An Update on the Status of Epilepsy Research at CURE

The coronavirus pandemic has been the central force driving all aspects of life since March of this year.  It has changed how we live, how we work, how we interact socially, and how we view the future. As the CEO of CURE, COVID-19 permeates everything thing that I do. From thinking about the safety of my team to the funding of our research grants to the planning of our annual benefit, I am constantly asking myself how do we continue to move forward, because although most aspects of our daily life have stopped amid COVID-19, epilepsy has not.

As the prevalence of coronavirus increased in the US and stay-at-home orders came into force, one of the first things that the CURE team did was reach out to the  grantees that we have currently working on CURE-funded research grants. As the parent of a college-aged student, I knew all too well that most colleges and universities were closing their campuses and access to their facilities. We learned broadly that many research activities at academic institutions have been put on hold or shut down altogether. Fortunately, after speaking with our grantees, we were able to confirm all were able to get permission for access to their laboratories or were able to redirect their work to focus on data analysis so that they could continue their research activities. To-date, none of them have had to abandon their studies.

While this is fantastic news, it does not mean that the pandemic will not have an impact on our research portfolio. For the research underway, there will likely be delays in completion of the work. The delays may range from weeks to months. We are living in unprecedented times with no crystal ball to tell us what the next week, month or year will hold, so we will continue an open and frequent dialogue with our researchers and provide them support where we can.

The pandemic will also have implications upon our future research. We are moving ahead with our planned 2020 research grants. In March the CURE Board of Directors supported funding additional grants, and we continue forward with our current grant cycles focused on our Taking Flight at CURE Epilepsy grants that will be awarded mid-year. We plan on awarding an additional round of grants at the end of 2020. Epilepsy has not stopped, so our research must continue. However, once the grants are awarded, we will have to work with the researchers and their institutions to determine when they will be able to initiate their work and how COVID-19 restrictions will impact their timelines. And very soon, we will need to forecast how the economic environment is impacting our donation revenue so that we can determine the amount of research funding we can support in 2021.

There is still much uncertainty in the environment, but the CURE team is focusing on what we know. Epilepsy is unrelenting, and so are we. We will continue to accelerate research and drive knowledge forward by funding cutting-edge science that will lead us to a CURE. We are grateful for both your past and your future support of our research, especially in these challenging times.

Be well,

Beth Lewin Dean
CEO

A little girl dressed in a white lab coat holding a beaker of cool green liquid.

CURE Update: Activities for Social Distancing

Greetings, CURE community! There is one question on our minds right now: how are you? While we are closely monitoring the COVID-19 pandemic, we want to hear from you about how you’re passing the time, your concerns about epilepsy management, or what information you need. Reach out to our CEO Beth Lewin Dean at CEO@cureepilepsy.org.

Please know that CURE is here, continuing to fight to cure epilepsy and providing news and resources. In this update, find resources and ways that you can get involved while maintaining CDC-recommended social distancing:

COVID-19 and Epilepsy Facebook Live Stream

COVID-19 Facebook Live StreamWatch and Share

On March 18, three experts answered audience question about COVID-19 and epilepsy on Facebook Live. During this live stream, pediatric epileptologist Dr. Douglas Nordli from UChicago Medicine along with neurologist Dr. Jeffrey Loeb and neuroimmunologist Dr. Michael Carrithers, both from the University of Illinois at Chicago, provided their expert insights.

Stay tuned: We will continue to host live online discussions as the situation develops.

Scholarship Deadline: April 15

CURE Scholarship DeadlineLearn More

The deadline to apply for an Education Enrichment Fund (EEF) scholarship of up to $5,000 is April 15. If you or a loved one are impacted by epilepsy and committed to becoming an agent of change in the epilepsy community, we encourage you to apply!

EEF scholarships support coursework in scholars’ chosen career paths, so they can use their knowledge and skills to affect positive change within the epilepsy community. Check our website for full eligibility and application details.

EEF scholarships are made possible by the generous support of Greenwich Biosciences.

Webinar and Live Q&A: The Epilepsy-Autism Connection

Epilepsy and Autism WebinarRegister

Join us for a webinar exploring the link between epilepsy and autism Tuesday, April 28 at 12:00PM CT. Dr. Jamie Capal will dive into leading theories on why these conditions are so frequently connected, discuss common seizure types, and explore how to identify seizures in children and the next steps to take.

Our Leaders in Epilepsy Research Webinar Series is made possible by the generous support of the BAND Foundation.

#CUREkids: Build Your Epilepsy Research Lab!

Mary Fox's Granddaughter, YasyaDownload Coloring Page

The world needs junior investigators to help find a cure for epilepsy…and the #CUREkids are perfect for the job! Have your little one draw, paint, or build their epilepsy research laboratory. Snap a picture to show the CURE Community using #CUREkids on Instagram and Twitter!

CURE Champion Spotlight: Mary Fox Goes the Distance

Mary Fox's Granddaughter, YasyaLearn More

For her 75th birthday, CURE Champion Mary Fox and her friends and family walked, skipped, and swam to support epilepsy research during Move for Yasya! This virtual marathon was a special fundraiser honoring Mary’s granddaughter, Yasya, who has battled epilepsy for two years.

Mary had an ambitious fundraising goal – $1,945 in honor of her birth year. In just one month, this innovative virtual event raised 120% of the goal in support of CURE’s mission to fund ground-breaking epilepsy research!

New from Seizing Life®, a CURE Podcast

Seizing LifeListen or Watch

Catch up on the latest episodes of the Seizing Life podcast where we discuss:

  • How genetic research is directly benefiting epilepsy treatment. Listen or Watch
  • The ways EEGs are used to diagnose, treat, and research epilepsy. Listen or Watch
A digital rendering of the novel coronavirus

Fighting for an epilepsy cure isn’t going anywhere…

As part of the CURE family, we want to let you know that we are here for you. We are closely monitoring the COVID-19 pandemic in the US and beyond to ensure that we are not only protecting our staff but also providing you and the epilepsy community with helpful information and resources. We encourage you to keep a close eye on our Facebook and Twitter accounts for updates, lives streams, and the epilepsy research news we are committed to providing. Plus, we have some wonderful educational and fun content coming soon!

CURE actions:

  • Our staff is not traveling and is working remotely, but we’re still here for you. Please don’t hesitate to reach out to us via email, phone, or social media.
  • We are hosting remote live streams via Facebook about COVID-19 and the implications for the epilepsy community.
  • All in-person CURE events have been cancelled or postponed through the end of May, though we are in the process of developing great ways to engage online!
  • Our webinar series will continue on April 28 with a presentation and live Q&A on The Autism-Epilepsy Connection.
  • Affected CURE-sponsored seminars and conferences for researchers and families alike are being rescheduled for later dates or moved to virtual conferences.

Ways that you can continue the fight for a cure:

Please take a moment and reply to this email to let us know what information you need and who you’d like to hear from. Reach out to us any time! We are always here for you, continuing to fight for a cure.

Be well,

Beth Lewin Dean

Beth Lewin Dean, CEO

CURE Update: Collaborating Toward a Cure

Greetings, CURE community! This month I had the pleasure of attending Purple Day at Disney World. This wonderful event reminded me of the importance of collaboration in achieving a goal.

Curing epilepsy is a team effort involving the patient community, medical professionals, researchers, and advocacy organizations. Every day, we are grateful to have you by our side and to work with partners throughout the field of epilepsy to realize our mission of finding a cure. In this update, learn about our latest advocacy collaboration with the Danny Did Foundation and the Epilepsy Foundation of Greater Chicago.

Beyond Chicago, so many are working to improve the world for those impacted by epilepsy, whether through research, education, or fundraising. In this update, learn about how you and your community can make a difference:

Warmest,

Beth Lewin Dean

Beth Lewin Dean, CEO

Seizure SafetySeizure First Aid Everyone Should Know

Watch and Share

Who needs to be educated on seizure first aid? Everyone. This video, featuring pediatric epileptologist Dr. Linda Laux, discusses basic steps to take when someone is having a tonic-clonic seizure. Share this information with teachers, community leaders, employers, and anyone else you think could benefit from knowing what to do in the event of a seizure.

Seizure Rescue MedsNew Therapies for Seizure Emergencies Now Available

Nayzilam | Valtoco

Two nasally administered seizure rescue medications are now commercially available to patients.

  • Nayzilam® (midazolam nasal spray) (CIV): indicated for the short-term treatment of seizure clusters (also known as acute repetitive seizures) in patients 12 years of age and older. Learn More
  • Valtoco® (diazepam nasal spray): indicated for the short-term treatment of seizure clusters (also known as acute repetitive seizures) in patients 6 years of age and older. Learn More

CURE Scholar SpotlightCURE Scholar Spotlight: Brook Hodegman

Watch

Brook Hodgeman, who was diagnosed with epilepsy as a child, is one of our amazing CURE Scholars determined to become an agent of change in the epilepsy community.

Hear from Brook about how his involvement with the CURE Scholarship program is propelling him toward his dream of becoming a neurologist and epilepsy researcher.

Now accepting applications for 2020! CURE Scholarships are made possible by the generous support of Greenwich Biosciences.

Team CURE#RunLikeAChampion Across the US!

See All Events

Coast to coast, Team CURE is racing toward a future without epilepsy! From marathons to 5Ks, we have races planned across the US in CaliforniaNew YorkIllinois, and beyond this year.

When you race for Team CURE and meet fundraising goals, you’ll receive exclusive swag! Join Team CURE or find out about upcoming races by emailing events@cureepilepsy.org.

1 in 26Chicago: Here’s What 1 in 26 Looks Like

We’ve partnered with the Danny Did Foundation and the Epilepsy Foundation of Greater Chicago to demonstrate just how many people will be impacted by epilepsy in the US. Together we’ve launched ads like the one you see here at Chicago “L” train stations and other city hot spots. When you see one, snap a picture and tag us on Instagram at @CUREepilepsy for a chance to be featured!

Seizing LifeNew from Seizing Life®, a CURE Podcast

Watch or Listen

Catch up on the latest episodes of the Seizing Life podcast where we discuss:

CURE Researcher Update: Exciting Conferences & Opportunities

In this update you will find information on CURE-sponsored conferences and open positions at NINDS. In addition, your input is requested for the following:

Upcoming CURE-Sponsored Conferences

View Conferences

Each year CURE sponsors scientific conferences all around the world. These meetings aim to advance epilepsy research and encourage collaboration. This year we’re thrilled to announce the following CURE-sponsored conferences:

Career Opportunities: NINDS Small Business Program Director and Epilepsy Therapy Screening Program Scientific Project Manager

NINDS has two openings in Bethesda, MD: Small Business Program Director and Scientific Project Manager for the Epilepsy Therapy Screening Program.

The Small Business Program Director will have broad influence regarding highly complex scientific program and policy issues. Learn more about this position.

The Scientific Project Manager for the Epilepsy Therapy Screening Program will help facilitate the discovery and development of new therapeutic interventions for epilepsy. Learn more about this position.

Curing the Epilepsies 2020: Setting Research Priorities – Request for Information Response Deadline February 20

Learn More

Ahead of this pivotal conference, which you can learn more about here, that will be convened to discuss advances in understanding the causes of epilepsy and the paths toward potential cures, NINDS is requesting input from doctors, researchers, impacted patients, and families.

Please use this form to provide perspective on the 2014 Epilepsy Research Benchmarks and share suggestions for new or ongoing research opportunities critical for advancing research toward cures for the epilepsies.

Request for Information on Coordinating Care from Out-of-State Providers for Children with Medically Complex Conditions

Submit Comments

The Centers for Medicare & Medicaid Services (CMS) is requesting comment on coordinating care from out-of-state providers for children with medically complex conditions. Your responses will help inform efforts to craft guidance for state Medicaid directors.

CMS is seeking public comments on:

  • Best practices for using out-of-state providers in coordinating care for children with medically complex conditions
  • How care for such children is coordinated when that care occurs out-of-state
  • Processes for screening and enrolling out-of-state providers, including efforts to streamline these processes or reduce the burden of these processes on such providers and states
Running crowd at the marathon. Many runners passing the start or finish line. Woman in focus.

CURE Update: #EpilepsyDay is Almost Here!

 

Greetings, CURE community! This month we’re joining organizations in over 120 countries in celebrating International Epilepsy Day on February 10. While an estimated 65 million people worldwide are diagnosed with epilepsy, research aimed at finding a cure remains sorely underfunded. Last summer, the World Health Organization released its first global report on epilepsy with the goals of raising public awareness of the critical needs of the epilepsy community, encouraging investment to reduce the burden, and advocating for actions to address gaps in epilepsy knowledge, care, and research.

In this update, you can discover how to support epilepsy research and raise awareness about the need for advances toward a cure. In addition, please find information on:

International Epilepsy Day

#EpilepsyDay: Spread the Word about the Need for a Cure!

Learn More

February 10 is International Epilepsy Day and you can join this global movement to increase awareness about epilepsy and the need for a cure. To celebrate this worldwide event:

Webinar

Webinar and Live Q&A: The ABCs of EEGs

Sign Up

From diagnosis to determining surgical eligibility, EEGs are a critical tool in the field of epilepsy. In our webinar on February 10 at 11:00AM CT, Dr. David Burdette will explain the different types of available EEGs and what patients can expect from each. In addition, he will explore the recent advances in EEG and other neuroimaging technology that have direct, positive impacts on patients.

This webinar is generously supported by the BAND Foundation.

Rock'n'Roll Race Series

#RunLikeAChampion in Rock’n’Roll Races Nationwide!

Team CURE is rocking to support epilepsy research in Rock’n’Roll races across the US. We want you to join us in:

Meet fundraising goals to receive exclusive swag! Join Team CURE by emailing events@cureepilepsy.org.

Seizing Life

New from Seizing Life®, a CURE Podcast

Watch or Listen

In honor of International Epilepsy Day, we’re launching a globally focused episode of the Seizing Life podcast next week! Catch a sneak peek now.

Plus, catch up on the latest episodes where we discussed:

  • Advances in rescue therapies to manage seizure clusters.
    Learn More
  • How former NFL star and broadcaster Mike Adamle and his wife, Kim, manage his post-traumatic epilepsy and CTE symptoms.
    Learn More
Setting Research Priorities

Curing the Epilepsies 2020: Setting Research Priorities

Submit Your Response

When CURE was founded in 1998, Susan Axelrod and the other founding mothers were frustrated by the lack of research addressing why their children’s seizures could not be stopped, what caused their epilepsy, and why answers did not exist. These mothers challenged the research community to focus on finding cures and worked to establish the first National Institute of Health (NIH) conference centered around curing epilepsy. Since that first meeting, held in March of 2000 and initiated by the Clinton White House, CURE has continued to play a pivotal role in the sequels to this conference and now is instrumental in gearing up for the next iteration.

You can help set these priorities. NIH is looking for patients, caregivers, and advocates to lend their voices in deciding the future of epilepsy research. Discover how you can make comments or suggestions here.

Ella and her mother running among friends all wearing purple shirts at Ella's Race in 2019

CURE Update: Kicking off 2020

As we enter 2020, the team at CURE wants to thank you. We want to thank you for your support through donating, fundraising, and participating in community events and programming. You truly give us hope – hope that together, we will build a world without epilepsy.

Because of your support in 2019, we will continue to push science forward by funding cutting-edge studies. In fact, you can see the latest innovative projects we’re funding in the areas of Sudden Unexpected Death in Epilepsy (SUDEP), genetics, status epilepticus, and beyond here.

This year promises to be filled with novel research and exciting programming from CURE. Below you can find information about some of our 2020 programming, and of course, the latest from the Seizing Life podcast.

Education Enrichment Fund ScholarshipApply for a CURE Scholarship Before April 15

Learn More

We want to empower you become an agent of change for the epilepsy community by helping to fund your education! Applications are open for Education Enrichment Fund (EEF) scholarships of up to $5,000.

EEF scholarships support coursework in scholars’ chosen career paths, so they can use their knowledge and skills to become agents of change in the epilepsy community. This one-time scholarship is awarded to those living with epilepsy or to family members and caregivers of those impacted by epilepsy.

EEF scholarships are made possible by the generous support of Greenwich Biosciences.

Ella's Race#RunLikeAChampion in 2020

Contact Us

Race toward a world without epilepsy in 2020 by joining Team CURE! Whether you participate in a race that we’re an official charity partner with or represent CURE in a local run, you can move science closer to a world without epilepsy.

Join our nationwide team of CURE Champions who are dedicated to raising awareness and vital funds for epilepsy! Contact our Outreach Team today.

Seizing LifeNew from Seizing Life®, a CURE Podcast

Watch or Listen

Our recent episode of Seizing Life is filled with leading epilepsy experts discussing medical advances and the future of research at Epilepsy Awareness Day at Disneyland. Tune in to learn about:

If you’re new to Seizing Life or catching up on the podcast, be sure to check out our Best of 2019 episode!

CURE 2019 Grantees

Announcing the CURE 2019 Grantees!

We are delighted to announce the recipients of our 2019 CURE grants! These grants are awarded for novel research projects that address finding cures for epilepsy and address the goal of “no seizures, no side-effects.” Read on to learn about the innovative projects our Taking Flight Award, CURE Epilepsy Award, and Post-Traumatic Epilepsy (PTE) Initiative grantees will pursue.

Taking Flight Award Grantee – $100,000 for one year

This award seeks to promote the careers of young epilepsy investigators, allowing them to develop a research focus independent of their mentors.

Bin Gu, PhDBin Gu, PhD
University of North Carolina at Chapel Hill

Dr. Gu and his team will focus on identifying genes that increase how susceptible patients are to Sudden Unexpected Death in Epilepsy (SUDEP) using a unique resource, genetically diverse mice. The team also plans to use genetic and electrophysiological techniques to understanding the physiological changes that can trigger SUDEP.

Learn More

CURE Epilepsy Award Grantees – $250,000 for two years

This award reflects CURE’s continued focus on scientific advances that have potential to truly transform the lives of those affected by epilepsy.

Heather Mefford, MD, PhDHeather Mefford, MD, PhD
University of Washington

Dr. Mefford and her team will explore if a process called “abnormal methylation” is a cause of severe pediatric epilepsy syndromes known as developmental and epileptic encephalopathies (DEE). Abnormal methylation is a type of chemical DNA modification and occurs in many patients with DEE. While this process is a known cause for some neurological disorders, it hasn’t been studied much as a cause of epilepsy. In the future, the team will perform additional studies to understand why certain methylation changes can lead to epilepsy, developing clinical tests to diagnose affected individuals.

Learn More

Nicholas Varvel, PhD

Nicholas Varvel, PhD
Emory University

Dr. Varvel and his team will focus on status epilepticus (SE) – a neurological emergency in which a person has multiple seizures in a row without returning to consciousness. Previously, the team identified that a blood-borne immune cell called a monocyte invades the brain after seizures and contributes to damage and inflammation. Dr. Varvel and his team now plan to use a drug to block monocyte entry in mouse brains after SE. Ultimately, they want to determine if this approach is feasible in humans to relieve detrimental effects of seizures.

Learn More

Nicholas Varvel, PhD

Christopher Reid, PhD
Florey Institute, Australia

Dr. Reid and his team will work to identify key SUDEP risk factors by develop new rodent models which replicate having both epilepsy and a genetic heart abnormality. This research is based on evidence suggesting that a combination of epilepsy and changes in genes associated with heart conditions may increase SUDEP risk. The team will compare their models to understand if the rate of SUDEP is higher relative to existing models.

Learn More

Post-Traumatic Epilepsy Initiative Grantee

This Initiative is a team science, multi-disciplinary program designed to expand knowledge around the types of injuries which predispose the brain to epilepsy and develop new models to study epilepsy resulting from injury.

Bin Gu, PhDPavel Klein, MD
Mid-Atlantic Epilepsy and Sleep Center

Dr. Klein and his team plan to address the current inability to predict who will go on to develop PTE following a traumatic brain injury by examining a group of high-risk patients with a greater chance of developing PTE. The team will search for biomarkers in patients’ EEG signatures, MRIs, or blood which can be used to predict who is at an increased risk of developing PTE. By finding ways to identify the individuals most at risk, the team hopes to pave the way for the development of therapies to prevent PTE. With the addition of Dr. Klein and his team, CURE’s Post-Traumatic Epilepsy Initiative now encompasses 6 investigative teams and over 40 researchers to tackle post-traumatic epilepsy.

Learn More

A blond woman cradles her infant in her arms, trying to soothe them.

CURE Update: December 2019

Season’s Greetings! The holidays are a time for review and reflection. For us at CURE, this past year has been full of incredible accomplishments. We have once again been on the forefront of groundbreaking epilepsy research in areas such as Sudden Unexpected Death in Epilepsy (SUDEP)Post-Traumatic Epilepsy (PTE), and genetics, we have provided robust educational programming, and we have delivered dozens of engaging events which empower patients and families to advocate for themselves to doctors and within their communities. But none of this would have been possible without you.

The holidays are also a time for giving. Your continued dedication and support are essential for CURE to continue funding vital epilepsy research. We ask you to give today, so together we can achieve a world without seizures. And, thanks to a generous donor, all new and increased gifts made before January 1, 2020 will be matched, doubling your impact.

As you read through the updates below, please remember that your gift makes this all possible.

Infantile Spasms Awareness WeekIt’s Infantile Spasms Awareness Week: Raise Awareness with These Resources

Learn More

Infantile spasms (IS) is a medical emergency. Quick diagnosis and treatment of this severe form of pediatric epilepsy is vital to reduce the neurological impact these seizures can have on babies. However, getting a child appropriate care during the critical time when the seizures first begin is a challenge. The movements can be subtle, and doctors and parents alike often don’t know what IS looks like.

During Infantile Spasms Awareness Week, we encourage you to learn more about how to identify IS and share these video resources with your community.

Education Enrichment Fund ScholarshipApply for a CURE Scholarship Starting December 15

Learn More

CURE is helping scholars become agents of change for the epilepsy community with Education Enrichment Fund (EEF) scholarships of up to $5,000! We will begin accepting applications on Sunday, December 15.

EEF scholarships support coursework in scholars’ chosen fields, so they can use their knowledge and skills to become agents of change in the epilepsy community. This one-time scholarship is awarded to those living with epilepsy or to family members and caregivers of those impacted by epilepsy.

EEF scholarships are made possible by the generous support of Greenwich Biosciences.

Shop to Support ResearchFund Research with Your Holiday Shopping

Shop

Whether you purchase gifts for loved ones through Amazon Smile, snag a bag of Adelaide’s Blend coffee, or pick up a copy of the amazing book A Mind Unraveled, your holiday shopping can fund innovative epilepsy research!

Discover all the ways you can shop for a cure here.

Seizing LifeNew from Seizing Life®, a CURE Podcast

Watch or Listen

Dive into the latest episodes of Seizing Life, where we explore:

  • Understanding epilepsy research to empower your conversations. Watch or Listen
  • Establishing your “new normal” after developing epilepsy. Watch or Listen
  • Infantile spasms and what to do if you suspect your child has them. (Rebroadcast) Watch or Listen

CURE Update: It’s Epilepsy Awareness Month!

In 2003, Congress passed a formal resolution declaring November as Epilepsy Awareness Month to end the stigma surrounding epilepsy and bring attention to this condition. Epilepsy is the fourth most common neurological disease in the US, however it is much less understood and receives significantly less funding than other neurological diseases. Take advantage of this month to talk about epilepsy – to a friend, to a colleague, to a family member.

Throughout this month, we’ll be posting videos and articles on FacebookTwitter, and Instagram for you to share to spread awareness about living with epilepsy. In addition, our exciting My Shot at Epilepsy Raffle (which you can read about in this update) will raise funds to support CURE’s work while giving you the chance to attend the final Chicago Hamilton performance LIVE!

And there is more to share. In this update, please find information about:

Don’t Throw Away Your Shot to see the FINAL Hamilton Performance in Chicago!

Enter Now

The final Hamilton performance in Chicago is on January 5, and with our My Shot at Epilepsy Raffle, you have the chance to see it LIVE! The winner will receive two tickets to this amazing night, delicious meals at the restaurants of celebrity chefs Rick Bayless and Stephanie Izard, travel to and accommodations in Chicago, and more.

Don’t be stuck asking “what’d I miss?” Donate here to secure your raffle entries today!

Your Donations Go Twice as Far on #GivingTuesday

Learn More#GivingTuesday

#GivingTuesday is a global movement happening on December 3 that harnesses the generosity of millions to support causes dear to them. It’s a chance to give back and know that CURE is grateful you as part of a community who recognizes and supports us.

The best part is that you can double your impact on December 3 thanks to a generous donor who will match every dollar raised up to $25,000!

Join the movement by creating a Facebook Fundraiser and getting your friends involved or by donating on #GivingTuesday through the CURE website.

#RunLikeaChampion: Team CURE Raises over $100,000 for Research in its Inaugural Year

Join Team CURETeam CURE

This year Team CURE raced onto the running scene to support vital epilepsy research. These dedicated CURE Champions raised over $100,000 from neighborhood fun-runs, 5k races, and marathons.

We are incredibly grateful to all our runners and to everyone who came out to support them. Thinking about joining Team CURE? Contact our Outreach Team at Events@CUREepilepsy.org and be sure to stay tuned for details on the exciting 2020 Team CURE schedule, featuring races across the country!

New from Seizing Life, a CURE Podcast

Watch or ListenSeizing Life

Dive into the latest episodes of Seizing Life, where we explore:

  • Rebroadcast: In honor of the book A Mind Unraveled launching in paperback, listen to one of our first episodes featuring Kurt Eichenwald.
  • Rebroadcast: For SUDEP Action Day, we shared a very important episode all about SUDEP.

This podcast is available on Apple Podcasts, Spotify, and anywhere you like to listen!

Be Inspired at the 2019 Annual Chicago Benefit

Learn More | Sponsor | TicketsSeizing Life

Join us on Monday, November 18 as we honor children whose lives have been touched by epilepsy and the researchers who propel us toward a cure.

By supporting the Annual Chicago Benefit, you’ll fuel vital research that will drive us toward a world without epilepsy and seizures.

Upcoming CURE Events

November 9: Dressage for a Cause – Batavia OH
November 18: CURE 2019 Annual Chicago Benefit – Chicago, IL
December 3: #GivingTuesday – Online

View All Upcoming Events