CURE Update: Kicking off 2020

As we enter 2020, the team at CURE wants to thank you. We want to thank you for your support through donating, fundraising, and participating in community events and programming. You truly give us hope – hope that together, we will build a world without epilepsy.

Because of your support in 2019, we will continue to push science forward by funding cutting-edge studies. In fact, you can see the latest innovative projects we’re funding in the areas of Sudden Unexpected Death in Epilepsy (SUDEP), genetics, status epilepticus, and beyond here.

This year promises to be filled with novel research and exciting programming from CURE. Below you can find information about some of our 2020 programming, and of course, the latest from the Seizing Life podcast.

Education Enrichment Fund ScholarshipApply for a CURE Scholarship Before April 15

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We want to empower you become an agent of change for the epilepsy community by helping to fund your education! Applications are open for Education Enrichment Fund (EEF) scholarships of up to $5,000.

EEF scholarships support coursework in scholars’ chosen career paths, so they can use their knowledge and skills to become agents of change in the epilepsy community. This one-time scholarship is awarded to those living with epilepsy or to family members and caregivers of those impacted by epilepsy.

EEF scholarships are made possible by the generous support of Greenwich Biosciences.

Ella's Race#RunLikeAChampion in 2020

Contact Us

Race toward a world without epilepsy in 2020 by joining Team CURE! Whether you participate in a race that we’re an official charity partner with or represent CURE in a local run, you can move science closer to a world without epilepsy.

Join our nationwide team of CURE Champions who are dedicated to raising awareness and vital funds for epilepsy! Contact our Outreach Team today.

Seizing LifeNew from Seizing Life®, a CURE Podcast

Watch or Listen

Our recent episode of Seizing Life is filled with leading epilepsy experts discussing medical advances and the future of research at Epilepsy Awareness Day at Disneyland. Tune in to learn about:

If you’re new to Seizing Life or catching up on the podcast, be sure to check out our Best of 2019 episode!

CURE 2019 Grantees

Announcing the CURE 2019 Grantees!

We are delighted to announce the recipients of our 2019 CURE grants! These grants are awarded for novel research projects that address finding cures for epilepsy and address the goal of “no seizures, no side-effects.” Read on to learn about the innovative projects our Taking Flight Award, CURE Epilepsy Award, and Post-Traumatic Epilepsy (PTE) Initiative grantees will pursue.

Taking Flight Award Grantee – $100,000 for one year

This award seeks to promote the careers of young epilepsy investigators, allowing them to develop a research focus independent of their mentors.

Bin Gu, PhDBin Gu, PhD
University of North Carolina at Chapel Hill

Dr. Gu and his team will focus on identifying genes that increase how susceptible patients are to Sudden Unexpected Death in Epilepsy (SUDEP) using a unique resource, genetically diverse mice. The team also plans to use genetic and electrophysiological techniques to understanding the physiological changes that can trigger SUDEP.

Learn More

CURE Epilepsy Award Grantees – $250,000 for two years

This award reflects CURE’s continued focus on scientific advances that have potential to truly transform the lives of those affected by epilepsy.

Heather Mefford, MD, PhDHeather Mefford, MD, PhD
University of Washington

Dr. Mefford and her team will explore if a process called “abnormal methylation” is a cause of severe pediatric epilepsy syndromes known as developmental and epileptic encephalopathies (DEE). Abnormal methylation is a type of chemical DNA modification and occurs in many patients with DEE. While this process is a known cause for some neurological disorders, it hasn’t been studied much as a cause of epilepsy. In the future, the team will perform additional studies to understand why certain methylation changes can lead to epilepsy, developing clinical tests to diagnose affected individuals.

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Nicholas Varvel, PhD

Nicholas Varvel, PhD
Emory University

Dr. Varvel and his team will focus on status epilepticus (SE) – a neurological emergency in which a person has multiple seizures in a row without returning to consciousness. Previously, the team identified that a blood-borne immune cell called a monocyte invades the brain after seizures and contributes to damage and inflammation. Dr. Varvel and his team now plan to use a drug to block monocyte entry in mouse brains after SE. Ultimately, they want to determine if this approach is feasible in humans to relieve detrimental effects of seizures.

Learn More

Nicholas Varvel, PhD

Christopher Reid, PhD
Florey Institute, Australia

Dr. Reid and his team will work to identify key SUDEP risk factors by develop new rodent models which replicate having both epilepsy and a genetic heart abnormality. This research is based on evidence suggesting that a combination of epilepsy and changes in genes associated with heart conditions may increase SUDEP risk. The team will compare their models to understand if the rate of SUDEP is higher relative to existing models.

Learn More

Post-Traumatic Epilepsy Initiative Grantee

This Initiative is a team science, multi-disciplinary program designed to expand knowledge around the types of injuries which predispose the brain to epilepsy and develop new models to study epilepsy resulting from injury.

Bin Gu, PhDPavel Klein, MD
Mid-Atlantic Epilepsy and Sleep Center

Dr. Klein and his team plan to address the current inability to predict who will go on to develop PTE following a traumatic brain injury by examining a group of high-risk patients with a greater chance of developing PTE. The team will search for biomarkers in patients’ EEG signatures, MRIs, or blood which can be used to predict who is at an increased risk of developing PTE. By finding ways to identify the individuals most at risk, the team hopes to pave the way for the development of therapies to prevent PTE. With the addition of Dr. Klein and his team, CURE’s Post-Traumatic Epilepsy Initiative now encompasses 6 investigative teams and over 40 researchers to tackle post-traumatic epilepsy.

Learn More

CURE Update: December 2019

Season’s Greetings! The holidays are a time for review and reflection. For us at CURE, this past year has been full of incredible accomplishments. We have once again been on the forefront of groundbreaking epilepsy research in areas such as Sudden Unexpected Death in Epilepsy (SUDEP)Post-Traumatic Epilepsy (PTE), and genetics, we have provided robust educational programming, and we have delivered dozens of engaging events which empower patients and families to advocate for themselves to doctors and within their communities. But none of this would have been possible without you.

The holidays are also a time for giving. Your continued dedication and support are essential for CURE to continue funding vital epilepsy research. We ask you to give today, so together we can achieve a world without seizures. And, thanks to a generous donor, all new and increased gifts made before January 1, 2020 will be matched, doubling your impact.

As you read through the updates below, please remember that your gift makes this all possible.

Infantile Spasms Awareness WeekIt’s Infantile Spasms Awareness Week: Raise Awareness with These Resources

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Infantile spasms (IS) is a medical emergency. Quick diagnosis and treatment of this severe form of pediatric epilepsy is vital to reduce the neurological impact these seizures can have on babies. However, getting a child appropriate care during the critical time when the seizures first begin is a challenge. The movements can be subtle, and doctors and parents alike often don’t know what IS looks like.

During Infantile Spasms Awareness Week, we encourage you to learn more about how to identify IS and share these video resources with your community.

Education Enrichment Fund ScholarshipApply for a CURE Scholarship Starting December 15

Learn More

CURE is helping scholars become agents of change for the epilepsy community with Education Enrichment Fund (EEF) scholarships of up to $5,000! We will begin accepting applications on Sunday, December 15.

EEF scholarships support coursework in scholars’ chosen fields, so they can use their knowledge and skills to become agents of change in the epilepsy community. This one-time scholarship is awarded to those living with epilepsy or to family members and caregivers of those impacted by epilepsy.

EEF scholarships are made possible by the generous support of Greenwich Biosciences.

Shop to Support ResearchFund Research with Your Holiday Shopping

Shop

Whether you purchase gifts for loved ones through Amazon Smile, snag a bag of Adelaide’s Blend coffee, or pick up a copy of the amazing book A Mind Unraveled, your holiday shopping can fund innovative epilepsy research!

Discover all the ways you can shop for a cure here.

Seizing LifeNew from Seizing Life®, a CURE Podcast

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Dive into the latest episodes of Seizing Life, where we explore:

  • Understanding epilepsy research to empower your conversations. Watch or Listen
  • Establishing your “new normal” after developing epilepsy. Watch or Listen
  • Infantile spasms and what to do if you suspect your child has them. (Rebroadcast) Watch or Listen

CURE Update: It’s Epilepsy Awareness Month!

In 2003, Congress passed a formal resolution declaring November as Epilepsy Awareness Month to end the stigma surrounding epilepsy and bring attention to this condition. Epilepsy is the fourth most common neurological disease in the US, however it is much less understood and receives significantly less funding than other neurological diseases. Take advantage of this month to talk about epilepsy – to a friend, to a colleague, to a family member.

Throughout this month, we’ll be posting videos and articles on FacebookTwitter, and Instagram for you to share to spread awareness about living with epilepsy. In addition, our exciting My Shot at Epilepsy Raffle (which you can read about in this update) will raise funds to support CURE’s work while giving you the chance to attend the final Chicago Hamilton performance LIVE!

And there is more to share. In this update, please find information about:

Don’t Throw Away Your Shot to see the FINAL Hamilton Performance in Chicago!

Enter Now

The final Hamilton performance in Chicago is on January 5, and with our My Shot at Epilepsy Raffle, you have the chance to see it LIVE! The winner will receive two tickets to this amazing night, delicious meals at the restaurants of celebrity chefs Rick Bayless and Stephanie Izard, travel to and accommodations in Chicago, and more.

Don’t be stuck asking “what’d I miss?” Donate here to secure your raffle entries today!

Your Donations Go Twice as Far on #GivingTuesday

Learn More#GivingTuesday

#GivingTuesday is a global movement happening on December 3 that harnesses the generosity of millions to support causes dear to them. It’s a chance to give back and know that CURE is grateful you as part of a community who recognizes and supports us.

The best part is that you can double your impact on December 3 thanks to a generous donor who will match every dollar raised up to $25,000!

Join the movement by creating a Facebook Fundraiser and getting your friends involved or by donating on #GivingTuesday through the CURE website.

#RunLikeaChampion: Team CURE Raises over $100,000 for Research in its Inaugural Year

Join Team CURETeam CURE

This year Team CURE raced onto the running scene to support vital epilepsy research. These dedicated CURE Champions raised over $100,000 from neighborhood fun-runs, 5k races, and marathons.

We are incredibly grateful to all our runners and to everyone who came out to support them. Thinking about joining Team CURE? Contact our Outreach Team at Events@CUREepilepsy.org and be sure to stay tuned for details on the exciting 2020 Team CURE schedule, featuring races across the country!

New from Seizing Life, a CURE Podcast

Watch or ListenSeizing Life

Dive into the latest episodes of Seizing Life, where we explore:

  • Rebroadcast: In honor of the book A Mind Unraveled launching in paperback, listen to one of our first episodes featuring Kurt Eichenwald.
  • Rebroadcast: For SUDEP Action Day, we shared a very important episode all about SUDEP.

This podcast is available on Apple Podcasts, Spotify, and anywhere you like to listen!

Be Inspired at the 2019 Annual Chicago Benefit

Learn More | Sponsor | TicketsSeizing Life

Join us on Monday, November 18 as we honor children whose lives have been touched by epilepsy and the researchers who propel us toward a cure.

By supporting the Annual Chicago Benefit, you’ll fuel vital research that will drive us toward a world without epilepsy and seizures.

Upcoming CURE Events

November 9: Dressage for a Cause – Batavia OH
November 18: CURE 2019 Annual Chicago Benefit – Chicago, IL
December 3: #GivingTuesday – Online

View All Upcoming Events

CURE Update: How to get involved on SUDEP Action Day, View the Real Talk Live Stream, Rallying behind #Giving Tuesday and more

In this month’s update, we have a very important question to ask: are you ready to take your shot at epilepsy?

This November enter our Epilepsy Awareness Month raffle to help support groundbreaking research and the chance to win a fantastic prize package including: tickets to the final Chicago Hamilton performance, meals at award winning Chicago restaurants, accommodations, and more. Stay tuned – we’ll announce more details in the coming weeks.

The exciting news doesn’t stop there! In this update, please also find information on:

SUDEP Action Day: Take #5forEpilepsySafety on October 23

Learn More

SUDEP Action Day is a global event whose purpose is to educate the epilepsy community and beyond about the risk of Sudden Unexpected Death in Epilepsy (SUDEP). Join the movement on Wednesday, October 23 and encourage your friends and family to take #5forEpilepsySafety – spend 5 minutes learning about SUDEP and preventative measures patients and families can take.

Rescue MedicationsWatch Real Talk: Speaking Up About Life with Epilepsy

Watch

This week, four young professionals joined us live to discuss navigating careers, dating, and friendships while living with epilepsy. You can catch the recording of this insightful discussion now on our website!

Seizing LifeYour Friends Can Fight for a Cure on #GivingTuesday

Learn More

On Tuesday, December 3, rally your Facebook friends to donate to cutting-edge epilepsy research that will push us closer to a cure. Setting up your own #GivingTuesday fundraiser is easy with Facebook! Follow these step-by-step instructions or click here to kick-off your campaign and let the world know how important funding research is to you.

Seizing LifeNew from Seizing Life, a CURE Podcast

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Dive into the latest episodes of Seizing Life, where we explore:

Seizing LifeSecure Your Tickets to the 2019 Annual Chicago Benefit!

Learn More | Sponsor | Tickets

Join us on Monday, November 18 as we honor children whose lives have been touched by epilepsy and the researchers who propel us toward a cure.

This year listen to performances by Nils Lofgren – Rock and Roll Hall of Fame inductee, Miguel Cervantes – star of Chicago’s Hamilton, and Musicality – renowned Chicago-based youth vocal group will make the evening soar.

Epilepsy Awareness Day at DisneylandExciting and Informative CURE Events at Epilepsy Awareness Day at Disneyland!

Learn More | Attend

Stop by the CURE booth at the Epilepsy Awareness Day at Disneyland expo to hear interesting interviews with researchers and physicians about the latest promising studies and therapies.

In addition, tell us how your life would change if there was a cure for epilepsy. Share your “When You Wish Upon a Cure” story and you’ll have the chance to be one of 10 individuals to be interviewed by Seizing Life podcast host, award-winning blogger, and advocate Kelly Cervantes!

Visit our website to learn more about the other exciting events we have planned.

Upcoming CURE Events

October 23: SUDEP Action Day – Online
November 3: The 2019 TCS New York City Marathon – New York, NY
November 4-6: Epilepsy Awareness Day at Disneyland – Anaheim, CA
November 9: Dressage for a Cause – Batavia OH
November 18: CURE 2019 Annual Chicago Benefit – Chicago, IL
December 3: #GivingTuesday – Online

View All Upcoming Events

CURE Update: September 2019

The CURE office is buzzing with excitement for all the upcoming events and educational opportunities on the horizon. It warms our hearts to see the epilepsy community coming together both on and offline to speak up in support of greater research funding and public education about epilepsy.

In this update, learn about our awareness-building Facebook Live Stream, a recent video we created focusing on how you can help change the conversation around epilepsy, what’s new from our Seizing Life podcast, details on the CURE 2019 Annual Chicago Benefit, and the exciting California events Day of Science: Epilepsy Conversations and Epilepsy Awareness Day at Disneyland.

Event and Facebook Live Stream – Real Talk: Speaking Up About Life with Epilepsy

Learn More | Tickets

Rescue MedicationsWhile 3.4 million Americans are currently impacted by epilepsy, the everyday experience of living with this condition remains largely in the shadows. To shed light on this “invisible” condition, a panel of individuals with epilepsy will speak to building careers, relationships, and more. Moderated by CURE Board Member and activist Kelly Cervantes, this discussion promises to be a unique, stigma-busting event!

If you’re in Chicago, please join us for the live filming and post-panel reception. Otherwise, catch the action on our Facebook page.

Video: Change the Conversation Around Epilepsy

Watch | Speak Up

CURE Epilepsy Research AppThe stigma associated with epilepsy can lead those affected to face challenges with employment, education, and even medical care.

Watch and share this important information to help change the conversation around epilepsy, educate the general public, and break down the stigma.

New from Seizing Life, a CURE Podcast

Watch or Listen

Seizing LifeDive into the latest episodes of Seizing Life, where we explore:

Save the Date for the CURE 2019 Annual Chicago Benefit!

Learn More | Sponsor | Tickets

Seizing LifeMark your calendars: this year’s spectacular CURE 2019 Annual Chicago Benefit is on Monday, November 18!

We’re celebrating the innovative epilepsy researchers whose careers CURE has helped launch for over 20 years. These are the groundbreaking scientists who are helping break open new avenues of investigation in the field of epilepsy research, giving hope to those impacted by the condition, and pushing us closer to a cure.

Our amazing performers for this year’s benefit are Rock and Roll Hall of Famer Nils Lofgren, star of Chicago’s Hamilton Miguel Cervantes, and renowned Chicago-based vocal group Musicality.

California Events: CURE’s Day of Science: Epilepsy Conversations and Epilepsy Awareness Day at Disneyland

Attend Day of Science: Epilepsy Conversations

Broadway Sings for CUREOn Saturday, September 21, people with epilepsy and their caregivers have the opportunity to ask a panel of doctors and researchers their questions during Day of Science: Epilepsy Conversations at the Children’s Hospital of Orange County. At this free event, leading experts will address attendees’ questions on the latest research as it relates to new epilepsy treatment options, surgery, genetics, and more. Also, enjoy small-group discussions with the panelists over lunch.

Day of Science: Epilepsy Conversations is made possible thanks to the generous support of the BAND Foundation, Eisai, and Greenwich Biosciences. This event is also hosted in partnership with the Epilepsy Support Network of Orange County.

Attend Epilepsy Awareness Day at Disneyland

Broadway Sings for CUREPaint the park purple at Epilepsy Awareness Day at Disneyland! On November 4 and 5, join us at the expo to access epilepsy resources while learning about new treatment options and devices. Then head to Disneyland Park on November 6 to enjoy the rides, build lasting friendships, and spread epilepsy awareness.

We’ll announce our fun booth activities soon, so stay tuned!

Upcoming CURE Events

September 21: Day of Science: Epilepsy Conversations – Orange, CA
September 29: Chicago Half Marathon/5K – Chicago, IL
October 7: Real Talk: Speaking Up About Life with Epilepsy – Chicago, IL and Online
November 3: The 2019 TCS New York City Marathon – New York, NY
November 4-6: Epilepsy Awareness Day at Disneyland – Anaheim, CA
November 9: Dressage for a Cause – Batavia, OH
November 18: CURE 2019 Annual Chicago Benefit – Chicago, IL
December 3: #GivingTuesday – Online

View All Upcoming Events

CURE Update: Free Epilepsy Events, Resources, and Become a Poptivist!

The summer is coming to a close and for many of us, it’s time to get the kids ready for another school year. As you plan and prepare, be sure to check out our Seizing Life podcast episode on Individualized Education Plans and our webinar on epilepsy’s impact on learning and school performance.

In addition to online resources for parents doing the back-to-school shuffle, we’re thrilled to offer broader educational programming: a two-part webinar series on epilepsy rescue medications, the new CURE epilepsy research news mobile app, and our final Day of Science: Epilepsy Conversations and Live Q&A of 2019. You can find details about all of these programs below, as well as information on…

Rescue MedicationsWebinars and Live Q&As on Epilepsy Emergencies and Rescue Medications

Learn More | Register for Free

This two-part webinar and live Q&A series onAugust 13 and September 10 provides a detailed look at current and future rescue medications and their uses. Whether you’re an individual with epilepsy, parent, caregiver, teacher, or someone who regularly interacts with those impacted by epilepsy, please join us for these important presentations.

This webinar is generously supported by the BAND Foundation.

CURE Epilepsy Research AppDownload the CURE Epilepsy Research News Mobile App

iPhone | Android

The latest epilepsy discoveries are now at your fingertips with the CURE Epilepsy Research News mobile app. The app provides you with studies from investigators and researchers dedicated to building a world without epilepsy.

Never miss an epilepsy discovery! Download the free CURE Epilepsy Research New app today.

New from Seizing Life, a CURE Podcast

Seizing LifeWatch or Listen

Dive into the latest episodes of Seizing Life, where we explore:

Become a CURE Poptivist!

Seizing LifeLearn More | Buy or Design

Display your commitment to finding a cure for epilepsy every time you use your phone with CURE PopSockets! Popsockets are expandable phone grips and mounts you can use to hold your phone, prop it up, and manage your cords.

Become a Poptivist by purchasing or designing a CURE Popsocket. When you do, 50% of sales support our mission to fund cutting-edge research.

Day of Science: Epilepsy Conversations and Live Q&A in Orange County

Broadway Sings for CURELearn More | Register for Free

On Saturday, September 21 ask a panel of doctors and researchers your questions about epilepsy at Day of Science: Epilepsy Conversations and Live Q&A. At this free event, leading experts address your questions on the latest research as it relates to new epilepsy treatment options, surgery, genetics, and more. Also, enjoy small-group discussions with the panelists over lunch.

Day of Science: Epilepsy Conversations and Live Q&A is made possible thanks to the generous support of the BAND Foundation, Eisai, and Greenwich Biosciences. This event is also hosted in partnership with the Epilepsy Support Network of Orange County.

CURE Update: Get Involved! Join Our Next Webinar and Host an Event This Summer

Greetings! It’s been an inspirational month here at CURE between our Broadway Sings for CURE benefit in New York and awarding our Educational Enrichment Fund scholarships to 10 amazing students.

In this update, we hope to inspire you to continue your involvement with the CURE community throughout the summer. Click on the links below to learn more about CURE happenings!

Epilepsy SurgeryWebinar and Live Q&A on Epilepsy Surgery: Advancements, Options, & Considerations

Learn More | Register Now

Discover when to consider epilepsy surgery and what recent advances have been made in this field in our upcoming free webinar, Wednesday, July 10. Dr. Kate Davis from the University of Pennsylvania will address these topics and share how to approach your doctor about surgery.

This webinar is supported by the generosity of the BAND Foundation.

CURE ChampionBecome a CURE Champion This Summer

Start Your Summer Fundraiser

Have fun in the sun while raising vital funding for epilepsy research by hosting a CURE Champion event! From lemonade stands to block parties, you can use your creativity and skills to spread awareness about the desperate need for a cure for epilepsy.

Not sure where to start? Our Outreach Team is here to help! Send them an email at events@cureepilepsy.org to kick off your summer fundraising event.

The CURE Champions program is supported in part by Greenwich Biosciences.

Broadway Sings for CUREBecome a Monthly Donor to Impact Epilepsy Research All Year!

Learn More

Support groundbreaking epilepsy research throughout the year by becoming a monthly donor! Your donations build-up over time, which means any recurring donation can make a big impact, helping to transform lives.

Set up your monthly donation through our website by checking the “Recurring Gift” box when you donate.

Seizing LifeNew from Seizing Life, a CURE Podcast

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Dive into the latest episodes of Seizing Life, where we explore:

CURE Mention: Cornell Alumna Works to Find Cure for Epilepsy

Beth Lewin Dean ’90 didn’t know it when she attended Cornell College, but her path would lead her to work that would impact millions of lives.

She recently accepted the job as the chief executive officer of Citizens United for Research in Epilepsy (CURE)–which she says is the No. 1 non-governmental research agency for epilepsy.

“It’s a very rewarding job, knowing how prevalent epilepsy is, knowing how underfunded epilepsy research is, and knowing the impact our work can have on someone’s life,” Lewin Dean said. “The ability to help drive change makes you want to get up and come to work every day.”

The nonprofit organization is at the forefront of epilepsy research. It has already raised more than $60 million to fund research grants and other programs. According to CURE’s website, mortality rates among people with epilepsy are three times the rate of the general population, and sudden death rates are more than 20 times higher. Lewin Dean says her Chicago-based team hopes to get more people talking about the disease, which impacts more people than many realize.

“There is a huge stigma around epilepsy,” Lewin Dean said. “Three-point-four million people in the U.S. have epilepsy but people don’t talk about it. There’s shame or embarrassment or they are worried it will affect their job, friendships, or relationships.”

Meet the 2019 Class of CURE Scholars!

Introducing our 2019 Education Enrichment Fund scholars! All 10 remarkable students have all been personally impacted by epilepsy and will together receive nearly $50,000 to advance their education while bringing greater awareness to epilepsy.

The EEF Scholarships—made possible by generous support from Lundbeck—award one-time scholarships (up to $5,000) to those living with epilepsy, or family members and caregivers of those impacted by the condition. The scholarship, which is in its fourth year, covers tuition, books, and academic materials and supports coursework advancing personal knowledge in research, health education, and advocacy in relation to epilepsy.

Ana-Sophia Beardsley
Asbury University

After being diagnosed with epilepsy as a teenager, Ana-Sophia searched for a way to process her emotions while connecting with other teens impacted by this condition. When she couldn’t find these resources and ways to connect, she took action, speaking out about her epilepsy and actively work to build a network of teens dealing with the same thoughts and emotions.

Ana-Sophia will use her scholarship to continue learning how to develop a community through writing.

Read Ana-Sophia’s Story

Emma Cardwell
Middlebury College

Emma’s sister, Abby, was diagnosed with epilepsy at the age of 2. The cause of Abby’s epilepsy is unknown, and she continues to battle seizures and struggle with side effects from medication. Seeing the way Abby has been impacted by epilepsy sparked Emma’s interest in neuroscience and passion to make a difference. Currently, Emma is interning with Dr. Sunita Misra in Chicago and researching what genetic and brain MRI abnormalities predispose a patient to Lennox-Gastaut syndrome (LGS).

Emma is determined to help further the search for a cure by studying epilepsy genetics.

Read Emma’s Story

Emma Cardwell

Connie Chang-Chien
Johns Hopkins University

In 2018, Connie was diagnosed with Stage 2 brain cancer and epilepsy. Her recovery has included medications, MRI scans, oncologists, neurosurgeons, neurologists, and two brain surgeries. The balance between her health and academic excellence at times presented challenges, but Connie met these challenges with eagerness and determination.

Connie will work toward a degree in Molecular and Cellular Biology and Public Health, in the hopes of helping patients find the best way to treat their conditions while educating the public about epilepsy.

Read Connie’s Story

Emma Lipkowski
Rose-Hulman Institute of Technology

Emma’s brother has been diagnosed with Idiopathic Generalized Epilepsy. His condition impacts all aspects of his life and seeing this has inspired Emma to devote her studies to creating change. She hopes to create life-saving technologies through research.

Emma will use her scholarship to study how to use artificial intelligence and nanotechnology to analyze epileptic brain activity and predict the onset of seizures.

Read Emma’s Story

Emma Lipkowski

Gillian Mangan
University of Alabama at Birmingham

As a teenager, Gillian was diagnosed with petit mal epilepsy, which later evolved into grand mal epilepsy. She turned to blogging and photography to cope with her condition, meeting a community of others impacted by chronic conditions. She aspires to use her education to help others find that critical human connection.

Gillian will be pursuing a Master of Science Degree in Healthcare Administration, where she will research how to advance telemedicine and treatment centers for chronic illnesses.

Read Gillian’s Story

Gillian Mangan

Miriah Mayhugh
Pikes Peak Community College

Being diagnosed with epilepsy at the age of 7, this condition has been a constant in Miriah’s life. While she is two years seizure-free, she describes getting to this point as a “wild ride” which has sparked her passion for nursing.

Miriah is using her scholarship to support her dreams of becoming a pediatric nurse, specializing in childhood epilepsy.

Read Miriah’s Story

Mariah Mayhugh

Sasha Pina
Institute of Health Science

Sasha developed drug resistant post-traumatic epilepsy 10 months after receiving a traumatic brain injury during a soccer game. Her diagnosis opened Sasha’s eyes to how people with different challenges are treated, and her mission is to educate others about epilepsy, seizure first aid, and SUDEP.

Sasha completed a nursing assistant program and will use this scholarship to continue her education. She hopes to become an EEG technician, while raising awareness about brain injuries.

Read Sasha’s Story

Sasha Pina

Sara Sheridan
Columbia Journalism School

Sara’s passion for writing began with her epilepsy diagnosis. She used writing to process her thoughts and emotions, eventually dedicating herself to journalism. Since then, she has worked for the UN, traveled the world, and worked to amplify the voices of others impacted by epilepsy.

Sara is pursuing her master’s degree in journalism, with the goal of becoming agent of hope for the epilepsy community.

Read Sara’s Story

Sara Sheridan

Kelli Stanley
Charleston Southern University

In 2005, Kelli’s sister, Emily, was diagnosed with Dravet syndrome, beginning both of their journeys with epilepsy. Kelli has always played a major role in Emily’s care and is now her second guardian. Due to Kelli’s close relationship with Emily’s doctors, nurses, and therapists, she became interested in the medical field, volunteering at free clinics and becoming a certified EMT.

Kelli is enrolled in a Physician Assistant program and is interested in a career in neurology or psychology. She wants to practice in rural settings where primary care is often limited.

Read Kelli’s Story

Kelli Stanley

Clare Tyler
University of Brighton

After struggling to gain seizure control for a decade, Clare found Keppra and then the ketogenic diet. The dietary therapy fascinated her, and she dedicated herself to learning as much as she could about its mechanism of action. Eventually this led Clare to CURE’s Day of Science event, which opened doors for her. She began working in the labs of CURE grantees Dr. Judy Liu and Dr. Kevin Staley during college, forming and testing hypotheses based on their work.

Clare’s dream is to become an epilepsy researcher and clinician to help patients in as many ways as she can while continuing to explore her passion for research.

Read Clare’s Story