University Medical Center in Chicago, explains why epilepsy is so misunderstood, discusses the stigma around it, and suggests what patients, caregivers and healthcare professionals can do to increase awareness and education around epilepsy.