# CURE Epilepsy: Promoting and funding patient\-focused research\. > CURE Epilepsy is the leading nonprofit epilepsy research organization investing in unmet research needs that will lead to a cure\. Generated by Yoast SEO v28.0, this is an llms.txt file, meant for consumption by LLMs. ## Pages - [Homepage](https://www.cureepilepsy.org/) - [Annual Benefit](https://www.cureepilepsy.org/annual-benefit/) - [CURE Epilepsy Champions](https://www.cureepilepsy.org/get-involved/cure-epilepsy-champions/) - [Do\-It\-Yourself Fundraising](https://www.cureepilepsy.org/get-involved/cure-epilepsy-champions/do-it-yourself-fundraising/) - [Team CURE Epilepsy](https://www.cureepilepsy.org/get-involved/cure-epilepsy-champions/team-cure-epilepsy-2/) ## Venues - [Bend, Oregon](https://www.cureepilepsy.org/venue/bend-oregon/) - [Bend's Old Mill District West Parking Area](https://www.cureepilepsy.org/venue/bends-old-mill-district-west-parking-area-2/) - [Casco, ME](https://www.cureepilepsy.org/venue/casco-me/) - [Charlottesville, VA](https://www.cureepilepsy.org/venue/charlottesville-va/) - [Sapphire Point Amenity Center](https://www.cureepilepsy.org/venue/sapphire-point-amenity-center/) ## Organizers - [SeizureActionPlan\.org](https://www.cureepilepsy.org/organizer/seizureactionplan-org-2/) - [Joanna Sophia Foundation](https://www.cureepilepsy.org/organizer/joanna-sophia-foundation/) - [Push10](https://www.cureepilepsy.org/organizer/push10/) - [SeizureActionPlan\.org](https://www.cureepilepsy.org/organizer/seizureactionplan-org/) ## Events - [Starting and Growing Your Event as a CURE Epilepsy Champion](https://www.cureepilepsy.org/event/staring-and-growing-you-cure-epilepsy-champion-event/): Whether you're starting an event for the first time or want to level\-up current efforts, this webinar is for you\. - [Pipeline of Progress: Therapeutic Devices on the Horizon](https://www.cureepilepsy.org/event/pipeline-of-progress-therapeutic-devices-on-the-horizon/): Explore new therapeutic devices on the horizon, including devices involving transcranial electrical stimulation, transcranial magnetic stimulation, and focused ultrasound\. - [ASICS Los Angeles Marathon](https://www.cureepilepsy.org/event/asics-los-angeles-marathon/): Team CURE Epilepsy is heading to Los Angeles\! Help Team CURE Epilepsy get off on the right foot\. - [Jal Honolulu Marathon 2026](https://www.cureepilepsy.org/event/honolulu-marathon-2026/): Cheer on Team CURE Epilepsy at the 2026 Jal Honolulu Marathon\! Enjoy a beautiful day while raising awareness for epilepsy along a 26\.2\-mile route through paradise\. - [TCS New York City Marathon 2026](https://www.cureepilepsy.org/event/tcs-new-york-city-marathon-2026/): Cheer on Team CURE Epilepsy at the 2026 TSC New York City Marathon\! Our dedicated team is running and fundraising to fuel research in our fight for a cure\. ## Podcast Series - [Nicole Teeny on Epilepsy, Endurance, and Running with Horses](https://www.cureepilepsy.org/seizing-life/nicole-teeny-on-epilepsy-endurance-and-running-with-horses/): Writer, filmmaker, and podcast creator Nicole Teeny shares her journey with adult\-onset epilepsy and the deeply personal story behind her ESPN 30 for 30 audio documentary, GIRL v\. HORSE\. - [One Family’s SUDEP story: A Tragic Loss Drives SUDEP Advocacy and Fundraising](https://www.cureepilepsy.org/seizing-life/one-familys-sudep-story-a-tragic-loss-drives-sudep-advocacy-and-fundraising/): In observance of Sudden Unexpected Death in Epilepsy \(SUDEP\) Action Day on October 16th, we speak with the Maffie family about the tragic loss of Anthony Maffie to SUDEP and their advocacy and fundraising efforts in Anthony’s honor\. - [Epilepsy and Medical Trauma: Recognizing, Accepting, and Healing](https://www.cureepilepsy.org/seizing-life/epilepsy-and-medical-trauma-recognizing-accepting-and-healing/): Neuropsychologist Dr\. James Jackson discusses the concept of medical trauma and the often\-overlooked emotional toll of living with epilepsy on individuals and families\. - [Subtle Seizures, Big Impact: A Young Woman’s Personal Epilepsy Journey](https://www.cureepilepsy.org/seizing-life/subtle-seizures-big-impact-a-young-womans-personal-epilepsy-journey/): Skylar Swatt shares her epilepsy journey, from a stroke that caused seizures shortly after her birth to the onset of “mini\-seizures” when she was a child which eventually resulted in a tonic clonic seizure and an epilepsy diagnosis in her teens\. Skylar details her treatment journey including an initial misdiagnosis of her seizures as muscle spasms and the mental health impacts of her diagnosis and epilepsy medications\. - [Welcome to Seizing Life](https://www.cureepilepsy.org/seizing-life/welcome-to-seizing-life/): Welcome to Seizing Life, a CURE podcast\. Host and CURE Board Member Kelly Cervantes brings you inspirational and helpful stories about epilepsy, how it impacts lives, and the search for a cure\. ## Personal Stories - [Riley Butcher's Story](https://www.cureepilepsy.org/personal-stories/riley-butchers-story/): Although epileptic is one word that can be used to describe me, it does not define me\. - [Isabella Johnson's Story](https://www.cureepilepsy.org/personal-stories/isabella-johnsons-story/): Elin’s medical journey began before she was born and at just 14 days old, following a five\-day inpatient hospital stay, she was diagnosed with epilepsy\. - [Katherine P\. Paradis' Story](https://www.cureepilepsy.org/personal-stories/katherine-p-paradis-story/): This diagnosis changed everything\. Suddenly, there were so many things I could no longer do\. I learned how powerful the people around me can be and learned how to advocate for my health and for myself\. - [Riley Evan's Story](https://www.cureepilepsy.org/personal-stories/riley-evans-story/): Our family’s life changed in an instant when my wife, Paige, had a full tonic\-clonic seizure at home\. At the time, I knew very little about seizures and feared the worst\. - [Alex Sprague's Story](https://www.cureepilepsy.org/personal-stories/alex-spragues-story/): Along with the usual responsibilities of caring for a baby, we quickly had to learn how to manage seizures, keep rescue medications close at hand, and live with the constant uncertainty of when the next emergency might come\. ## Research News - [The Cameron Boyce Foundation to Join the CURE Epilepsy Family](https://www.cureepilepsy.org/news/the-cameron-boyce-foundation-to-join-the-cure-epilepsy-family/): CURE Epilepsy will serve as the long\-term steward of The Cameron Boyce Foundation's legacy in epilepsy, providing scientific leadership and infrastructure to further the impact of the Foundation’s important work across community\-building, awareness, and research\. - [Are Comorbid Sleep Disorders Associated with Higher Risk for Sudden Unexpected Death in Epilepsy? Observations from a Canadian Epilepsy Clinic](https://www.cureepilepsy.org/news/are-comorbid-sleep-disorders-associated-with-higher-risk-for-sudden-unexpected-death-in-epilepsy-observations-from-a-canadian-epilepsy-clinic/): This study investigated the relationship between primary sleep disorders and SUDEP risk\. - [Study Links Brain Network Interactions to Depression Risk in Pediatric Epilepsy](https://www.cureepilepsy.org/news/study-links-brain-network-interactions-to-depression-risk-in-pediatric-epilepsy/): A team of researchers have identified a potential neurobiological marker for depression risk in children with epilepsy by studying how brain lesions interact with functional brain networks\. - [Cancer Risk May be Increased After Unexplained First Seizure, Finds Study](https://www.cureepilepsy.org/news/cancer-risk-may-be-increased-after-unexplained-first-seizure-finds-study/): In a recent study, researchers found that first\-time seizures are linked to an elevated short\-term risk of cancer\. - [Relapse After Drug Withdrawal in Patients with Epilepsy After Two Years of Seizure\-Free: A Cohort Study](https://www.cureepilepsy.org/news/relapse-after-drug-withdrawal-in-patients-with-epilepsy-after-two-years-of-seizure-free-a-cohort-study/): The overall recurrence rate of epilepsy in our patient cohort was high, and the peak recurrence period was within one year of drug withdrawal\. ## Epilepsy Explained - [Epilepsy Surgery Part 2](https://www.cureepilepsy.org/epilepsy-explained/how-to-prepare-for-epilepsy-surgery/): This is part 2 of Epilepsy Surgery Explained\. Dr\. Scott Perry answers questions about preparing for epilepsy brain surgery and addresses post\-operation concerns\. This is part of out Treatments and Therapies video series\. - [Genetic Testing Explained](https://www.cureepilepsy.org/epilepsy-explained/genetic-testing-explained/): Dr\. Elizabeth Gerard, MD, answers your questions about genetic testing for epilepsy\. - [Epileptologist Visits Explained](https://www.cureepilepsy.org/epilepsy-explained/epileptologist-visits-explained/): Dr\. Douglas Nordli, Pediatric Epileptologist at the University of Chicago Medicine, offers advice and insights on how to prepare for your epileptologist or neurologist appointments in order to get the most out of the time with your healthcare provider\. - [Catamenial Epilepsy Explained](https://www.cureepilepsy.org/epilepsy-explained/catamenial-epilepsy-explained/): Dr\. Alexa King explains what every woman who experiences seizures needs to know about catamenial epilepsy\. - [Seizure Phases Explained](https://www.cureepilepsy.org/epilepsy-explained/seizure-phases-explained/): Dr\. Kristen Park explains what happens before, during, and after a seizure in Seizure Phases Explained\. ## Team Bios - [Alice Lam, MD, PhD](https://www.cureepilepsy.org/about-cure-epilepsy/our-team/alice-lam-md-phd/): Alice Lam, MD, PhD, Harvard Medical School and The Massachusetts General Hospital - [Dana Vielmetti, MBA](https://www.cureepilepsy.org/about-cure-epilepsy/our-team/dana-vielmetti/): Dana Vielmetti, MBA, Senior Director, Marketing and Communications - [Tonya Therrien](https://www.cureepilepsy.org/about-cure-epilepsy/our-team/tonya-therrien/): Tonya Therrien, Director, Events and Partnerships - [Satinder Singh, PhD](https://www.cureepilepsy.org/about-cure-epilepsy/our-team/satinder-singh-phd/): Satinder Singh, PhD, Research in Residence - [Rimi Abiodun\-Oni](https://www.cureepilepsy.org/about-cure-epilepsy/our-team/rimi-abiodun-oni/): Rimi Abiodun\-Oni, Coordinator, Events ## Discoveries - [New Cause of Severe Childhood Epilepsy Found – Genetic Mutation in the CUX2 Gene](https://www.cureepilepsy.org/research-discoveries/new-cause-of-severe-childhood-epilepsy-found-genetic-mutation-in-the-cux2-gene/): These genetic mutations are very rare and therefore collaborative efforts with multiple patient populations make it more likely that a rare genetic mutation can be identified and studied\. - [Harmonizing Epilepsy Research: Common Data Elements](https://www.cureepilepsy.org/research-discoveries/harmonizing-epilepsy-research-common-data-elements/): CDEs provide universal “sheet music” for epilepsy research, providing a standardized way of describing and collecting data\. - [Transplanting Inhibitory Neurons Can Reduce Seizures](https://www.cureepilepsy.org/research-discoveries/transplanting-inhibitory-neurons-can-reduce-seizures/): An advantage of regenerative medicine is that the transplanted cells can potentially replace lost or damaged inhibitory neurons and also integrate into the existing brain circuitry\. - [Serendipity in Science: New Uses for Old Drugs](https://www.cureepilepsy.org/research-discoveries/serendipity-in-science-new-uses-for-old-drugs/): Drug repurposing fast\-tracks treatments for epilepsy - [Sorting Out SUDEP: Seeking The Causes, Finding Those At Risk](https://www.cureepilepsy.org/research-discoveries/sorting-out-sudep-seeking-the-causes-finding-those-at-risk/): To really move the needle on SUDEP research, we need to bridge two key topics: advancing our understanding of SUDEP risk through existing data and leveraging that knowledge to develop tools that help individuals and healthcare providers better understand and communicate risk\. ## Webinars - [Pipeline of Progress: Therapeutic Devices on the Horizon](https://www.cureepilepsy.org/webinars/pipeline-of-progress-therapeutic-devices-on-the-horizon/) - [Pipeline of Progress: Epilepsy Medications on the Horizon](https://www.cureepilepsy.org/webinars/pipeline-of-progress-epilepsy-medications-on-the-horizon/): Dr\. Nathan Fountain reviews some of the epilepsy medications in phase III clinical trial as of April 2026\. - [Epilepsy Service Dogs: The Science Behind the Sniff](https://www.cureepilepsy.org/webinars/epilepsy-service-dogs-the-science-behind-the-sniff/): Review of the two types of epilepsy service dogs \(seizure alert dogs and seizure rescue dogs\), why they can help people with epilepsy, and the process of getting one\. - [Women’s Health: Complex Interactions of Epilepsy, Medications, and Hormones](https://www.cureepilepsy.org/webinars/womens-health-complex-interactions-of-epilepsy-medications-and-hormones/): How can epilepsy and anti\-seizure medications affect hormones and reproductive health? How do sex steroid hormones affect anti\-seizure medications and seizure control? Can the menopausal transition affect epilepsy? Get the answers to this and more\. - [Epilepsy Emergencies and Current Rescue Medications](https://www.cureepilepsy.org/webinars/epilepsy-emergencies-and-current-rescue-medications/): When a seizure becomes an emergency, rescue medications provide immediate relief and help prevent the need for emergency care\. ## Treatment Talks - [Working With Your Doctor On Epilepsy Medication Access](https://www.cureepilepsy.org/treatment-talks/working_with_your_doctor_on_epilepsy_medication_access/): Working with your doctor to access new epilepsy drugs or switch to different anti\-seizure medications\. - [Seizure Emergencies: Delivery Methods and Treatment Options](https://www.cureepilepsy.org/treatment-talks/seizure-emergencies-delivery-methods-and-treatment-options/): Seizure emergencies and the different delivery methods and treatment options for the current rescue medications\. - [Diagnosis, Treatment, and Prognosis of Childhood Absence Epilepsy](https://www.cureepilepsy.org/treatment-talks/diagnosis-treatment-and-prognosis-of-childhood-absence-epilepsy/): This Treatment Talk will discuss the diagnosis, treatment, and prognosis of childhood absence epilepsy\. - [Treatment of Focal Epilepsy: Advancement Toward Medical Remission](https://www.cureepilepsy.org/treatment-talks/treatment-of-focal-epilepsy-advancement-toward-medical-remission/): This Treatment Talk discusses focal epilepsy and the most recent treatments to help patients achieve medical remission\. - [Fenfluramine \- Treatment for Lennox\-Gastaut Syndrome \(LGS\)](https://www.cureepilepsy.org/treatment-talks/fenfluramine/): This Treatment Talk will focus on Lennox\-Gastaut Syndrome \(LGS\), a severe form of childhood epilepsy that arises during infancy or early childhood, and the use of the drug fenfluramine to treat patients diagnosed with LGS\. ## Grants Awarded - [Restoration of Circadian Function as a Novel Therapy for Epilepsy](https://www.cureepilepsy.org/grant_type/restoration-of-circadian-function-as-a-novel-therapy-for-epilepsy/): Dr\. Reschke will study how disruption of circadian rhythms could affect gene expression during epileptogenesis\. - [Cardiac and Autonomic Pathological Markers for Arrhythmias and Sudden Unexpected Death in Epilepsy Patients](https://www.cureepilepsy.org/grant_type/cardiac-and-autonomic-pathological-markers-for-arrhythmias-and-sudden-unexpected-death-in-epilepsy-patients/): Dr\. Auerbach’s team will use analytical tools that are well accepted in the cardiac field, but new to the field of epilepsy and SUDEP, to identify epilepsy patient populations at risk of cardiac arrhythmias\. - [Understanding the Cardiac Basis of SUDEP in Alternating Hemiplegia of Childhood](https://www.cureepilepsy.org/grant_type/understanding-the-cardiac-basis-of-sudep-in-alternating-hemiplegia-of-childhood/): This project will identify which children are at highest risk and which medications are safest, with the goal of preventing sudden death and providing families and guiding clinical care of patients\. - [Integrative AI\-driven Analysis of Genetic, Cardiac, Neurophysiological, and Sleep\-related Risk Factors for Personalized SUDEP Risk Prediction](https://www.cureepilepsy.org/grant_type/integrative-ai-driven-analysis-of-genetic-cardiac-neurophysiological-and-sleep-related-risk-factors-for-personalized-sudep-risk-prediction/): Using advanced artificial intelligence, this team aims to make advances that will facilitate the development of a personalized risk prediction tool that can estimate an individual’s SUDEP risk and clearly explain the reasons behind it\. - [Identifying Clinical Biomarkers and Developing Multimodal Risk Prediction Tools for SUDEP Prevention](https://www.cureepilepsy.org/grant_type/identifying-clinical-biomarkers-and-developing-multimodal-risk-prediction-tools-for-sudep-prevention/): By analyzing patterns in heart rhythm, breathing, brain activity, arousal, and sleep, this project aims to uncover measurable warning signs of risk to inform prevention strategies\. ## Medications - [Diazepam](https://www.cureepilepsy.org/understanding-epilepsy/treatments/epilepsy-medications/diazepam/) - [Midazolam](https://www.cureepilepsy.org/understanding-epilepsy/treatments/epilepsy-medications/midazolam/) - [Lorazepam](https://www.cureepilepsy.org/understanding-epilepsy/treatments/epilepsy-medications/lorazepam/) - [Vigabatrin](https://www.cureepilepsy.org/understanding-epilepsy/treatments/epilepsy-medications/vigabatrin/) - [Cannabidiol](https://www.cureepilepsy.org/understanding-epilepsy/treatments/epilepsy-medications/cannabidiol/) ## Event Categories - [Awareness Events](https://www.cureepilepsy.org/events/category/awareness-events/) - [CURE Epilepsy Champion Events](https://www.cureepilepsy.org/events/category/cure-epilepsy-champion-events/) - [Team CURE Epilepsy Events](https://www.cureepilepsy.org/events/category/team-cure-epilepsy-events/) - [Run/Walk Series](https://www.cureepilepsy.org/events/category/run-walk-series/) - [Online Events](https://www.cureepilepsy.org/events/category/online-events/) ## Topic - [Pediatric Epilepsy](https://www.cureepilepsy.org/topic/pediatric-epilepsy/) - [Genetics](https://www.cureepilepsy.org/topic/genetics/) - [SUDEP](https://www.cureepilepsy.org/topic/sudep/) - [Mechanisms](https://www.cureepilepsy.org/topic/mechanisms/) - [Treatment](https://www.cureepilepsy.org/topic/treatment/) ## Story Topics - [Adult with Epilepsy](https://www.cureepilepsy.org/story_topics/adult-with-epilepsy/) - [Child with Epilepsy](https://www.cureepilepsy.org/story_topics/child-with-epilepsy/) - [Rare Epilepsies](https://www.cureepilepsy.org/story_topics/rare-epilepsies/) - [Surgery](https://www.cureepilepsy.org/story_topics/surgery/) - [Genetics](https://www.cureepilepsy.org/story_topics/genetics/) ## Podcast Topics - [Living With Epilepsy](https://www.cureepilepsy.org/podcast_topics/living-with-epilepsy/) - [Research](https://www.cureepilepsy.org/podcast_topics/research/) - [Parent/Caregiver](https://www.cureepilepsy.org/podcast_topics/parent-caregiver/) - [Child](https://www.cureepilepsy.org/podcast_topics/child/) - [Adult](https://www.cureepilepsy.org/podcast_topics/adult/) ## Optional - [Sitemap index](https://www.cureepilepsy.org/sitemap_index.xml)