*Rescheduled* Gordon Research Conference (GRC) on Mechanisms of Epilepsy and Neuronal Synchronization

This conference has been rescheduled for 2022. Please see this notice from GRC:

As you are aware, coronavirus is having a global impact and the World Health Organization and the Centers for Disease Control have instituted recommendations that include social distancing and cancelling conferences and large gatherings.  Since safety of our attendees is always GRC’s highest priority, the GRC Board of Trustees has decided to withdraw the Mechanisms of Epilepsy and Neuronal Synchronization GRC / GRS and it will be rescheduled for 2022. This decision was made out of an abundance of caution and to alleviate the concerns of conference communities like yours who are scheduled to meet in this timeframe. We will keep you informed as we have more information about the new conference dates and location.

We have a process in place to address all aspects of follow up due to this withdrawal:

1.    GRC will provide full reimbursement of conferee registration fees within the next few weeks.

2.    GRC has provided an official notice attached to this e-mail of the meeting’s withdrawal on GRC letterhead for your records and for use in sending to airlines to request refunds or credits. Most airlines have offered withdrawal fee waivers or credits due to the travel concerns and quarantines in effect.

3.    GRC will post a notification on the GRC website that this conference has been withdrawn from the 2020 schedule and will be rescheduled in 2022. The 2022 conference schedule will be posted by the end of December of this year.

4.    The current chair(s) and vice-chair(s) will remain in place and run the conference in 2022. Applications for 2022 meetings will open at the end of December of this year and you can reapply to the conference at that time.

We are grateful for your understanding and support, and hope that you will be able to attend a GRC in the future.

Day of Science: Epilepsy Conversations in Orange County

Day of Science: Epilepsy Conversations is a free, educational event for patients, families, medical professionals, researchers, and all those touched by or interested in learning more about epilepsy. Join us as doctors and researchers answer your questions on the latest research as it relates to new epilepsy treatment options, surgery, genetics, and more.

Day of Science: Epilepsy Conversations features:

  • A panel of epilepsy experts discussing your questions on the latest in epilepsy research and what it means for patients and families.
  • Q&A sessions and small roundtable discussions with epilepsy experts over lunch
  • Information on cutting-edge therapies and treatments
  • The opportunity to engage with other families and advocacy groups in the epilepsy community
  • Morning refreshments and a provided lunch

The panel includes:

Raman Sankar, MD, PhD
UCLA, Panel Moderator

Joffre Olaya, MD
Children’s Hospital of California

James Park, DO
Hoag Hospital

Daniel Shrey , MD
Children’s Hospital of California

Lily Tran, MD
Children’s Hospital of California

Mary Zupanc, MD
Children’s Hospital of California

This event is hosted in partnership with the Epilepsy Support Network of Orange County.

What to Expect

Epilepsy Research: A Live Q&A – A moderated discussion by a panel of leading local clinicians and researchers who discuss audience questions about recent findings from epilepsy research.

You can submit your questions ahead of time using this form, and the panelists will do their best to address them.

We will also provide you with note cards during the event to write down any additional questions you may have for the panelists.

Lunch & Learn with the Experts – Further explore topics from the Q&A with panelists in a small-group setting.

After the panel discussion, CURE will provide lunch and you will be able to sit with panelists to ask questions and discuss the latest research in epilepsy, therapy, and treatments.

Kids Club and Teen Club – Separate fun events will held for both children ages 2-12 and teens ages 13-19. All staff are trained in Seizure Recognition and First Aid for the safety of your loved ones.

Spanish Translation – Translation for Spanish-speaking guests will be made available during the panel discussion portion of the event.

FAQs

Can I register at the door?
Yes, you and your guests can register once you arrive at the event. CURE staff at the event will be happy to assist you.

Will meals be provided? 
YES! CURE will provide morning refreshments and lunch.

How can I contact the organizer with any questions? 
Please contact us at DOS@CUREepilepsy.org or 312-255-1801. If you need to contact the organizer on the day of the event, you must email DOS@CUREepilepsy.org.

Where do I park?
Day of Science: Epilepsy Conversations is being hosted in the Holmes Tower. Parking is free to all guests using the self-park option. From the Main Hospital Entrance located on Pepper Street, proceed directly west to CHOC Hospital and Clinic/Visitor Parking (3 on the map below).

Please refer to the map below.

Park City Epilepsy Meeting

This unique meeting hosted by the University of Utah brings trainees, junior investigators, and established researchers together with leaders in the field of epilepsy research! Presenters will discuss cutting-edge approaches to transforming epilepsy therapy, exploring state of the art neuroscience as it is being applied to therapy development.

The organizing committee has assembled an outstanding group of speakers – including many former and current CURE Grantees – and provided an agenda that will provide  a unique venue for interaction, discussion, and building collaborations in the spectacular Wasatch Mountain setting of Utah.

Travel awards are available for postdoctoral and clinical fellows and trainees. The application deadline for this award is July 15.

CURE is proud to sponsor this innovative conference, hosted co-chairs by Karen Wilcox, PhD, and former CURE grantee Scott Baraban, PhD.

Registration Fees:

Early Registration
April 26 – July 15

Standard Registration
July 16 – Sept. 5

Late Registration
Sept. 6 – Oct. 6

General Registration

$225

$250

$275

Student/Post-Doc/Fellow within 5 years of Terminal Degree

$100

$125

 

University of Utah Faculty/Staff

$100

$125

 

One Day ONLY

$90

$100

$110

 

STXBP1 Investigators and Family Meeting (SIFM)

The inaugural STXBP1 Investigator and Family Meeting held on June 21, 2019 and June 22, 2019  will bring together researchers and families of individuals with STXBP1 encephalopathies, foster development of the STXBP1 community and accelerate the search for a cure.

STXBP1 has become one of the more commonly diagnosed genetic causes of epileptic encephalopathy in children, accounting for 5% of positive epilepsy cases in a recent study.  This conference is designed to foster interaction and in-depth discussions among researchers and clinicians to further research and innovation in this field. The meeting will also provide opportunities for researchers and the patient community to connect. The goal is to develop a research strategy and scientific roadmap for the STXBP1disorder, and to encourage collaborations and initiatives to support achievement of the roadmap and advancement in the field.

Friday, June 21 will be dedicated to Investigators ONLY and will be held at CHoP. This is where Investigators will have the opportunity to present STXBP1 research and interact with other scientists studying the gene. Investigators will have a chance to interact with our families during the banquet and poster session that night.

On Saturday, June 22, our sessions will be held at the Sheraton University Center and here is where parents, family, and other caregivers will have an opportunity to learn about research that is built and presented for the non-scientific community.

Can’t attend? This event will be live streamed! Find the live stream link here: http://stxdisorders.org/sifm2019/

Your participation at the SIFM is invaluable to the STXBP1 Foundation as discussions and information gleaned will assist the Foundation and the Scientific Advisory Board to build a scientific roadmap. This output will inform future decisions and drive future investments by the STXBP1 Foundation. Through this interaction we hope to drive research in a manner that has the greatest potential to provide better therapies and ultimately, a cure.

8th Eilat International Educational Course: Pharmacological Treatment of Epilepsy

The course is held under the auspices of the ILAE Europe. The program is designed for junior researchers and clinicians (45 years and younger) working in the field of epilepsy treatment and related basic research. It is open to young neurologists, neuropediatricians, pharmacists, pharmacologists, neuropsychologists and neuroscientists. A number of bursaries have been made available towards partially defraying the cost of accommodation expenses of bursary recipients, who will also have their registration fees waived.

The course will take place in Jerusalem at the historic Mishkenot Sha’ananim complex in the picturesque Yemin Moshe neighborhood, which is the ideal venue for this interactive postgraduate teaching program.