CURE Epilepsy Update: December 2020

Season’s greetings! Not only is it the holiday season, but it is the season of giving and many of you helped us kick it off by participating in #GivingTuesday. Thank you for supporting critically needed epilepsy research — your gifts are more important than ever.

With the challenges that the epilepsy research community has faced during the pandemic, CURE Epilepsy has worked hard to not only maintain our funding commitments, but to also lean-in by dedicating additional funds to support the epilepsy research community. We were delighted to recently announce 8 new CURE Epilepsy and Taking Flight grant awards, which included 1 additional Taking Flight grant. We will also be sharing exciting news about 14 newly created Epilepsy Research Continuity grants which we developed to help researchers with the unexpected costs related to the pandemic, all of which is made possible by you, our generous donors.

With or without this pandemic, your ongoing support is essential for CURE Epilepsy to continue funding vital epilepsy research. If you have not made your year-end gift, please take a minute to do so now. We appreciate gifts of all sizes — together, they make an incredible difference.

Together we can achieve a world without seizures.

Warmest,

Beth Lewin Dean, CEO

Please read below to see this month’s updates on:


Infantile Spasms Awareness Week is December 1-7
Learn More

Infantile spasms (IS) is a medical emergency. Quick diagnosis and treatment of this severe form of pediatric epilepsy is vital to reduce the long-term impact these seizures can have on a baby’s developing brain. However, getting a child appropriate care during the critical time when the seizures first begin is a challenge because the movements can be subtle and are often overlooked or misdiagnosed as colic or reflux.

During Infantile Spasms Awareness Week, we encourage you to learn more about how to identify IS and share these resources with your family and friends.


CURE Epilepsy Discovery: CURE Epilepsy Infantile Spasms Initiative – Using Team Science to Discover New Targets
Learn More

Launched in 2013, the CURE Epilepsy Infantile Spasms Initiative used a team science approach to advance findings that could lead to better treatments for IS. Working together, eight research teams from different institutions helped identify promising targets and therapeutic interventions. The findings from the IS Initiative have led to 19 publications to date, 7 additional manuscripts in preparation, 3 federal grants from the NIH, and a patent.

In addition, insights from the project’s team science approach have been invaluable in helping better understand approaches to accelerate basic research, which have been applied to CURE Epilepsy’s ongoing Post-Traumatic Epilepsy Initiative, funded by the US Department of Defense.


American Epilepsy Society (AES) Hoyer Lecture – December 4, 2020 2:15 – 3:45 PM ET
Learn More

On December 4, take part in a rare opportunity to hear the 18th Judith Hoyer Lecture in Epilepsy, which is part of AES’s annual meeting. The lecture combines discussion of the state-of-the-art in a specific area of epilepsy coupled with the impact it may have on health care delivery. This year the lecture will focus on Status Epilepticus: Progress and Challenges, and be presented by Shlomo Shinnar, MD, PhD, FAES of the Albert Einstein College of Medicine. The event is free of cost.


Partners Against Mortality in Epilepsy (PAME) Virtual Session – December 7
Learn More

Join the PAME live stream on Monday, December 7 at 2:30 PM ET for a two-hour virtual session. This event will feature Victor and Libby Boyce, who lost their son Cameron to SUDEP at the age of 20, updates on new research and advocacy recommendations, and a review of Vital Topics in Epilepsy Mortality.

You can join the livestream at www.pameonline.org/2020. This event it is free of cost.


Support CURE Epilepsy by Shopping with AmazonSmile
Shop Here

Tis the season to buy presents for loved ones! When you shop on Amazon with AmazonSmile, you can help fund critically needed epilepsy research. So, as you start your holiday shopping, please go to the AmazonSmile portal at smile.amazon.com and make CURE Epilepsy your charity of choice.


CURE Epilepsy Scholarships
Shop Here

CURE Epilepsy is helping young scholars become agents of change for the epilepsy community with Education Enrichment Fund (EEF) scholarships of up to $5,000! Applications will be available on our website beginning Tuesday, December 15.

EEF scholarships support coursework in scholars’ chosen fields, so they can use their knowledge and skills to serve as agents of change in the epilepsy community. This one-time scholarship is awarded to those living with epilepsy or to family members and caregivers of those impacted by epilepsy.

EEF scholarships are made possible by the generous support of Greenwich Biosciences.


New from Seizing Life, A CURE Epilepsy Podcast

Catch up on the latest episodes of our Seizing Life podcast, listen as we share:

  • A Veteran’s Battle with Post-Traumatic Epilepsy: Former U.S. Army Captain Patrick Horan’s and his wife Patty discuss his experiences after a near-fatal injury, which resulted in years of rehab and Post-Traumatic Epilepsy. Watch or listen
  • The Impact of COVID-19 on Epilepsy Research: Mike Coburn of Research!America discusses the short-term and long-term impacts of the pandemic on scientific research. Watch or listen

 

Read the Latest CURE Epilepsy Report

The epilepsy community is a community that knows challenge.

In the face of a global pandemic, we’re experiencing more challenges than ever before. Paused research. Major shifts in medical care. Increased health risks. Feelings of isolation, fear, and anxiety.

But we’re also a community that rises above challenges.

That’s CURE Epilepsy’s commitment to you – that we will remain steadfast in our mission to find a cure by identifying and funding the most innovative research in the epilepsy space.

In this issue of Researching to CURE Epilepsy, you’ll read about our new continuity fund, fueled by the Cotton family who rushed to support researchers with projects stalled because of pandemic funding shifts. You’ll also learn about our new COVID-19 online hub, filled with educational resources on how the virus impacts epilepsy patients.

We’re all learning how to live in a new normal, but while much has changed, living with epilepsy has not. For those impacted by epilepsy every day, I hope you’ll find inspiration in this issue and feel our relentless commitment to a cure. Your stories of living with epilepsy motivate us and serve as powerful reminders that this disease must be stopped.

Announcing the CURE Epilepsy Grantees!

We are very pleased to announce our grant recipients. Despite the impact of the COVID-19 pandemic, we were more determined than ever to ensure that CURE Epilepsy continues to advance epilepsy research. The eight novel research projects highlighted here, a combination of Taking Flight and CURE Epilepsy grants, will accelerate our ability to find cures for epilepsy. These investigators represent a range of young researchers, early in their career, who are “taking flight,” demonstrating their leadership and readiness to establish themselves independent of their mentors, as well as established researchers who are working zealously to further our understanding so we can achieve our goal – a cure for this devastating condition.

Announcing the Recent Taking Flight Award and CURE Epilepsy Award Grantees

Taking Flight Award Grantees

Ediberto Amorim de Cerqueira, M.D.
University of California, San Francisco – Dr. Amorim will define EEG signatures that predict  seizure risk after an acute brain injury. Dr. Amorim will also use EEG signatures to understand responses to anti-seizure drugs and use the knowledge gained to improve treatment decisions. The hope is that a data-driven approach to assess seizure risk and treatment response will help pave the way to personalized treatments that can prevent epilepsy from developing after acute brain injury. Read more »

Mark Bennett, Ph.D.
The Walter and Eliza Hall Institute of Medical Research, Australia – Dr. Bennett will address the role of ‘repeat expansions’ in epilepsy. Repeat expansions are genetic changes that occur when repeated segments of DNA are copied many times. Dr. Bennett’s approach will be to analyze available data using cutting-edge computation methods and seek to discover novel repeat expansions that are associated with epilepsy. Read more »
Ankit Khambhati, Ph.D.
University of California, San Francisco – Dr. Khambhati aims to optimize paradigms used to stimulate the brain with a goal of interfering with seizure activity, leading to faster and more effective control of focal-onset seizures. Dr. Khambhati will develop a detailed map of patterns of stimulation and epileptic network response with the goal of being able to better calibrate implantable neurostimulation devices to provide more effective, long-term control of seizures. Read more »
Cristina Reschke, Ph.D.
Royal College of Surgeons in Ireland – Dr. Reschke will focus on how disruptions of circadian rhythms affect gene expression during development of epilepsy. This study will also look at developing a gene therapy approach to restore proper function of a central gene that is involved in regulating circadian rhythms. Dr. Reschke’s research project is generously funded by The Cameron Boyce Foundation. Read more »
Ranmal Samarasinghe, M.D., Ph.D.
University of California, Los Angeles – Dr. Samarasinghe will study 3D brain-like structures derived from the cells of people with epilepsy who have a mutation in the SCN8A gene to uncover cellular changes that account for differences in neuronal activity in different areas of the brain. He will use these structures as a model to test novel anti-seizure medications. Read more »

CURE Epilepsy Award Grantees

Cristina Gross, Ph.D. and Steven Crone, Ph.D.
Cincinnati Children’s Hospital – Drs. Gross and Crone will use mouse models to test if changes in a specific genetic pathway, called the PI3K/mTOR pathway, lead to breathing abnormalities and Sudden Unexpected Death in Epilepsy (SUDEP). The team will also test whether blocking this pathway with a specific compound reduces breathing abnormalities and SUDEP. This work could ultimately lead to a novel treatment that will reduce the risk of SUDEP. Read more »

Nuria Lacuey Lecumberri, M.D., Ph.D.
The University of Texas Health Science Center at Houston – Dr. Lecumberri’s project aims to improve the overall understanding of breathing control and how it is associated with SUDEP. The project will identify specific brain areas that are important for breathing function and develop stimulation techniques that may be used to prevent seizure-induced breathing failure. If successful, this research could be useful for developing brain stimulation strategies to prevent SUDEP. Read more »

Nigel Pedersen, M.D.
Emory University – The goal of Dr. Pedersen’s research is to understand the mechanisms underlying the well-recognized relationship between sleep and epilepsy. The team will use a mouse model of medial temporal lobe epilepsy to understand how sleep and seizure severity are related. They will then use novel techniques to manipulate specific areas of the brain to determine the impact of these brain circuits on seizures and lay the groundwork for transformative treatments for epilepsy. Read more »

Announcing our 2021 Grant Timeline!

Announcing our 2021 CURE Epilepsy grant timeline! Below please find the key dates for the CURE Epilepsy Award and Taking Flight Award grant applications. International researchers are also encouraged to submit for either award.

Additionally, information on CURE Epilepsy’s virtual booth at this year’s American Epilepsy Society (AES) Annual Meeting, details on how to participate in the Partners Against Mortality in Epilepsy (PAME) Conference virtual session, and the announcement of the CURE Epilepsy and Taking Flight Award grantees is shared below.


Key Information About the CURE Epilepsy Award and Taking Flight Awards

CURE Epilepsy Award- $250,000 over two years
This award reflects CURE’s continued focus on scientific advances that have potential to truly transform the lives of those affected by epilepsy.

Taking Flight Award – $100,000 for one year
This award seeks to promote the careers of young epilepsy investigators, allowing them to develop a research focus independent of their mentors.

Research Areas
Sudden unexpected death in epilepsy (SUDEP), acquired epilepsy, treatment-resistant epilepsy, pediatric epilepsy and sleep and epilepsy.

Timeline for both awards

Activity Date
Request for Proposals Tuesday, December 1, 2020
Letter of Intent Deadline Monday, January 11, 2021 at 9:00pm ET
Full Application Invitations Tuesday, February 22, 2021
Full Application Deadline Thursday, April 1, 2021 at 9:00pm ET
Anticipated Award Announcement July 2021
Anticipated Project Start Date Fall 2021

Learn More


Come See Our Virtual Booth at AES2020

Join CURE Epilepsy at AES2020! We’ll be in our virtual booth Saturday, December 5 through Monday, December 7, where you can speak with leaders in the epilepsy research community and CURE Epilepsy staff to learn more about our research programs.

You’ll have the opportunity to “meet” and greet with luminaries in the field of epilepsy such as:

  • Susan Axelrod, Founder, CURE Epilepsy
  • Dr. Dan Lowenstein, Executive Vice Chancellor and Provost, University of California, San Francisco
  • Drs. Vicky Whittemore and Adam Hartman, Program Directors, NINDS
  • Dr. Karen Wilcox, Professor and Chair, University of Utah

View our AES2020 Booth Schedule


Partners Against Mortality in Epilepsy (PAME) Virtual Session – December 7

Join the PAME live stream on Monday, December 7 at 2:30 PM ET for a two-hour virtual session. This event will feature Victor and Libby Boyce, who lost their son Cameron to SUDEP at the age of 20, updates on new research and advocacy recommendations, and a review of Vital Topics in Epilepsy Mortality.

You can join the livestream at www.pameonline.org/2020. You do not need to be an AES attendee to participate, and it is free of cost.

Learn More


Announcing the Recent Taking Flight Award and CURE Epilepsy Award Grantees

Taking Flight Award Grantees

  • Edilberto Amorim de Cerqueira, M.D., University of California, San Francisco 
    “Personalizing Seizure Treatment After Acute Brain Injury Using EEG”
  • Mark Bennett, Ph.D., The Walter and Eliza Hall Institute of Medical Research, Australia 
    “Evaluating the Role of Repeat Expansions as a Genetic Cause of Epilepsy”
  • Ankit Khambhati, Ph.D., University of California, San Francisco 
    “Stochastic, Multi-Electrode Stimulation to Probe and Perturb Abnormal Synchronization in the Human Epileptic Network”
  • Cristina Reschke, Ph.D., Royal College of Surgeons in Ireland 
    “Restoration of Circadian Function as a Novel Therapy for Epilepsy”
  • Ranmal Samarasinghe, M.D., Ph.D., University of California, Los Angeles
    “Utilizing Patient Derived Brain Organoids to Model the Differential Effects of SCN8A Mutation on Cortical and Hippocampal Neural Networks”

CURE Epilepsy Award Grantees

  • Cristina Gross, Ph.D. and Steven Crone, Ph.D., both of Cincinnati Children’s Hospital 
    “PI3K Signaling as a Novel Disease Mechanism-Based Target to Prevent or Reduce SUDEP”
  • Nuria Lacuey Lecumberri, M.D., Ph.D., The University of Texas Health Science Center at Houston 
    “Defining Breathing Network Neuromodulatory Approaches for Prevention of Sudden Unexpected Death in Epilepsy (SUDEP)”
  • Nigel Pedersen, MD, Emory University 
    “Manipulating Sleep-Wake Networks to Treat Epilepsy”

Read More

CURE Epilepsy Update: November 2020

Greetings CURE Epilepsy community,

November is Epilepsy Awareness Month, an opportunity for the community to come together and raise awareness of how common epilepsy is, unite in fighting the stigma associated with epilepsy, and reinforce the importance of funding research to find a cure. The facts remain, 1 in 26 Americans will be impacted by epilepsy in their lifetime and 65 million people are living with epilepsy globally. Epilepsy is the fourth most common neurological disease in the US but is much less understood and receives significantly less funding than other neurological diseases such as Parkinson’s, autism, and Alzheimer’s.

As COVID-19 continues to limit our ability for in-person activities it becomes even more important to use this month to talk about epilepsy with your friends and loved ones. Throughout November, we’ll be posting videos and articles on Facebook, Twitter, and Instagram for you to share to spread awareness about living with epilepsy. A great place to start is with this video where people with epilepsy, families and community members share their hopes for a future free from epilepsy.

In this CURE Epilepsy update, please also find information on:


Webinar: Disparities in Epilepsy: Overcoming Barriers to Improve Care and Treatment Outcomes
Register

Disparities in epilepsy healthcare have been identified based on factors such as socioeconomic position, race and ethnicity, and address. On Monday November 16 at 12:00 pm CT, join us for a webinar that will define the social determinants of health and health disparities and how these translate to the epilepsy community, as well as identifying strategies that can address these disparities in epilepsy care.

The Leaders in Epilepsy Research Webinar Series is made possible by the generous support of the BAND Foundation.


CURE Epilepsy Discovery: Epilepsy Surgery May Be Beneficial in Reducing SUDEP
Learn More

For people who have epilepsy surgery, there may be a reduction in death, and statistically significant fewer deaths from Sudden Unexpected Death in Epilepsy (SUDEP), suggests research from CURE Epilepsy grantee Dr. Lisa Bateman (left) and her collaborator Dr. Catherine Schevon (right). Based on their analysis of data comparing mortality of those who underwent epilepsy surgery versus those who did not, Drs. Bateman and Schevon found that those who underwent surgery had a reduction not only in the occurrence of death, but significantly fewer deaths from SUDEP.

These findings provide evidence of additional potential benefits from epilepsy surgery in reducing the overall mortality rate, including SUDEP. A larger scale study will be instrumental in understanding how long these benefits last and whether there are any other factors that might predict who is at great risk for SUDEP post-surgery


New from Seizing Life, A CURE Epilepsy Podcast
Watch or listen

Catch up on the latest episodes of our Seizing Life podcast where we share:

  • Advice from our host Kelly Cervantes and her husband Miguel on how to cope with the impacts and challenges of parenting a special needs child.
    Listen or Watch
  • What two moms, Libby Boyce and Jessica Brandes, who each lost a son to SUDEP, wished they had known, and how that is driving them to transform their grief into awareness and action.
    Listen or Watch

Save The Date: Kendra Scott teams up to raise money for CURE Epilepsy
Learn More

Looking for a holiday present that both delights and gives back? Then you won’t want to miss the Kendra Scott + CURE Epilepsy “Give Back” event. Purchase any Kendra Scott item online on November 5-6 using the code GIVEBACK00CA and CURE Epilepsy will receive 20% of the proceeds. This is an exciting opportunity to buy gifts for yourself or loved ones and help fund the incredibly important epilepsy research CURE Epilepsy does.


Upcoming CURE Epilepsy Events:

CURE Epilepsy Logo

We are now CURE Epilepsy

Chicago (October 19, 2020) — Citizens United for Research in Epilepsy (CURE), the private non-profit leader laser-focused on finding a cure for epilepsy, today announced the organization’s rebrand to CURE Epilepsy. The rebrand includes a new name and logo to better align the brand with its stated mission.

CURE Epilepsy’s single-minded dedication to funding and promoting patient-focused research to find a cure for epilepsy sets the organization apart. Founded in 1998 by Susan Axelrod and a small group of fellow parents who were frustrated over the state of epilepsy treatments, they had one goal – to cure epilepsy. “The rebrand to CURE Epilepsy reinforces the core of who we are and have always been. We are tireless in our determination to find the cure for this dreadful disease that devastates so many families, so no one has to suffer another seizure, another hospital-stay, or another death from epilepsy, ever again,” said Susan Axelrod, founder of CURE Epilepsy.

The new CURE Epilepsy logo includes a bold, innovative depiction of a microscope. This icon serves to reinforce CURE Epilepsy’s unwavering commitment to accelerating breakthrough science that will help CURE Epilepsy achieve its mission. “CURE Epilepsy is known in the epilepsy community for being tenacious and determined in driving discoveries that will make the difference,” said Beth Dean, CURE Epilepsy’s CEO. “This iconic microscope represents our cutting-edge, data-driven approach to scientific study that will change our understanding of this disease so that we will one day cure epilepsy.”

ABOUT CURE EPILEPSY
Our mission is to find a cure for epilepsy by promoting and funding patient-focused research. Since its inception over 20 years ago, CURE Epilepsy has raised over $70 million to fund innovative studies to advance its goal of no seizures and no side effects. To date, CURE Epilepsy has awarded more than 240 cutting-edge research projects in 15 countries around the world. As the non-profit leader in epilepsy research, CURE Epilepsy is unwavering in its commitment to fund scientific study and accelerate research to reach our goal – a world without epilepsy. To learn more, please visit our website CUREepilepsy.org or contact us at info@CUREepilepsy.org.

CURE Epilepsy Logo

CURE Epilepsy Virtual Seminars and More

In this month’s update, we’re excited to share that Citizens United for Research in Epilepsy, or CURE, has been renamed to CURE Epilepsy™. Our new name and logo reinforces our continued unrelenting commitment to promoting and funding patient-focused research to find a cure for epilepsy.

Last month, we celebrated the epilepsy community around the world with our first ever virtual event Unite to CURE Epilepsy. Among others, Dr. Sanjay Gupta, the Chief Medical Correspondent at CNN and practicing neurosurgeon, spoke about the importance of continuing to fund epilepsy research, especially during this pandemic. You can hear his message here.

In addition, please read on to find information on:

Virtual Seminar Series from CURE and University of California – Irvine

As part of our commitment to supporting the research community through these challenging times, we have launched a virtual seminar series. Our next seminar is fast approaching on the Biological Mechanisms of SUDEP, in support of SUDEP Action day. Submit any questions you have live or ahead of time here. Mark your calendars!

In addition, Drs. Robert Hunt and Momoko Watanabe of University of California – Irvine are hosting a seminar series featuring early-career investigators. You can find more information about the topics they will cover here.

Learn More

Epilepsy Research Benchmarks: Your Ideas and Feedback Needed – October 30 Deadline

Every seven years stakeholders from across the world of epilepsy review and adjust the Epilepsy Research Benchmarks. These Benchmarks inform the epilepsy communities’ collective research priorities. You have until October 30 to share your voice and help shape the way for the next five-to-seven years of epilepsy advances.

Leave your comments today

Virtual Seminar from the NIH: Program Funding and Grants Administration – October 27 – 30

Looking to familiarize yourself with the NIH’s grants process, programs, and policies? From October 27 – 30, the NIH will be hosting a virtual seminar highlighting key information to help applicants further understand the NIH grant funding process.

This virtual seminar is designed for those who are new to the NIH grants process, with additional sessions for those who are focused on more in-depth policies and procedures.

Register here

Virtual Seminar from the NIH: Metabolism Based Therapies for Epilepsy – November 9

Metabolism-based therapies are an age-old method of treating epilepsy. Despite this, the mechanisms underlying the efficacy of these treatments are not thoroughly understood and conducting rigorous studies is challenging. Learn more about the issues from the research point of view, with the aim of further identifying those that can be addressed in future studies.

Register here

CURE Update: Thank You for Your Enduring Support

Greetings CURE community,

Before I share all the exciting news from CURE, I want to thank everyone in the community for your ongoing support during what has been a challenging year.

On Thursday, September 24, the epilepsy community came together for Unite to CURE Epilepsy: Tenacity. Discovery. Hope. Your participation in this event helped us achieve our goal of raising over $1.7 million. Your commitment to CURE will allow us to drive science forward by funding innovative research, and ultimately achieving our vision of a world without epilepsy.

As we move into October, we turn our attention to SUDEP Action Day on October 23. Don’t miss all the activities that CURE will have the week leading up to October 23 providing insight into SUDEP, research advancements that were funded by CURE, and more. We also have an exciting opportunity to have your voice heard by sharing your ideas on the future of epilepsy research with NINDS.

Learn about these opportunities and more in this month’s update:

Be well,

Beth Lewin Dean

Beth Lewin Dean, CEO

SUDEP Action Day, October 23 - Logo

SUDEP Action Day: #SpeakUp2SaveLives

Learn More

SUDEP Action Day is a global event whose purpose is to educate the epilepsy community and beyond about the risk of Sudden Unexpected Death in Epilepsy (SUDEP). Join CURE throughout the week leading up to Friday, October 23 for important information about SUDEP from researchers, community members, and more. And please encourage your friends and family to #SpeakUp2SaveLives.

A woman breathing into a respiratory device next to her doctor.

Webinar: Breathing and SUDEP: Research & the Influence of Seizures on the Respiratory System

Register

SUDEP is a devastating potential outcome of epilepsy that impacts approximately 1 in 1,000 adults and children living with epilepsy every year. In our webinar on Friday, October 23 at 1:00pm CT, gain a better understanding of how our respiratory system functions, the possible relationship of breathing dysfunction to SUDEP, and potential ways to intervene and prevent SUDEP.

Our Leaders in Epilepsy Research Webinar Series is made possible by the generous support of the BAND Foundation

Epilepsy Research Benchmarks: Your Ideas and Feedback Needed

Give Your Thoughts

Every seven years stakeholders from across the world of epilepsy come together to review and adjust the Epilepsy Research Benchmarks, which inform our collective research priorities. Right now, NINDS is seeking input from clinicians, patients, and families alike on research priorities to address gaps and add additional nuance to these benchmarks.

Help pave the way for the next five to seven years of epilepsy advances.

Survey: Anxiety and Depression in People with Epilepsy

English | Spanish

Physicians at Northwestern University’s Departments of Neurology and Psychiatry are working to understand the best approach to treating depression and anxiety in people with epilepsy. If you have epilepsy or are a caregiver, or a physician for someone with epilepsy, please take 5 minutes to fill out this survey in either English or Spanish.

Catching up with CURE Grantee Dr. Heather Mefford

Learn More

Dr. Heather Mefford, a recent CURE Epilepsy Grantee, treats pediatric patients living with severe epilepsy syndromes and also heads a research lab at University of Washington.

In her CURE funded research, she is applying a new field of research, epigenetics, to epilepsy. Her study is researching genetic-based outcomes to help improve the prognosis for those with developmental and epileptic encephalopathies, a treatment-resistant epilepsy. Learn more to see about this promising approach to research that could lead to better treatments.

kendra scott logo

Save The Date: Kendra Scott Teams Up to Raise Money for CURE

Learn More

Looking for a holiday present that both delights and gives back? Then you won’t want to miss the Kendra Scott + CURE “Give Back” event. Purchase any Kendra Scott item online on November 5-6 using the code GIVEBACK00CA and CURE will receive 20% of the proceeds.

This is an exciting opportunity to buy gifts for yourself or loved ones and help fund the incredibly important epilepsy research CURE does.

Upcoming CURE Events

Seizing Life

New from Seizing Life®, a CURE Podcast

Listen or Watch

Dive into the latest episode of Seizing Life where we explore:

  • Epilepsy Surgery: Hear or watch what you should know about brain surgery for epilepsy from both the patient and physician perspective.

Researchers: CURE Funding Deadline on Friday 9/18 and More

In this month’s update, we want to take a moment to thank you. Your vital work helps give people with epilepsy and their loved ones hope that the answers they need will one day be discovered. In the spirit of hope and scientific advancement, I invite you to join us on September 24 as we bring clinicians, people with epilepsy, and families together for Unite to CURE Epilepsy, a virtual fundraising event.

This inspirational evening will be live streamed on Facebook Live and YouTube Live starting at 7PM CT. Please join us as we highlight research innovation, showcase community stories, and feature wonderful guests, like Emmy-Award Winning CNN Chief Medical Correspondent Dr. Sanjay Gupta!

In the meantime, read on to find information about:

 

CURE Epilepsy Research Continuity Fund Deadline September 18

Learn More

The CURE Epilepsy Research Continuity Fund will provide reimbursements of up to $15,000 for research related expenses resulting from institutional shutdowns during the COVID-19 pandemic and for which institutional support was not available or provided. This award is available to both early-career and established investigators.

The application deadline is Friday, September 18, 2020 at 9:00PM ET. You can find the full Request for Applications on the CURE website here. Current and former CURE grantees will be given special consideration.

Virtual Seminar Series from CURE and Beyond

As part of our commitment to supporting the research community through these challenging times, we are launching a virtual seminar series. Mark your calendars!

In addition, Drs. Robert Hunt and Momoko Watanabe of UCI are hosting a seminar series featuring early-career investigators. You can find more information about the topics they will cover here.

Epilepsy Research Benchmarks: Ideas and Feedback Needed

Give Your Thoughts

Every seven years stakeholders from across the world of epilepsy come together to review and adjust the Epilepsy Research Benchmarks, which inform our collective research priorities. Right now, NINDS is seeking input from clinicians, patients, and families alike on research priorities to address gaps and add additional nuance to these benchmarks. Help pave the way for the next five to seven years of epilepsy science. Leave your comments today.

Deadline to Apply to the NINDS Applicant Assistance Program (AAP) September 24, 2020

Apply

This program helps small businesses apply for Phase I Small Business Innovation Research (SBIR) or Small Business Technology Transfer (STTR) funding. AAP provides participants with services such as application needs assessment, mentoring, application preparation support, and application review. If you are interested, apply by Thursday, September 24, 2020 on the AAP Application Portal.

CURE Update: Let’s Unite to CURE Epilepsy

Greetings CURE community,

Beth Lewin DeanUnite to CURE Epilepsy, our inaugural virtual fundraising event, is only a few short weeks away! I hope you’ll join us on Thursday, September 24 at 7PM CT for this inspirational evening showcasing tenacity, discovery, and hope as we raise critically needed funds to support epilepsy research.

Unite to CURE Epilepsy will be hosted by award-winning journalist and MSNBC’s Morning Joe contributor Mike Barnicle and feature Dr. Sanjay Gupta, Eric Church, and Nils Lofgren. Tune in on Facebook Live and YouTube Live for wonderful performances, research insights, and moving community stories.

Plus leading up to the event, we will highlight  the impacts of epilepsy research with a daily featured topic during CURE Week! Read on for more details.

In addition to these exciting events, in this update please find:

Discover Impacts of Research during CURE Week

Learn More

Discover fascinating research projects and learn how they have the potential to change lives during CURE Week. From September 21-25, visit our Facebook page or YouTube channel daily where we highlight the real-world, positive impacts of epilepsy research. CURE Week will explore a different topic each day; pediatric epilepsy, acquired epilepsy, treatment-resistant epilepsy, SUDEP, and the road to a cure. Join us to see how scientific advancements are making a difference for people around the world.

Webinar and Q&A: Treating Dravet Syndrome with Fenfluramine

Register

Fenfluramine (Fintepla®) is now FDA-approved to treat Dravet syndrome. Tomorrow, September 9 at 12PM CT, leading expert Dr. Joseph Sullivan will dive into the information parents and caregivers should know, including potential side effects. After the presentation, Dr. Sullivan will address questions from the audience.

This webinar was made possible by the generous support of Zogenix.

Female psychologist working with boy who has autism and epilepsy.CURE Discovery: The Connection Between Chronic Stress, Epilepsy, and Autism

Learn More

In a CURE-funded study, Dr. Daniel Barth and his team worked to understand why chronic stress late in pregnancy and the early days of life is a risk factor for both epilepsy and autism. The team tested if stopping brain inflammation caused by stress could prevent or treat both conditions in a rat model of epilepsy and autism. Unexpectedly, they found that the treatment relieved the autistic-like symptoms but had virtually no effect on the development of epilepsy.

CURE Champions Cross the Finish Line Raising $72,000 to Support Research

Become a CURE Champion

This summer CURE Champions raised an amazing $72,000 with socially-distant fitness events! The Ella Mile and ReSearching for a CURE brought people together locally and around the country to support epilepsy research and honor the 1 in 26 Americans who will be diagnosed with epilepsy in their lifetimes.

For the Ella Mile, CURE Champion Shalee Cunneen and CURE Board Member Blake Cunneen decked out their neighborhood with signs sponsored by friends and family spaced 26 feet apart. During ReSearching for a CURE, people from around the country aimed to walk or run 26 miles in six weeks while fundraising along the way.

New from Seizing Life®, a CURE Podcast

Listen or Watch

Catch up on the latest episodes of the Seizing Life podcast where we discuss:

  • Types of seizures and epilepsy, explained in simple terms. Listen or Watch
  • How one organization created a unique housing model for individuals with special needs that aims to foster belonging and empower independence. Listen or Watch