CURE Update: Webinars, Scholarships, and Epilepsy Community Events

Our Leaders in Epilepsy Research Webinar Series is back! You can discover research on family planning and epilepsy, in addition to learning strategies for minimizing risk to women and infants during pregnancy in our latest webinar: Epilepsy, Pregnancy, and Contraception.

Interested in other topics, such as promising anti-epilepsy drugs and epilepsy’s impact on memory and cognition? You can find a playlist of all past CURE webinars on YouTube.

Below, read about our upcoming webinar on Transitioning from Pediatric to Adult Epilepsy Care. Also, in this update:

Webinar: Transitioning from Pediatric to Adult Epilepsy Care

It is critical for patients, parents, and neurologists to have a plan while transitioning from pediatric to adult epilepsy care. During a free webinar and live Q&A on Thursday, April 25 at 2:00PM CT, learn about research-based guidelines for developing a transition care plan, as well as what factors to consider during the transition.

Bring your questions for the live Q&A! You can ask the presenter, Dr. Joseph Sirven, questions such as:

  • Is the transition of care plan dependent upon a patient’s epilepsy type?
  • Do treatment options change when a patient begins seeing an adult neurologist?
  • What research has been done into the effects of transition care on a patient’s lifestyle?

This webinar is supported by the generosity of the BAND Foundation.

Learn More or Register Now

CURE Scholarship Application Deadline: April 15

The application deadline for the 2019 Education Enrichment Fund (EEF) scholarships is April 15. These scholarships cover up to $5,000 of each recipient’s tuition, books, and any other course-required materials.

Made possible by generous support from Lundbeck, this one-time scholarship is awarded to those living with epilepsy or to family members and caregivers of those impacted by epilepsy. The scholarship supports coursework aiming to advance personal knowledge in epilepsy research, health education, awareness, or advocacy.

Learn More or Apply Now

Questions? Please reach out to us at scholarship@cureepilepsy.org.

New from Seizing Life, a CURE Podcast

Catch up on the latest episodes of the CURE podcast Seizing Life! Last month, we explored:

  • The memoir A Mind Unraveled with author Kurt Eichenwald: Watch or Listen
  • How epilepsy research has changed over 20 years with CURE Founder Susan Axelrod: Watch or Listen
  • The ways Individualized Education Programs (IEPs) can help students with epilepsy with moms, Stacy Pigott and Shalee Cunneen: Watch or Listen Now
  • Genetics and how epilepsy genetic testing can help patients with Dr. John Millichap: Watch or Listen

You can find Seizing Life on your favorite podcasting app or on our website, www.seizinglife.org.

Join Us at Day of Science Events in Houston and Boston

Day of Science in PhiladelphiaAt the CURE Day of Science events in Houston and Boston, leading experts answer your questions about epilepsy and share the latest news in epilepsy research.

This free event is happening in Houston on Saturday, March 30 and in Boston on Saturday, May 11.

During Day of Science, a panel of epilepsy experts address audience questions and participate in small-group discussions over a provided lunch with the attendees.

Join us for answers to questions, such as:

  • What targeted treatments have been developed due to the discovery of new epilepsy genes?
  • What are the risks associated with epilepsy surgery?
  • What epilepsy drugs are currently in development and what types of epilepsy can they be prescribed to treat?

Houston: Learn More
Boston: Learn More

Stay tuned: More Day of Science locations around the US will be announced soon!

These events are made possible thanks to the generous support of the BAND Foundation and Sunovion.

CURE Champion Spotlight: Lauren Nathan Raises Funds for a “Real-Life Princess” with Epilepsy

CURE Champion Lauren Nathan raised $2,600 after being inspired by little Adelaide Cervantes, who was diagnosed with Infantile Spasms at just 7 months of age. Lauren and her husband, Jeff, are good friends of Adelaide’s parents, Kelly and Miguel Cervantes. Seeing her friends battle epilepsy moved her to act.

To honor Adelaide, who Lauren calls a real-life princess, she signed up for the Disney Fairytale Challenge, determined to raise vital funds to support CURE. The 2-day challenge involves completing the Enchanted 10K followed by the Princess Half-Marathon, totaling 19.3 miles.

When training got tough, Lauren remembered the daily challenges Adelaide and the Cervantes family face. “To be inspired is really amazing. It can push you further and harder than you will ever even know,” said Lauren.

On February 22 and 23, she conquered both races in the intense Florida heat, raising epilepsy awareness and funds in honor of little princess Adelaide.

Feeling inspired to fundraise in honor of someone in your life? Learn how to become a CURE Champion.

Next CURE Events

March 8-14: Blo Wicker Park Grand Opening – Chicago, IL
March 30: Day of Science in Houston – Houston, TX
March 31: Million Dollar Quartet – Munster, IN
April 14: 5k Strides for Epilepsy Run/Walk – Salisbury, MD
April 25: Webinar: Transitioning from Pediatric to Adult Care, Online
May 11: Day of Science in Boston – Boston, MA

View All Upcoming Events

Married with Children...with Epilepsy

CURE Update: International Epilepsy Day, Seizing Life Podcast, and Day of Science in Houston

Join a global movement to promote epilepsy awareness for International Epilepsy Day on February 11! More than 120 countries participate, working to highlight the problems faced by those with epilepsy, their families, and caregivers. Read on to learn how you can support epilepsy research while spreading the word about how prolific epilepsy is.

Also in this update, learn about the Seizing Life podcast episodes which recently launched and get the details about the upcoming Day of Science event in Houston.

Best regards,

Laura S. Lubbers, PhD

Listen to the Seizing Life Podcast Now!

Seizing Life is available now! Watch or listen to full episodes on podcast platforms, including Apple Podcasts and Google Podcasts, or on seizinglife.org.

Check out out first three episodes:

Plus this month, look forward to an interview with CURE founder Susan Axelrod.

Never miss an episode! Subscribe to receive updates every time an episode airs.

Watch or Listen Now

Get Involved Online and In-Person for International Epilepsy Day

Join the CURE community in raising funds for research and spreading epilepsy awareness on International Epilepsy Day.

Set Up a Facebook Fundraiser: Ask your Facebook friends help you fund research to find a cure for epilepsy. Share why raising funds for epilepsy research is so critical and encourage people to donate! Click here for a detailed guide or set up your fundraiser now.

Spread Awareness on Social Media: Show your friends, family, and followers how widespread epilepsy is, as well as how vital better treatment options are to so many people around the world. Download and share stunning epilepsy statistics to your social media pages.

Visit Select Chicago Häagen-Dazs Shops: Attend Ice Cream for a CURE at Häagen-Dazs shops in Harlem Irving Plaza or Lincolnwood Town Center. When you donate to CURE, you’ll receive 10% off one item. Also, a portion of the day’s sales from each location will benefit CURE.

Houston: CURE Day of Science is Coming Your Way!

At the CURE Day of Science event in Houston, leading experts answer your questions about epilepsy. This free event on Saturday, March 30 gives those impacted by epilepsy and their families the chance to learn from researchers and physicians in an encouraging environment.

During Day of Science, a panel of epilepsy experts address audience questions and participate in small-group discussions over lunch with the attendees.

Join us for answers to questions, such as:

  • What targeted treatments have been developed due to the discovery of new epilepsy genes?
  • What factors must be considered when moving my child from pediatric to adult care?
  • What are the risks associated with epilepsy surgery?
  • What epilepsy drugs are currently in development and what types of epilepsy can they be prescribed to treat?

This event is made possible thanks to the generous support of the BAND Foundation and Sunovion.

Learn More or Register Now

Stay tuned: more Day of Science locations around the US will be announced soon!

Upcoming CURE Events

February 10: Ice Cream for a CURE – Chicago, IL
February 16: 24-Hour Livestream for a CURE – Online
February 16: Race for Epilepsy – Washington, NC
February 20: Quiz for a Cause Trivia Night – Chicago, IL
March 30: Day of Science – Houston, TX

Citizens United for Research in Epilepsy (CURE) Launches Podcast, Seizing Life

Finding a carefree moment as a parent to a six-year-old and a three-year-old child can feel like a challenge. When your child is diagnosed with epilepsy, those crucial, carefree moments in a marriage come with additional stress and worry.

On the new CURE podcast, Seizing Life, this is one of the topics host Kelly Cervantes discusses with her husband, HAMILTON Chicago star Miguel Cervantes; the rare carefree moments, obstacles and triumphs in their marriage while supporting their daughter who has epilepsy.

Kelly and Miguel Cervantes’ daughter Adelaide had her first seizure when she was just 7-months old. Now fierce advocates for finding a cure, the Cervantes have learned how to adjust to life with Adelaide’s condition while discovering their partner’s strengths and weaknesses along the way.

“Parents are in such a different mental place when it’s not about just regular life things and it becomes about the health and livelihood of your child,” says Miguel Cervantes in an inaugural episode. “Even in our carefree moments, in the back of our minds, we have this baby who is clearly sick and that doesn’t go away.”

Kelly Cervantes, CURE board member will host the weekly podcast, delivering interviews with her husband, best-selling author Kurt Eichenwald, patients, parents, medical professionals and others in the epilepsy community bringing the critical need for epilepsy research to the forefront while teaching empathy and inspiring hope.

“We believe it is vital to share the impact epilepsy has on families,” says Kelly Cervantes, “and to share resources and insights from clinicians, researchers and advocates as we seek a cure for epilepsy.”
You can find the first three episodes of the Seizing Life podcast at www.SeizingLife.org:

For additional episodes of Seizing Life, subscribe here. You can watch the weekly episodes on video at the Seizing Life YouTube channel.

You can also find Seizing Life on Facebook, Twitter, and Instagram.

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ABOUT CURE

The mission of Citizens United for Research in Epilepsy (CURE) is to find a cure for epilepsy, by
promoting and funding patient-focused research. Since its inception in 1998, CURE has raised
over $60 million to advance its goal of no seizures and no side effects. To date, CURE has
awarded more than 220 cutting-edge research projects in 15 countries around the world. CURE
is the leading nongovernmental agency fully committed to funding research in epilepsy.
For information about CURE, please visit our website at www.CUREepilepsy.org or contact us
at info@CUREepilepsy.org.

ABOUT SEIZING LIFE

Seizing Life, a weekly CURE podcast hosted by CURE Board Member Kelly Cervantes, brings you
inspirational and helpful stories from those impacted by epilepsy. Kelly interviews patients,
advocates, caregivers, and medical professionals to bring the critical need for epilepsy research
to the forefront, while teaching empathy and inspiring hope.

For more information about Seizing Life, please visit our website at www.SeizingLife.org.

CURE Discovery: Predicting Acquired Epilepsy Following a Brain Infection

A potential method of predicting who will get epilepsy following a brain infection, such as that brought on by malaria, has been discovered. This breakthrough is the result of work by two CURE grantees, Dr. Bruce Gluckman and Dr. Steven Schiff of Pennsylvania State University.

Individuals who contract cerebral malaria (malaria accompanied by a coma, typically spread by mosquitos) are at a substantially increased risk of developing epilepsy.1 Malaria is especially widespread in non-industrialized areas of the world and often affects children.2 Because malaria is so widespread, it may be the most significant cause of post-infection epilepsy in the world today. Currently, there are no methods to predict who will develop epilepsy, or any means of preventing epilepsy after such an infection.

This makes Dr. Gluckman and Dr. Schiff’s discovery so critical. Together with their team members Fatemeh Bahari and Dr. Paddy Sstentongo, they found a combination of brain and heart activity in mice that could accurately predict which animals would develop seizures and epilepsy after infection with malaria.3

Using their CURE grant, Drs. Gluckman and Schiff studied the connection between cerebral malaria and epilepsy by first developing a mouse “model” replicating malaria-induced epilepsy. In addition, they investigated possible ways to determine which mice would go on to develop epilepsy after infection.

Using the mice which developed epilepsy after infection with malaria, the research team measured two important variables often associated with epilepsy: the activity of the brain and heart. They found abnormal brain activity immediately followed by abnormal heart activity – but only in the animals which went on to develop epilepsy.

This discovery represents a possible biomarker for predicting epilepsy following infection with malaria. In other words, these may be measurable indicators to determine the infected individuals who will develop epilepsy. Furthermore, the abnormal brain and heart activity was detectable as early as 14 weeks before the first seizure, opening a potential window during which therapeutic interventions might be used to prevent epilepsy.

Drs. Gluckman and Schiff plan to continue this work, using these findings to develop treatment methods for people who contract cerebral malaria to prevent them from developing epilepsy. They are hopeful their discovery will lead to a means to eliminate not only post-malarial epilepsy, but also epilepsy caused by other types of brain injuries.

1 Ngoungou and Preux. Cerebral malaria and epilepsy. Epilepsia 2008; 49(s6):19-24.
2 World Health Organization. World malaria report 2017. http://www.who.int/malaria/publications/world-malaria-report-2017/report/en/.
3 Bahari et al. A brain-heart biomarker for epileptogenesis. J Neurosci 2018; pii: 1130-18.

CURE Update: New Epilepsy Podcast and Ways to Champion Research

Dr. Laura LubbersThe new year always sparks renewed motivation in the fight against epilepsy, but 2019 also brings a new way to increase awareness and understanding: Seizing Life, a CURE podcast!

Released weekly, Seizing Life is hosted by CURE Board Member Kelly Cervantes. Episodes feature interviews with members of the epilepsy community on topics including creating individualized education plans, how raising special needs children can impact a marriage, and epilepsy genetics.

Seizing Life launches later this month. You can watch the trailer and read more about this exciting new podcast below.

Also in this update…

  • Raise Epilepsy Awareness and Funds for Research as a CURE Champion!
  • CURE Scholar Derek Vielhauer on How His Scholarship Is Helping Him Become an Agent of Change

Best regards,

Laura S. Lubbers, PhD

Seizing Life, a CURE Podcast, Launches This Month!
Seizing Life, a weekly CURE podcast hosted by CURE Board Member Kelly Cervantes, brings you inspirational and helpful stories from those impacted by epilepsy. Kelly interviews patients, advocates, caregivers, and medical professionals to bring the critical need for epilepsy research to the forefront, while teaching empathy and inspiring hope.

Check out a sneak peek of Seizing Life:

The podcast launches later this month and will be available on iTunes, Google Play, and other major podcast platforms. You can follow Seizing Life on Facebook, Twitter, and Instagram.

Learn More and Subscribe for Updates

Raise Epilepsy Awareness and Funds for Research as a CURE Champion!
Use your unique talents to host a CURE Champion event or campaign! As a CURE Champion, you will bring fun, enthusiasm, and awareness to your community, while raising vital funds for groundbreaking research.

Getting started is easy…

  • Decide what your event or campaign will be. You can host a dance class, art exhibition, 5K run, bake sale, or online birthday fundraiser. Be creative!
  • Set up a fundraising page. Your page can be on our platform, Facebook, or your own website.
  • Tell CURE about your event. We’re here to help by promoting your event online and by providing you with promotional materials. Please reach out to us at events@CUREepilepsy.org or 312.255.1801.
  • Spread the word! Use social media, email, and word-of-mouth to let your community know about your event. Share why raising funds for epilepsy research is so critical and encourage people to join you as an attendee, donor, sponsor, or volunteer!

Become a CURE Champion

Have an idea, but aren’t sure how to get started? Our Development Team would love to hear it and help! Reach out to events@CUREepilepsy.org or 312.255.1801.

CURE Scholar Derek Vielhauer on How His Scholarship Is Helping Him Become an Agent of Change
Each year, CURE is pleased to offer Education Enrichment Fund (EEF) scholarships, made possible by the generous support of Lundbeck, to those impacted by epilepsy, their families, and their caregivers.

In 2018, we awarded one of these $5,000 scholarships to Arizona State University (ASU) student Derek Vielhauer, who was diagnosed with epilepsy as an infant. He says epilepsy defined the first seventeen years of his life, but also gave him a passion for advocacy and research.

“With this generous scholarship, I have been able to continue working towards my dream of graduating with a Bachelor of Science and Engineering in biomedical engineering. In addition to researching methods to address neural deficits at ASU, I am collaborating with a neurosurgeon at Mayo Clinic and with an ASU neural engineer to develop innovative medical technology for patients suffering from neuro-diseases.

“I could not do this without the financial support the CURE EEF scholarship has provided me. This scholarship allows me to continue pushing forward through the rigorous engineering program without the financial worries which would exist otherwise.”
– Derek Vielhauer

You could become one of our 2019 EEF scholars. We’re accepting applications until April 15, 2019. For details regarding eligibility requirements, please click here or contact CURE at scholarship@CUREepilepsy.org.

Now Accepting Applications for the CURE Education Enrichment Fund Scholarship

You could receive up to $5,000 toward your education through the CURE Education Enrichment Fund Scholarship, funded by the generous support of Lundbeck. We’re accepting applications now through April 15, 2019.

These one-time scholarships are awarded to those living with epilepsy or to family members and caregivers of those impacted by epilepsy. The scholarships support coursework aiming to advance personal knowledge in epilepsy research, health education, awareness, and/or advocacy.

Learn More or Apply Online

Questions? Please reach out to us at scholarship@cureepilepsy.org.

CURE Update: Scholarships, Infantile Spasms Resources, and Giving Opportunities

As 2018 draws to a close, CURE is looking ahead toward the future of epilepsy research.

This week, we were proud to announce our 2018 grant recipients at the American Epilepsy Society Meeting. Their innovative projects range from using cutting-edge technology to control the precise moment inhibitory neurons fire to identifying the origin of seizures by analyzing DNA fragments in the blood. These novel studies aim to enhance our understanding of epilepsy and develop treatments with the goal of “no seizures, no side effects.”

Ensure our mission continues: join a generous donor who will match all new and increased donations made before December 31 up to $250,000, by making your year-end gift today. Read more about the matched donation below or make a gift here.

Also in this update…

Best regards,

Laura S. Lubbers, PhD

Starting December 15 – Apply for a $5,000 Scholarship!

Mark your calendars! We’re accepting applications for the 2019 Education Enrichment Fund (EEF) scholarship starting December 15. The application deadline is April 15, 2019. The EEF scholarship covers up to $5,000 of the recipient’s tuition, books, and any other course-required materials.

Made possible by generous support from Lundbeck for the fourth year, this one-time scholarship is awarded to those living with epilepsy or to family members and caregivers of those impacted by epilepsy. The scholarship supports coursework aiming to advance personal knowledge in epilepsy research, health education, awareness, or advocacy.

For details regarding eligibility and requirements, click here.

Questions? Please reach out to us at scholarship@cureepilepsy.org.

One Donation, Double Impact: Your December Gift will be Matched!

Matched DonationThis giving season, a single gift can make an even bigger difference in the fight against epilepsy. A generous donor will match all new and increased donations made in December up to $250,000.

CURE is working to find a cure for epilepsy by remaining laser-focused on research. Help save and transform millions of lives through research with your doubled year-end donation.

Your gift to CURE is 100% tax deductible.

Donate Now

It’s the Final Day of Infantile Spasms Awareness Week: Share These Resources

Infantile spasms appear subtle but can have devastating consequences for children. Primary care doctors and parents alike are often not familiar with the signs and symptoms of infantile spasms, so many children don’t receive treatment during the critical window following the emergence of symptoms.

Learn the signs of infantile spasms and what to do if you detect them from this video by the Brain Recovery Project, created on behalf of the Infantile Spasms Action Network:

Sadly, even with timely medical intervention, many infants do not respond to available treatments for infantile spasms, giving these children a dire prognosis.

More research on infantile spasms and the development of new treatments is critical. We encourage you to share this video with friends and family to help them better understand this need:

To learn more about infantile spasms, head to our FAQ.

How Your Holiday Shopping Can Support Epilepsy Research

Whether you’re wrapping up your holiday shopping or just getting started, your online purchases can help fund epilepsy research.

When you click here, Amazon will donate 0.5% of your eligible purchases to CURE at no cost to you. Bookmark and shop at smile.amazon.com this holiday season to make your gifts extra special!

In addition to AmazonSmile, you can support epilepsy research and find the perfect gifts for friends and family through other organizations, such as Giftfluence.

Looking to give a book-lover the gift of awareness? Consider giving A Mind Unraveled and VOICES from the HEART!

A Mind Unraveled, a critically-acclaimed memoir by New York Times Best Selling author Kurt Eichenwald, is an inspiring book that tackles epilepsy stigma head-on. 50% of royalties from A Mind Unraveled benefit CURE. In Louis Stanislaw’s VOICES from the HEART, you’ll find 30 essays from people impacted by epilepsy exploring the challenges, triumphs, and truths about living with this condition. 50% of sales from VOICES from the HEART benefit CURE.

Shop to Help Fund Research

New CURE-Funded Research Projects

Announcing the next round of promising epilepsy research projects funded by the CURE Taking Flight and Innovator Awards! Read on to learn about our latest grantees and their studies.

CURE grants support both early-career and seasoned investigators whose projects are at the forefront of epilepsy research. The grantees’ promising projects aim to find the cures for epilepsy and address the ultimate goal of “no seizures, no side-effects.”

Taking Flight Grantees – $100,000 for 1 year

Jennifer Gelinas, MD, PhD
Columbia University Medical Center 

Treating focal epilepsy is difficult due to the condition’s unpredictability. To identify brain regions at risk of becoming epileptic and provide targets for novel therapeutics, Dr. Gelinas and her team will leverage new technology to acquire high-resolution “maps” of neural networks in animals with progressive focal epilepsy.

Learn More

Juliet Knowles, MD, PhD
Stanford University
Supported by the generosity of the Ravichandran
Foundation

Dr. Knowles and her team will explore the potential role of white matter in the brain (myelin) in seizure development. The project will determine if seizures cause myelin abnormalities, as well as if abnormal myelin contributes to the development of epilepsy and associated cognitive impairment. This work may help pinpoint new therapeutic targets for absence and other forms of epilepsy.

Learn More

Tristan Shuman, PhD
Icahn School of Medicine at Mount Sinai 

Dr. Shuman’s previous work shows that cells which inhibit neuronal activity turn on at the wrong times in mice with epilepsy. Using state-of-the-art technology, Dr. Shuman and his team will make inhibitory cells fire at the correct times to see if this can reduce seizures and improve memory. This study could lead to new treatment options based on correcting the firing patterns of inhibitory cells.

Learn More

Lakshmi Subramanian, PhD
The Regents of the University of California at San Francisco

Focal Cortical Dysplasia (FCD) is a brain malformation which stems from genetic mutations and leads to epilepsy in children. To understand how FCD develops, Dr. Subramanian and her team plan to explore how genetic mutations lead to the malformations associated with seizures. The study aims to help discover new drug targets and therapeutic interventions.

Learn More

Innovator Award Grantee – $50,000 for 1 year

Jozef Gecz, PhD
University of Adelaide, Australia 

Seizures may cause neurons and supporting cells to die at a much higher rate in a person with epilepsy than in a person without epilepsy. Evidence suggests that dying brain cells cause small amounts of DNA fragments called cfDNA to make their way into blood circulation. Dr. Gecz and his team will investigate genetic causes of epilepsy by isolating cfDNA from patients’ blood in the hours after a seizure.

Learn More

 

#MugsForAdelaide

CURE Update: Stand Up for Epilepsy Research and Awareness

Greetings from the Epilepsy Awareness Expo at Disneyland Resort!

With so many events around the country happening now for Epilepsy Awareness Month, I want to take a moment to express my gratitude to you, the incredible epilepsy community. You helped raise a record-breaking $2.3 million for CURE’s 20th Anniversary Benefit! With your support, we will continue driving epilepsy research forward.

Though the Benefit is over, Epilepsy Awareness Month events and campaigns, such as CURE’s webinar on epilepsy and stigma, #GivingTuesday, and the #MugsForAdelaide giveaway, are bringing epilepsy and the need for a cure into the spotlight. Read on to learn more about these events.

Also in this update…

Best regards,

Dr. Laura Lubbers, PhD

Laura S. Lubbers, PhD

Free Webinar on Separating Stigma from Truth: Epilepsy Research and Resources

Dive into the science of epilepsy stigma and gain tools to combat harmful stereotypes during CURE’s free webinar, Separating Stigma from Truth: Epilepsy Research and Resources. This free webinar and live Q&A is happening Wednesday, November 28 at 11:00am CT.

Learn what research reveals about public attitudes and beliefs towards epilepsy, as well as how likely people with epilepsy are to encounter stigma. Ann Jacoby, PhD, reviews how negative stereotypes affect quality of life and discusses what communities can do to reduce epilepsy stigma.

Bring your questions for the live Q&A! You can ask Dr. Jacoby questions, such as:

  • What should I do if I believe I’m being discriminated against due to my epilepsy?
  • What resources are available to help me or my child talk more openly about epilepsy?
  • What difference is there in how epilepsy affects people from differing cultures or social statuses?

Learn More or Register Now

On #GivingTuesday, Show the World How Much Epilepsy Research Funding Means to You

#GivingTuesdayGet ready to join the #GivingTuesday movement on Tuesday, November 27! Show the world why epilepsy research matters to you by giving to CURE, posting to social media with the hashtag “#GivingTuesday”, and asking your friends and family to do the same.

Plus, double your #GivingTuesday impact by starting a Facebook fundraiser! Facebook and PayPal are matching up to $7 million dollars in donations made on Facebook for #GivingTuesday. Start your Facebook fundraiser on November 27 and get your Facebook friends involved.

Learn how to start your Facebook fundraiser

How Your Holiday Shopping Can Support Epilepsy Research

Did you know your Black Friday and Cyber Monday shopping could help fund epilepsy research? When you click here, Amazon will donate 0.5% of your eligible purchases to CURE at no cost to you. Be sure to click the link, then shop on smile.amazon.com this holiday season!

In addition to AmazonSmile, you can support epilepsy research and find the perfect gifts for friends and family through other organizations, such as Giftfluence.

Discover how to shop and give

Give the Gift of Awareness: A Mind Unraveled, a Memoir by Kurt Eichenwald, is Available Now

A Mind Unraveled ReviewA Mind Unraveled, the latest book from New York Times bestselling author Kurt Eichenwald, reveals everything about his experiences living with epilepsy. The goal of this book is not only to show those with epilepsy they can accomplish what they want in life, but also to educate the general public about epilepsy, tackling the stigma head-on.

A Mind Unraveled discusses what onlookers should do when someone has a seizure, the risk of SUDEP, terrible potential side effects of antiepileptic drugs, and what forms epilepsy stigma and discrimination can take.

50% of the royalties from A Mind Unraveled support CURE’s mission to find a cure for epilepsy. This holiday season, purchase a copy for your friends and family to spread epilepsy awareness and fund vital research.

Learn More or Purchase A Copy

Chicago: Enter to Win a HAMILTON VIP Experience and Spread Epilepsy Awareness

#MugsForAdelaideEnter the #MugsForAdelaide giveaway for the chance to win two tickets to the Chicago production of HAMILTON, as well as a backstage tour with Miguel Cervantes!

Chicago businesses are serving Adelaide’s Blend coffee during Epilepsy Awareness Month to spread awareness around the critical need for a cure. This coffee is named in honor of Adelaide Cervantes, daughter of HAMILTON Chicago star Miguel Cervantes and CURE board member Kelly Cervantes. Adelaide has infantile spasms, a rare and severe form of epilepsy.

Fairgrounds Coffee, creator of Adelaide’s Blend, donates 20% of the proceeds from the sales of this coffee to CURE.

Learn More

Don’t live in Chicago, but want your own bag of Adelaide’s Blend? Order your coffee online.

Today: Join Us for Epilepsy Awareness Day at Disneyland Resort

Let’s paint Disneyland purple at Epilepsy Awareness Day at Disneyland Resort! This family-friendly event happening today, November 7 unites epilepsy patients, families, doctors, researchers, and organizations.

Head to Disneyland Park to enjoy the rides, build lasting friendships, and spread epilepsy awareness.

Next CURE Events

Epilepsy Awareness Day at Disneyland Resort – November 7

1:26 The Art of Epilepsy Art Show and Wine Tasting in San Francisco – November 10

Speaking of Seizures Poetry Slam – November 10

Understanding and Coping with the Risks of SUDEP – November 15

Walk With Me Art Exhibition – November 24

Webinar on Separating Stigma from Truth: Epilepsy Research and Resources – November 28

Virginia Tech Team

Virginia Tech Leads $2.6 Million Study of Brain Trauma, Epilepsy Connection

Featuring the work of CURE Grantee, Dr. Harald Sontheimer

Virginia Tech is launching a $2.6 million study to determine if traumatic brain injuries can cause changes within the brain that lead to epilepsy.

Funded by the nonprofit Citizens United for Research in Epilepsy (CURE) and the U.S. Department of Defense, the three-year study seeks to identify the root causes behind why a person may develop epilepsy after he or she has suffered brain trauma, including sports-related concussion and focal contusion injuries.

Five Virginia Tech groups are heading the study: The School of Neuroscience, part of the College of Science; the Virginia Tech Carilion Research Institute (VTCRI); the Virginia-Maryland College of Veterinary Medicine; and the College of Engineering. All of the research leaders have wide experience in brain injury and neurological disorders.