It’s good that I love New York, because I get to love it a little bit longer with thanks to the Nor’easter.
More on my New York adventures in a moment, but first I wanted to remind you about a CURE webinar today for parents of school-age children. If you’re raising a child with epilepsy, be sure to register for the free webinar on Epilepsy's Impact on Learning and School Performance. A board certified pediatric neuropsychologist will offer insights into managing cognitive-related issues experienced by many students with epilepsy.
Today’s webinar follows another, from earlier this week, on Genetic Testing to Develop Personalized Medicine for Epilepsy. (Follow this link to hear the recording.) I thank Dr. David Goldstein for leading that webinar live from Columbia University’s Institute of Genomic Medicine. As I met with David and his entire team working on CURE's Epilepsy Genetics Initiative, I was inspired both by their dedication and advances in identifying epilepsy genes that could lead to better treatments.
CURE seeks to get the biggest impact from every dollar we collect for epilepsy research. Based on this week’s briefings in New York with CURE-funded scientists, I am especially energized about the potential for their upcoming research.
WEBINAR TODAY: EPILEPSY'S IMPACT ON LEARNING AND SCHOOL PERFORMANCE
Today at 2pm ET / 1pm CT, CURE will be hosting a webinar which highlights the latest research on how epilepsy impacts cognition, learning, and school performance. The webinar is free, but you need to register.
The webinar will be presented by Dr. Madison Berl, a neuropsychologist at Children’s National Hospital in Washington, D.C. Dr. Berl’s presentation will be followed by an interactive Q&A session. Some of the questions you might hear addressed include:
- How do schools build an IEP for a child with epilepsy?
- Are there services available to help my child transition into adulthood?
- What laws are in place to support my child?
LAST CHANCE TO ENTER: SCORE VIP TICKETS TO HAMILTON IN CHICAGO AND MEET MIGUEL CERVANTER. FLIGHTS AND A FRIED CHICKEN DINNER INCLUDED!
It's your last chance* to enter the OMAZE campaign in partnership with HAMILTON’s Miguel Cervantes. Proceeds from the campaign will go to support CURE’s mission of funding epilepsy research initiatives. Everyone is invited to donate through OMAZE to receive entries for the HAMILTON prize package.
The HAMILTON prize: You and a friend will start off your night in Chicago with a pre-show tour backstage to get a peek behind the scenes before it all goes down. Then you’ll watch the show from VIP seats, with access to the Broadway in Chicago Private Suite. After the show, you’ll head to the stage to meet the actor who plays Alexander Hamilton, Miguel Cervantes, and join him for his favorite meal: a fried chicken dinner.
Don’t throw away this shot! Flights and 4-star hotel are on us.
*Entry Deadline: March 12, 2018 at 11:59pm PST
PARTNERS AGAINST MORTALITY IN EPILEPSY CONFERENCE: JUNE 14-16 | ALEXANDRIA, VA
The fourth PAME Conference will bring together healthcare providers, researchers, patient advocates, caregivers, families, and patients living with epilepsy to focus on improving our understanding of mortality in epilepsy, including Sudden Unexpected Death in Epilepsy (SUDEP).
Reminder for Researchers: Abstracts Due March 19
Abstracts will be considered from all investigators doing epidemiological, basic, translational, or clinical research on any aspect of mortality in epilepsy. All submitted abstracts will be reviewed and all accepted abstracts will be presented as posters.
2018 SCHOLARSHIPS: APPLY BY APRIL 15
Made possible by the generous funding of Lundbeck, CURE's 2018 Education Enrichment Fund (EEF) Scholarship program provides a one-time scholarship (up to $5,000) to be used toward coursework that will advance personal knowledge in the field of epilepsy as it relates to research, health education, awareness, and/or advocacy. Anyone diagnosed with epilepsy, immediate family members, and/or caregivers of someone with epilepsy are encouraged to apply.
PAINT THE WORLD PURPLE WITH CURE
Purple Day is March 26, and CURE invites you to paint Facebook, Twitter, and Instagram PURPLE! CURE will be showcasing art created by our community from March 25-31. Please submit your ORIGINAL artwork to firstname.lastname@example.org by March 16 for consideration.
Not artistic? You can still make a difference! Create a Facebook fundraiser and raise important funds for epilepsy research. Or share CURE’s social media posts throughout the last week of March.
Let’s get the world talking about epilepsy, shatter the myths, and remind those affected – they aren’t alone. The more people learn about epilepsy, the more understanding there will be!
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