This week on Seizing Life® we speak with two rare epilepsy organizations, The KCNT1 Epilepsy Foundation and The Cute Syndrome Foundation, about community, awareness, and advancing research.
Category Archives: Types of Epilepsy
A Young Woman’s Journey with Jeavons Syndrome
This week on Seizing Life®, recent college graduate and CURE Epilepsy summer intern Kiley Flowers joins us to talk about Jeavons syndrome and share her personal journey with this rare form of generalized epilepsy.
A Teen Uncovers the Emotional Impacts of Childhood Seizures
This week on Seizing Life®, we speak with Hailey Yoon about the emotional and psychological impacts that childhood epilepsy may have even years after seizures subside.
A Marine Explains the Value of Receiving An Accurate Epilepsy Diagnosis A Decade Late
Inflammation’s Role in Epilepsy and How it Might be Prevented
This week on Seizing Life, epilepsy researcher Dr. Nicholas Varvel explains the connection between inflammation and epilepsy, the promising research being done, and the potential treatment.
Epilepsy Stories and the Research Making a Difference
This week on Seizing Life we present personal stories of three key areas of epilepsy research: Post-Traumatic Epilepsy, SUDEP, and Drug-Resistant epilepsy.
Rare Epilepsy: Collaborating for Advocacy, Research, and Community
Yssa DeWoody of Ring14 USA and the Rare Epilepsy Network provides a primer on rare epilepsies: what they are, how they are diagnosed and treated, and where to find resources and support.
A Post-Traumatic Epilepsy Journey: Diagnosis Acceptance Leads to Career Helping Others
Mark DeFee shares his years-long journey with post-traumatic epilepsy from his diagnosis following multiple concussions, through his years of denial in college, to his acceptance and efforts to manage his seizures.
Finding Solutions and Pursuing Passions with Drug-Resistant Epilepsy
This week on Seizing Life ®, Channing Seideman shares her epilepsy story from her first seizure to a diagnosis of juvenile myoclonic epilepsy and tells us how she found safe ways to continue skiing and horseback riding.
Infantile Spasms – part 2: The Hope of Research
This week on Seizing Life® we conclude our two-part episode about infantile spasms (IS) by focusing on the research being conducted to improve understanding, detection, and treatment options for IS.