CURE Update: Collaborating Toward a Cure

Greetings, CURE community! This month I had the pleasure of attending Purple Day at Disney World. This wonderful event reminded me of the importance of collaboration in achieving a goal.

Curing epilepsy is a team effort involving the patient community, medical professionals, researchers, and advocacy organizations. Every day, we are grateful to have you by our side and to work with partners throughout the field of epilepsy to realize our mission of finding a cure. In this update, learn about our latest advocacy collaboration with the Danny Did Foundation and the Epilepsy Foundation of Greater Chicago.

Beyond Chicago, so many are working to improve the world for those impacted by epilepsy, whether through research, education, or fundraising. In this update, learn about how you and your community can make a difference:

Warmest,

Beth Lewin Dean

Beth Lewin Dean, CEO

Seizure SafetySeizure First Aid Everyone Should Know

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Who needs to be educated on seizure first aid? Everyone. This video, featuring pediatric epileptologist Dr. Linda Laux, discusses basic steps to take when someone is having a tonic-clonic seizure. Share this information with teachers, community leaders, employers, and anyone else you think could benefit from knowing what to do in the event of a seizure.

Seizure Rescue MedsNew Therapies for Seizure Emergencies Now Available

Nayzilam | Valtoco

Two nasally administered seizure rescue medications are now commercially available to patients.

  • Nayzilam® (midazolam nasal spray) (CIV): indicated for the short-term treatment of seizure clusters (also known as acute repetitive seizures) in patients 12 years of age and older. Learn More
  • Valtoco® (diazepam nasal spray): indicated for the short-term treatment of seizure clusters (also known as acute repetitive seizures) in patients 6 years of age and older. Learn More

CURE Scholar SpotlightCURE Scholar Spotlight: Brook Hodegman

Watch

Brook Hodgeman, who was diagnosed with epilepsy as a child, is one of our amazing CURE Scholars determined to become an agent of change in the epilepsy community.

Hear from Brook about how his involvement with the CURE Scholarship program is propelling him toward his dream of becoming a neurologist and epilepsy researcher.

Now accepting applications for 2020! CURE Scholarships are made possible by the generous support of Greenwich Biosciences.

Team CURE#RunLikeAChampion Across the US!

See All Events

Coast to coast, Team CURE is racing toward a future without epilepsy! From marathons to 5Ks, we have races planned across the US in CaliforniaNew YorkIllinois, and beyond this year.

When you race for Team CURE and meet fundraising goals, you’ll receive exclusive swag! Join Team CURE or find out about upcoming races by emailing events@cureepilepsy.org.

1 in 26Chicago: Here’s What 1 in 26 Looks Like

We’ve partnered with the Danny Did Foundation and the Epilepsy Foundation of Greater Chicago to demonstrate just how many people will be impacted by epilepsy in the US. Together we’ve launched ads like the one you see here at Chicago “L” train stations and other city hot spots. When you see one, snap a picture and tag us on Instagram at @CUREepilepsy for a chance to be featured!

Seizing LifeNew from Seizing Life®, a CURE Podcast

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Catch up on the latest episodes of the Seizing Life podcast where we discuss:

CURE Researcher Update: Exciting Conferences & Opportunities

In this update you will find information on CURE-sponsored conferences and open positions at NINDS. In addition, your input is requested for the following:

Upcoming CURE-Sponsored Conferences

View Conferences

Each year CURE sponsors scientific conferences all around the world. These meetings aim to advance epilepsy research and encourage collaboration. This year we’re thrilled to announce the following CURE-sponsored conferences:

Career Opportunities: NINDS Small Business Program Director and Epilepsy Therapy Screening Program Scientific Project Manager

NINDS has two openings in Bethesda, MD: Small Business Program Director and Scientific Project Manager for the Epilepsy Therapy Screening Program.

The Small Business Program Director will have broad influence regarding highly complex scientific program and policy issues. Learn more about this position.

The Scientific Project Manager for the Epilepsy Therapy Screening Program will help facilitate the discovery and development of new therapeutic interventions for epilepsy. Learn more about this position.

Curing the Epilepsies 2020: Setting Research Priorities – Request for Information Response Deadline February 20

Learn More

Ahead of this pivotal conference, which you can learn more about here, that will be convened to discuss advances in understanding the causes of epilepsy and the paths toward potential cures, NINDS is requesting input from doctors, researchers, impacted patients, and families.

Please use this form to provide perspective on the 2014 Epilepsy Research Benchmarks and share suggestions for new or ongoing research opportunities critical for advancing research toward cures for the epilepsies.

Request for Information on Coordinating Care from Out-of-State Providers for Children with Medically Complex Conditions

Submit Comments

The Centers for Medicare & Medicaid Services (CMS) is requesting comment on coordinating care from out-of-state providers for children with medically complex conditions. Your responses will help inform efforts to craft guidance for state Medicaid directors.

CMS is seeking public comments on:

  • Best practices for using out-of-state providers in coordinating care for children with medically complex conditions
  • How care for such children is coordinated when that care occurs out-of-state
  • Processes for screening and enrolling out-of-state providers, including efforts to streamline these processes or reduce the burden of these processes on such providers and states
Running crowd at the marathon. Many runners passing the start or finish line. Woman in focus.

CURE Update: #EpilepsyDay is Almost Here!

 

Greetings, CURE community! This month we’re joining organizations in over 120 countries in celebrating International Epilepsy Day on February 10. While an estimated 65 million people worldwide are diagnosed with epilepsy, research aimed at finding a cure remains sorely underfunded. Last summer, the World Health Organization released its first global report on epilepsy with the goals of raising public awareness of the critical needs of the epilepsy community, encouraging investment to reduce the burden, and advocating for actions to address gaps in epilepsy knowledge, care, and research.

In this update, you can discover how to support epilepsy research and raise awareness about the need for advances toward a cure. In addition, please find information on:

International Epilepsy Day

#EpilepsyDay: Spread the Word about the Need for a Cure!

Learn More

February 10 is International Epilepsy Day and you can join this global movement to increase awareness about epilepsy and the need for a cure. To celebrate this worldwide event:

Webinar

Webinar and Live Q&A: The ABCs of EEGs

Sign Up

From diagnosis to determining surgical eligibility, EEGs are a critical tool in the field of epilepsy. In our webinar on February 10 at 11:00AM CT, Dr. David Burdette will explain the different types of available EEGs and what patients can expect from each. In addition, he will explore the recent advances in EEG and other neuroimaging technology that have direct, positive impacts on patients.

This webinar is generously supported by the BAND Foundation.

Rock'n'Roll Race Series

#RunLikeAChampion in Rock’n’Roll Races Nationwide!

Team CURE is rocking to support epilepsy research in Rock’n’Roll races across the US. We want you to join us in:

Meet fundraising goals to receive exclusive swag! Join Team CURE by emailing events@cureepilepsy.org.

Seizing Life

New from Seizing Life®, a CURE Podcast

Watch or Listen

In honor of International Epilepsy Day, we’re launching a globally focused episode of the Seizing Life podcast next week! Catch a sneak peek now.

Plus, catch up on the latest episodes where we discussed:

  • Advances in rescue therapies to manage seizure clusters.
    Learn More
  • How former NFL star and broadcaster Mike Adamle and his wife, Kim, manage his post-traumatic epilepsy and CTE symptoms.
    Learn More
Setting Research Priorities

Curing the Epilepsies 2020: Setting Research Priorities

Submit Your Response

When CURE was founded in 1998, Susan Axelrod and the other founding mothers were frustrated by the lack of research addressing why their children’s seizures could not be stopped, what caused their epilepsy, and why answers did not exist. These mothers challenged the research community to focus on finding cures and worked to establish the first National Institute of Health (NIH) conference centered around curing epilepsy. Since that first meeting, held in March of 2000 and initiated by the Clinton White House, CURE has continued to play a pivotal role in the sequels to this conference and now is instrumental in gearing up for the next iteration.

You can help set these priorities. NIH is looking for patients, caregivers, and advocates to lend their voices in deciding the future of epilepsy research. Discover how you can make comments or suggestions here.

Ella and her mother running among friends all wearing purple shirts at Ella's Race in 2019

CURE Update: Kicking off 2020

As we enter 2020, the team at CURE wants to thank you. We want to thank you for your support through donating, fundraising, and participating in community events and programming. You truly give us hope – hope that together, we will build a world without epilepsy.

Because of your support in 2019, we will continue to push science forward by funding cutting-edge studies. In fact, you can see the latest innovative projects we’re funding in the areas of Sudden Unexpected Death in Epilepsy (SUDEP), genetics, status epilepticus, and beyond here.

This year promises to be filled with novel research and exciting programming from CURE. Below you can find information about some of our 2020 programming, and of course, the latest from the Seizing Life podcast.

Education Enrichment Fund ScholarshipApply for a CURE Scholarship Before April 15

Learn More

We want to empower you become an agent of change for the epilepsy community by helping to fund your education! Applications are open for Education Enrichment Fund (EEF) scholarships of up to $5,000.

EEF scholarships support coursework in scholars’ chosen career paths, so they can use their knowledge and skills to become agents of change in the epilepsy community. This one-time scholarship is awarded to those living with epilepsy or to family members and caregivers of those impacted by epilepsy.

EEF scholarships are made possible by the generous support of Greenwich Biosciences.

Ella's Race#RunLikeAChampion in 2020

Contact Us

Race toward a world without epilepsy in 2020 by joining Team CURE! Whether you participate in a race that we’re an official charity partner with or represent CURE in a local run, you can move science closer to a world without epilepsy.

Join our nationwide team of CURE Champions who are dedicated to raising awareness and vital funds for epilepsy! Contact our Outreach Team today.

Seizing LifeNew from Seizing Life®, a CURE Podcast

Watch or Listen

Our recent episode of Seizing Life is filled with leading epilepsy experts discussing medical advances and the future of research at Epilepsy Awareness Day at Disneyland. Tune in to learn about:

If you’re new to Seizing Life or catching up on the podcast, be sure to check out our Best of 2019 episode!

CURE 2019 Grantees

Announcing the CURE 2019 Grantees!

We are delighted to announce the recipients of our 2019 CURE grants! These grants are awarded for novel research projects that address finding cures for epilepsy and address the goal of “no seizures, no side-effects.” Read on to learn about the innovative projects our Taking Flight Award, CURE Epilepsy Award, and Post-Traumatic Epilepsy (PTE) Initiative grantees will pursue.

Taking Flight Award Grantee – $100,000 for one year

This award seeks to promote the careers of young epilepsy investigators, allowing them to develop a research focus independent of their mentors.

Bin Gu, PhDBin Gu, PhD
University of North Carolina at Chapel Hill

Dr. Gu and his team will focus on identifying genes that increase how susceptible patients are to Sudden Unexpected Death in Epilepsy (SUDEP) using a unique resource, genetically diverse mice. The team also plans to use genetic and electrophysiological techniques to understanding the physiological changes that can trigger SUDEP.

Learn More

CURE Epilepsy Award Grantees – $250,000 for two years

This award reflects CURE’s continued focus on scientific advances that have potential to truly transform the lives of those affected by epilepsy.

Heather Mefford, MD, PhDHeather Mefford, MD, PhD
University of Washington

Dr. Mefford and her team will explore if a process called “abnormal methylation” is a cause of severe pediatric epilepsy syndromes known as developmental and epileptic encephalopathies (DEE). Abnormal methylation is a type of chemical DNA modification and occurs in many patients with DEE. While this process is a known cause for some neurological disorders, it hasn’t been studied much as a cause of epilepsy. In the future, the team will perform additional studies to understand why certain methylation changes can lead to epilepsy, developing clinical tests to diagnose affected individuals.

Learn More

Nicholas Varvel, PhD

Nicholas Varvel, PhD
Emory University

Dr. Varvel and his team will focus on status epilepticus (SE) – a neurological emergency in which a person has multiple seizures in a row without returning to consciousness. Previously, the team identified that a blood-borne immune cell called a monocyte invades the brain after seizures and contributes to damage and inflammation. Dr. Varvel and his team now plan to use a drug to block monocyte entry in mouse brains after SE. Ultimately, they want to determine if this approach is feasible in humans to relieve detrimental effects of seizures.

Learn More

Nicholas Varvel, PhD

Christopher Reid, PhD
Florey Institute, Australia

Dr. Reid and his team will work to identify key SUDEP risk factors by develop new rodent models which replicate having both epilepsy and a genetic heart abnormality. This research is based on evidence suggesting that a combination of epilepsy and changes in genes associated with heart conditions may increase SUDEP risk. The team will compare their models to understand if the rate of SUDEP is higher relative to existing models.

Learn More

Post-Traumatic Epilepsy Initiative Grantee

This Initiative is a team science, multi-disciplinary program designed to expand knowledge around the types of injuries which predispose the brain to epilepsy and develop new models to study epilepsy resulting from injury.

Bin Gu, PhDPavel Klein, MD
Mid-Atlantic Epilepsy and Sleep Center

Dr. Klein and his team plan to address the current inability to predict who will go on to develop PTE following a traumatic brain injury by examining a group of high-risk patients with a greater chance of developing PTE. The team will search for biomarkers in patients’ EEG signatures, MRIs, or blood which can be used to predict who is at an increased risk of developing PTE. By finding ways to identify the individuals most at risk, the team hopes to pave the way for the development of therapies to prevent PTE. With the addition of Dr. Klein and his team, CURE’s Post-Traumatic Epilepsy Initiative now encompasses 6 investigative teams and over 40 researchers to tackle post-traumatic epilepsy.

Learn More

CURE Update: December 2019

Season’s Greetings! The holidays are a time for review and reflection. For us at CURE, this past year has been full of incredible accomplishments. We have once again been on the forefront of groundbreaking epilepsy research in areas such as Sudden Unexpected Death in Epilepsy (SUDEP)Post-Traumatic Epilepsy (PTE), and genetics, we have provided robust educational programming, and we have delivered dozens of engaging events which empower patients and families to advocate for themselves to doctors and within their communities. But none of this would have been possible without you.

The holidays are also a time for giving. Your continued dedication and support are essential for CURE to continue funding vital epilepsy research. We ask you to give today, so together we can achieve a world without seizures. And, thanks to a generous donor, all new and increased gifts made before January 1, 2020 will be matched, doubling your impact.

As you read through the updates below, please remember that your gift makes this all possible.

Infantile Spasms Awareness WeekIt’s Infantile Spasms Awareness Week: Raise Awareness with These Resources

Learn More

Infantile spasms (IS) is a medical emergency. Quick diagnosis and treatment of this severe form of pediatric epilepsy is vital to reduce the neurological impact these seizures can have on babies. However, getting a child appropriate care during the critical time when the seizures first begin is a challenge. The movements can be subtle, and doctors and parents alike often don’t know what IS looks like.

During Infantile Spasms Awareness Week, we encourage you to learn more about how to identify IS and share these video resources with your community.

Education Enrichment Fund ScholarshipApply for a CURE Scholarship Starting December 15

Learn More

CURE is helping scholars become agents of change for the epilepsy community with Education Enrichment Fund (EEF) scholarships of up to $5,000! We will begin accepting applications on Sunday, December 15.

EEF scholarships support coursework in scholars’ chosen fields, so they can use their knowledge and skills to become agents of change in the epilepsy community. This one-time scholarship is awarded to those living with epilepsy or to family members and caregivers of those impacted by epilepsy.

EEF scholarships are made possible by the generous support of Greenwich Biosciences.

Shop to Support ResearchFund Research with Your Holiday Shopping

Shop

Whether you purchase gifts for loved ones through Amazon Smile, snag a bag of Adelaide’s Blend coffee, or pick up a copy of the amazing book A Mind Unraveled, your holiday shopping can fund innovative epilepsy research!

Discover all the ways you can shop for a cure here.

Seizing LifeNew from Seizing Life®, a CURE Podcast

Watch or Listen

Dive into the latest episodes of Seizing Life, where we explore:

  • Understanding epilepsy research to empower your conversations. Watch or Listen
  • Establishing your “new normal” after developing epilepsy. Watch or Listen
  • Infantile spasms and what to do if you suspect your child has them. (Rebroadcast) Watch or Listen

CURE Update: It’s Epilepsy Awareness Month!

In 2003, Congress passed a formal resolution declaring November as Epilepsy Awareness Month to end the stigma surrounding epilepsy and bring attention to this condition. Epilepsy is the fourth most common neurological disease in the US, however it is much less understood and receives significantly less funding than other neurological diseases. Take advantage of this month to talk about epilepsy – to a friend, to a colleague, to a family member.

Throughout this month, we’ll be posting videos and articles on FacebookTwitter, and Instagram for you to share to spread awareness about living with epilepsy. In addition, our exciting My Shot at Epilepsy Raffle (which you can read about in this update) will raise funds to support CURE’s work while giving you the chance to attend the final Chicago Hamilton performance LIVE!

And there is more to share. In this update, please find information about:

Don’t Throw Away Your Shot to see the FINAL Hamilton Performance in Chicago!

Enter Now

The final Hamilton performance in Chicago is on January 5, and with our My Shot at Epilepsy Raffle, you have the chance to see it LIVE! The winner will receive two tickets to this amazing night, delicious meals at the restaurants of celebrity chefs Rick Bayless and Stephanie Izard, travel to and accommodations in Chicago, and more.

Don’t be stuck asking “what’d I miss?” Donate here to secure your raffle entries today!

Your Donations Go Twice as Far on #GivingTuesday

Learn More#GivingTuesday

#GivingTuesday is a global movement happening on December 3 that harnesses the generosity of millions to support causes dear to them. It’s a chance to give back and know that CURE is grateful you as part of a community who recognizes and supports us.

The best part is that you can double your impact on December 3 thanks to a generous donor who will match every dollar raised up to $25,000!

Join the movement by creating a Facebook Fundraiser and getting your friends involved or by donating on #GivingTuesday through the CURE website.

#RunLikeaChampion: Team CURE Raises over $100,000 for Research in its Inaugural Year

Join Team CURETeam CURE

This year Team CURE raced onto the running scene to support vital epilepsy research. These dedicated CURE Champions raised over $100,000 from neighborhood fun-runs, 5k races, and marathons.

We are incredibly grateful to all our runners and to everyone who came out to support them. Thinking about joining Team CURE? Contact our Outreach Team at Events@CUREepilepsy.org and be sure to stay tuned for details on the exciting 2020 Team CURE schedule, featuring races across the country!

New from Seizing Life, a CURE Podcast

Watch or ListenSeizing Life

Dive into the latest episodes of Seizing Life, where we explore:

  • Rebroadcast: In honor of the book A Mind Unraveled launching in paperback, listen to one of our first episodes featuring Kurt Eichenwald.
  • Rebroadcast: For SUDEP Action Day, we shared a very important episode all about SUDEP.

This podcast is available on Apple Podcasts, Spotify, and anywhere you like to listen!

Be Inspired at the 2019 Annual Chicago Benefit

Learn More | Sponsor | TicketsSeizing Life

Join us on Monday, November 18 as we honor children whose lives have been touched by epilepsy and the researchers who propel us toward a cure.

By supporting the Annual Chicago Benefit, you’ll fuel vital research that will drive us toward a world without epilepsy and seizures.

Upcoming CURE Events

November 9: Dressage for a Cause – Batavia OH
November 18: CURE 2019 Annual Chicago Benefit – Chicago, IL
December 3: #GivingTuesday – Online

View All Upcoming Events

CURE Update: How to get involved on SUDEP Action Day, View the Real Talk Live Stream, Rallying behind #Giving Tuesday and more

In this month’s update, we have a very important question to ask: are you ready to take your shot at epilepsy?

This November enter our Epilepsy Awareness Month raffle to help support groundbreaking research and the chance to win a fantastic prize package including: tickets to the final Chicago Hamilton performance, meals at award winning Chicago restaurants, accommodations, and more. Stay tuned – we’ll announce more details in the coming weeks.

The exciting news doesn’t stop there! In this update, please also find information on:

SUDEP Action Day: Take #5forEpilepsySafety on October 23

Learn More

SUDEP Action Day is a global event whose purpose is to educate the epilepsy community and beyond about the risk of Sudden Unexpected Death in Epilepsy (SUDEP). Join the movement on Wednesday, October 23 and encourage your friends and family to take #5forEpilepsySafety – spend 5 minutes learning about SUDEP and preventative measures patients and families can take.

Rescue MedicationsWatch Real Talk: Speaking Up About Life with Epilepsy

Watch

This week, four young professionals joined us live to discuss navigating careers, dating, and friendships while living with epilepsy. You can catch the recording of this insightful discussion now on our website!

Seizing LifeYour Friends Can Fight for a Cure on #GivingTuesday

Learn More

On Tuesday, December 3, rally your Facebook friends to donate to cutting-edge epilepsy research that will push us closer to a cure. Setting up your own #GivingTuesday fundraiser is easy with Facebook! Follow these step-by-step instructions or click here to kick-off your campaign and let the world know how important funding research is to you.

Seizing LifeNew from Seizing Life, a CURE Podcast

Watch or Listen

Dive into the latest episodes of Seizing Life, where we explore:

Seizing LifeSecure Your Tickets to the 2019 Annual Chicago Benefit!

Learn More | Sponsor | Tickets

Join us on Monday, November 18 as we honor children whose lives have been touched by epilepsy and the researchers who propel us toward a cure.

This year listen to performances by Nils Lofgren – Rock and Roll Hall of Fame inductee, Miguel Cervantes – star of Chicago’s Hamilton, and Musicality – renowned Chicago-based youth vocal group will make the evening soar.

Epilepsy Awareness Day at DisneylandExciting and Informative CURE Events at Epilepsy Awareness Day at Disneyland!

Learn More | Attend

Stop by the CURE booth at the Epilepsy Awareness Day at Disneyland expo to hear interesting interviews with researchers and physicians about the latest promising studies and therapies.

In addition, tell us how your life would change if there was a cure for epilepsy. Share your “When You Wish Upon a Cure” story and you’ll have the chance to be one of 10 individuals to be interviewed by Seizing Life podcast host, award-winning blogger, and advocate Kelly Cervantes!

Visit our website to learn more about the other exciting events we have planned.

Upcoming CURE Events

October 23: SUDEP Action Day – Online
November 3: The 2019 TCS New York City Marathon – New York, NY
November 4-6: Epilepsy Awareness Day at Disneyland – Anaheim, CA
November 9: Dressage for a Cause – Batavia OH
November 18: CURE 2019 Annual Chicago Benefit – Chicago, IL
December 3: #GivingTuesday – Online

View All Upcoming Events

CURE Update: September 2019

The CURE office is buzzing with excitement for all the upcoming events and educational opportunities on the horizon. It warms our hearts to see the epilepsy community coming together both on and offline to speak up in support of greater research funding and public education about epilepsy.

In this update, learn about our awareness-building Facebook Live Stream, a recent video we created focusing on how you can help change the conversation around epilepsy, what’s new from our Seizing Life podcast, details on the CURE 2019 Annual Chicago Benefit, and the exciting California events Day of Science: Epilepsy Conversations and Epilepsy Awareness Day at Disneyland.

Event and Facebook Live Stream – Real Talk: Speaking Up About Life with Epilepsy

Learn More | Tickets

Rescue MedicationsWhile 3.4 million Americans are currently impacted by epilepsy, the everyday experience of living with this condition remains largely in the shadows. To shed light on this “invisible” condition, a panel of individuals with epilepsy will speak to building careers, relationships, and more. Moderated by CURE Board Member and activist Kelly Cervantes, this discussion promises to be a unique, stigma-busting event!

If you’re in Chicago, please join us for the live filming and post-panel reception. Otherwise, catch the action on our Facebook page.

Video: Change the Conversation Around Epilepsy

Watch | Speak Up

CURE Epilepsy Research AppThe stigma associated with epilepsy can lead those affected to face challenges with employment, education, and even medical care.

Watch and share this important information to help change the conversation around epilepsy, educate the general public, and break down the stigma.

New from Seizing Life, a CURE Podcast

Watch or Listen

Seizing LifeDive into the latest episodes of Seizing Life, where we explore:

Save the Date for the CURE 2019 Annual Chicago Benefit!

Learn More | Sponsor | Tickets

Seizing LifeMark your calendars: this year’s spectacular CURE 2019 Annual Chicago Benefit is on Monday, November 18!

We’re celebrating the innovative epilepsy researchers whose careers CURE has helped launch for over 20 years. These are the groundbreaking scientists who are helping break open new avenues of investigation in the field of epilepsy research, giving hope to those impacted by the condition, and pushing us closer to a cure.

Our amazing performers for this year’s benefit are Rock and Roll Hall of Famer Nils Lofgren, star of Chicago’s Hamilton Miguel Cervantes, and renowned Chicago-based vocal group Musicality.

California Events: CURE’s Day of Science: Epilepsy Conversations and Epilepsy Awareness Day at Disneyland

Attend Day of Science: Epilepsy Conversations

Broadway Sings for CUREOn Saturday, September 21, people with epilepsy and their caregivers have the opportunity to ask a panel of doctors and researchers their questions during Day of Science: Epilepsy Conversations at the Children’s Hospital of Orange County. At this free event, leading experts will address attendees’ questions on the latest research as it relates to new epilepsy treatment options, surgery, genetics, and more. Also, enjoy small-group discussions with the panelists over lunch.

Day of Science: Epilepsy Conversations is made possible thanks to the generous support of the BAND Foundation, Eisai, and Greenwich Biosciences. This event is also hosted in partnership with the Epilepsy Support Network of Orange County.

Attend Epilepsy Awareness Day at Disneyland

Broadway Sings for CUREPaint the park purple at Epilepsy Awareness Day at Disneyland! On November 4 and 5, join us at the expo to access epilepsy resources while learning about new treatment options and devices. Then head to Disneyland Park on November 6 to enjoy the rides, build lasting friendships, and spread epilepsy awareness.

We’ll announce our fun booth activities soon, so stay tuned!

Upcoming CURE Events

September 21: Day of Science: Epilepsy Conversations – Orange, CA
September 29: Chicago Half Marathon/5K – Chicago, IL
October 7: Real Talk: Speaking Up About Life with Epilepsy – Chicago, IL and Online
November 3: The 2019 TCS New York City Marathon – New York, NY
November 4-6: Epilepsy Awareness Day at Disneyland – Anaheim, CA
November 9: Dressage for a Cause – Batavia, OH
November 18: CURE 2019 Annual Chicago Benefit – Chicago, IL
December 3: #GivingTuesday – Online

View All Upcoming Events

Young students in a classroom raising their hands to answer a question.

CURE Update: Free Epilepsy Events, Resources, and Become a Poptivist!

The summer is coming to a close and for many of us, it’s time to get the kids ready for another school year. As you plan and prepare, be sure to check out our Seizing Life podcast episode on Individualized Education Plans and our webinar on epilepsy’s impact on learning and school performance.

In addition to online resources for parents doing the back-to-school shuffle, we’re thrilled to offer broader educational programming: a two-part webinar series on epilepsy rescue medications, the new CURE epilepsy research news mobile app, and our final Day of Science: Epilepsy Conversations and Live Q&A of 2019. You can find details about all of these programs below, as well as information on…

Rescue MedicationsWebinars and Live Q&As on Epilepsy Emergencies and Rescue Medications

Learn More | Register for Free

This two-part webinar and live Q&A series onAugust 13 and September 10 provides a detailed look at current and future rescue medications and their uses. Whether you’re an individual with epilepsy, parent, caregiver, teacher, or someone who regularly interacts with those impacted by epilepsy, please join us for these important presentations.

This webinar is generously supported by the BAND Foundation.

CURE Epilepsy Research AppDownload the CURE Epilepsy Research News Mobile App

iPhone | Android

The latest epilepsy discoveries are now at your fingertips with the CURE Epilepsy Research News mobile app. The app provides you with studies from investigators and researchers dedicated to building a world without epilepsy.

Never miss an epilepsy discovery! Download the free CURE Epilepsy Research New app today.

New from Seizing Life, a CURE Podcast

Seizing LifeWatch or Listen

Dive into the latest episodes of Seizing Life, where we explore:

Become a CURE Poptivist!

Seizing LifeLearn More | Buy or Design

Display your commitment to finding a cure for epilepsy every time you use your phone with CURE PopSockets! Popsockets are expandable phone grips and mounts you can use to hold your phone, prop it up, and manage your cords.

Become a Poptivist by purchasing or designing a CURE Popsocket. When you do, 50% of sales support our mission to fund cutting-edge research.

Day of Science: Epilepsy Conversations and Live Q&A in Orange County

Broadway Sings for CURELearn More | Register for Free

On Saturday, September 21 ask a panel of doctors and researchers your questions about epilepsy at Day of Science: Epilepsy Conversations and Live Q&A. At this free event, leading experts address your questions on the latest research as it relates to new epilepsy treatment options, surgery, genetics, and more. Also, enjoy small-group discussions with the panelists over lunch.

Day of Science: Epilepsy Conversations and Live Q&A is made possible thanks to the generous support of the BAND Foundation, Eisai, and Greenwich Biosciences. This event is also hosted in partnership with the Epilepsy Support Network of Orange County.