Stay tuned! Conference details are coming soon. This conference is proudly hosted by the Phelan-McDermid Syndrome Foundation.

Stay tuned! Conference details are coming soon.

Stay Tuned! Conference details will be announced soon. This conference is proudly hosted by the Tess Research Foundation.

Day of Science: Epilepsy Conversations is a free, educational event for patients, families, medical professionals, researchers, and all those touched by or interested in learning more about epilepsy. Join us as doctors and researchers answer your questions on the latest research as it relates to new epilepsy treatment options, surgery, genetics, and more.

Day of Science: Epilepsy Conversations features:

• A panel of epilepsy experts discussing your questions on the latest in epilepsy research and what it means for patients and families.
• Q&A sessions and small roundtable discussions with epilepsy experts over lunch
• Information on cutting-edge therapies and treatments
• The opportunity to engage with other families and advocacy groups in the epilepsy community
• Morning refreshments and a provided lunch

The panel includes:

This event is hosted in partnership with the Epilepsy Support Network of Orange County.

What to Expect

Epilepsy Research: A Live Q&A – A moderated discussion by a panel of leading local clinicians and researchers who discuss audience questions about recent findings from epilepsy research.

You can submit your questions ahead of time using this form, and the panelists will do their best to address them.

We will also provide you with note cards during the event to write down any additional questions you may have for the panelists.

Lunch & Learn with the Experts – Further explore topics from the Q&A with panelists in a small-group setting.

After the panel discussion, CURE will provide lunch and you will be able to sit with panelists to ask questions and discuss the latest research in epilepsy, therapy, and treatments.

Kids Club and Teen Club – Separate fun events will held for both children ages 2-12 and teens ages 13-19. All staff are trained in Seizure Recognition and First Aid for the safety of your loved ones.

Spanish Translation – Translation for Spanish-speaking guests will be made available during the panel discussion portion of the event.

FAQs

Can I register at the door?
Yes, you and your guests can register once you arrive at the event. CURE staff at the event will be happy to assist you.

Will meals be provided? 
YES! CURE will provide morning refreshments and lunch.

How can I contact the organizer with any questions? 
Please contact us at DOS@CUREepilepsy.org or 312-255-1801. If you need to contact the organizer on the day of the event, you must email DOS@CUREepilepsy.org.

Where do I park?
Day of Science: Epilepsy Conversations is being hosted in the Holmes Tower. Parking is free to all guests using the self-park option. From the Main Hospital Entrance located on Pepper Street, proceed directly west to CHOC Hospital and Clinic/Visitor Parking (3 on the map below).

Please refer to the map below.

This unique meeting hosted by the University of Utah brings trainees, junior investigators, and established researchers together with leaders in the field of epilepsy research! Presenters will discuss cutting-edge approaches to transforming epilepsy therapy, exploring state of the art neuroscience as it is being applied to therapy development.

The organizing committee has assembled an outstanding group of speakers – including many former and current CURE Grantees – and provided an agenda that will provide  a unique venue for interaction, discussion, and building collaborations in the spectacular Wasatch Mountain setting of Utah.

Travel awards are available for postdoctoral and clinical fellows and trainees. The application deadline for this award is July 15.

CURE is proud to sponsor this innovative conference, hosted co-chairs by Karen Wilcox, PhD, and former CURE grantee Scott Baraban, PhD.

The inaugural STXBP1 Investigator and Family Meeting held on June 21, 2019 and June 22, 2019  will bring together researchers and families of individuals with STXBP1 encephalopathies, foster development of the STXBP1 community and accelerate the search for a cure.

STXBP1 has become one of the more commonly diagnosed genetic causes of epileptic encephalopathy in children, accounting for 5% of positive epilepsy cases in a recent study.  This conference is designed to foster interaction and in-depth discussions among researchers and clinicians to further research and innovation in this field. The meeting will also provide opportunities for researchers and the patient community to connect. The goal is to develop a research strategy and scientific roadmap for the STXBP1disorder, and to encourage collaborations and initiatives to support achievement of the roadmap and advancement in the field.

Friday, June 21 will be dedicated to Investigators ONLY and will be held at CHoP. This is where Investigators will have the opportunity to present STXBP1 research and interact with other scientists studying the gene. Investigators will have a chance to interact with our families during the banquet and poster session that night.

On Saturday, June 22, our sessions will be held at the Sheraton University Center and here is where parents, family, and other caregivers will have an opportunity to learn about research that is built and presented for the non-scientific community.

Can’t attend? This event will be live streamed! Find the live stream link here: http://stxdisorders.org/sifm2019/

Your participation at the SIFM is invaluable to the STXBP1 Foundation as discussions and information gleaned will assist the Foundation and the Scientific Advisory Board to build a scientific roadmap. This output will inform future decisions and drive future investments by the STXBP1 Foundation. Through this interaction we hope to drive research in a manner that has the greatest potential to provide better therapies and ultimately, a cure.

The course is held under the auspices of the ILAE Europe. The program is designed for junior researchers and clinicians (45 years and younger) working in the field of epilepsy treatment and related basic research. It is open to young neurologists, neuropediatricians, pharmacists, pharmacologists, neuropsychologists and neuroscientists. A number of bursaries have been made available towards partially defraying the cost of accommodation expenses of bursary recipients, who will also have their registration fees waived.

The course will take place in Jerusalem at the historic Mishkenot Sha’ananim complex in the picturesque Yemin Moshe neighborhood, which is the ideal venue for this interactive postgraduate teaching program.

The inaugural STXBP1 Investigator and Family Meeting will bring together researchers and families of individuals with STXBP1 encephalopathies, foster development of the STXBP1 community and accelerate the search for a cure. STXBP1 has become one of the more commonly diagnosed genetic causes of epileptic encephalopathy in children, accounting for 5% of positive epilepsy cases in a recent study.

This conference is designed to foster interaction and in-depth discussions among researchers and clinicians to further research and innovation in this field. The meeting will also provide opportunities for researchers and the patient community to connect. The goal is to develop a research strategy and scientific roadmap for the STXBP1disorder, and to encourage collaborations and initiatives to support achievement of the roadmap and advancement in the field.

Registration and location details will be announced soon.

The 2019 GRC on Inhibition in the CNS aims to increase our understanding of the spatio-temporal control of inhibitory signaling in normal and pathological CNS function. The scientific sessions will focus on the developmental diversification of inhibition, synaptic plasticity, technical. The sessions will also discuss conceptual challenges to capturing GABAergic diversity, and inhibitory circuit control underlying normal behaviors and CNS disorders.

A New Focus Topic special emphasis session will explore the implications of recent discoveries that a large part of CNS myelin is on specific sets of GABAergic axons, with discussions encompassing bidirectional glia-interneuron communication and their relevance to pathological states.

The conference will feature an unusually high number of opportunities for graduate students and postdoctoral trainees to interact with the invited speakers and other conference participants. Such opportunities will include, in addition to the traditionally well-attended poster sessions, a new mentee-mentor pairing program offering pre-arranged meetings between individual trainees and assigned senior investigators during Monday lunch, and short talks every morning by junior investigators selected from abstract submissions. In addition, for the first time in the history of this GRC, a Power Hour will be held on Monday afternoon to provide an open forum to support the professional growth of women by discussing the challenges women face in science.

The conference will offer in-depth, high-quality scientific discussions aimed at deepening our understanding of the mechanisms of inhibition in CNS function and dysfunction in a collegial, inclusive atmosphere with substantial time for interactions among all participants to accelerate the forging of novel, impactful collaborations to test transformative new ideas.