CURE Update: New Epilepsy Podcast and Ways to Champion Research

Dr. Laura LubbersThe new year always sparks renewed motivation in the fight against epilepsy, but 2019 also brings a new way to increase awareness and understanding: Seizing Life, a CURE podcast!

Released weekly, Seizing Life is hosted by CURE Board Member Kelly Cervantes. Episodes feature interviews with members of the epilepsy community on topics including creating individualized education plans, how raising special needs children can impact a marriage, and epilepsy genetics.

Seizing Life launches later this month. You can watch the trailer and read more about this exciting new podcast below.

Also in this update…

  • Raise Epilepsy Awareness and Funds for Research as a CURE Champion!
  • CURE Scholar Derek Vielhauer on How His Scholarship Is Helping Him Become an Agent of Change

Best regards,

Laura S. Lubbers, PhD

Seizing Life, a CURE Podcast, Launches This Month!
Seizing Life, a weekly CURE podcast hosted by CURE Board Member Kelly Cervantes, brings you inspirational and helpful stories from those impacted by epilepsy. Kelly interviews patients, advocates, caregivers, and medical professionals to bring the critical need for epilepsy research to the forefront, while teaching empathy and inspiring hope.

Check out a sneak peek of Seizing Life:

The podcast launches later this month and will be available on iTunes, Google Play, and other major podcast platforms. You can follow Seizing Life on Facebook, Twitter, and Instagram.

Learn More and Subscribe for Updates

Raise Epilepsy Awareness and Funds for Research as a CURE Champion!
Use your unique talents to host a CURE Champion event or campaign! As a CURE Champion, you will bring fun, enthusiasm, and awareness to your community, while raising vital funds for groundbreaking research.

Getting started is easy…

  • Decide what your event or campaign will be. You can host a dance class, art exhibition, 5K run, bake sale, or online birthday fundraiser. Be creative!
  • Set up a fundraising page. Your page can be on our platform, Facebook, or your own website.
  • Tell CURE about your event. We’re here to help by promoting your event online and by providing you with promotional materials. Please reach out to us at events@CUREepilepsy.org or 312.255.1801.
  • Spread the word! Use social media, email, and word-of-mouth to let your community know about your event. Share why raising funds for epilepsy research is so critical and encourage people to join you as an attendee, donor, sponsor, or volunteer!

Become a CURE Champion

Have an idea, but aren’t sure how to get started? Our Development Team would love to hear it and help! Reach out to events@CUREepilepsy.org or 312.255.1801.

CURE Scholar Derek Vielhauer on How His Scholarship Is Helping Him Become an Agent of Change
Each year, CURE is pleased to offer Education Enrichment Fund (EEF) scholarships, made possible by the generous support of Lundbeck, to those impacted by epilepsy, their families, and their caregivers.

In 2018, we awarded one of these $5,000 scholarships to Arizona State University (ASU) student Derek Vielhauer, who was diagnosed with epilepsy as an infant. He says epilepsy defined the first seventeen years of his life, but also gave him a passion for advocacy and research.

“With this generous scholarship, I have been able to continue working towards my dream of graduating with a Bachelor of Science and Engineering in biomedical engineering. In addition to researching methods to address neural deficits at ASU, I am collaborating with a neurosurgeon at Mayo Clinic and with an ASU neural engineer to develop innovative medical technology for patients suffering from neuro-diseases.

“I could not do this without the financial support the CURE EEF scholarship has provided me. This scholarship allows me to continue pushing forward through the rigorous engineering program without the financial worries which would exist otherwise.”
– Derek Vielhauer

You could become one of our 2019 EEF scholars. We’re accepting applications until April 15, 2019. For details regarding eligibility requirements, please click here or contact CURE at scholarship@CUREepilepsy.org.

Now Accepting Applications for the CURE Education Enrichment Fund Scholarship

You could receive up to $5,000 toward your education through the CURE Education Enrichment Fund Scholarship, funded by the generous support of Lundbeck. We’re accepting applications now through April 15, 2019.

These one-time scholarships are awarded to those living with epilepsy or to family members and caregivers of those impacted by epilepsy. The scholarships support coursework aiming to advance personal knowledge in epilepsy research, health education, awareness, and/or advocacy.

Learn More or Apply Online

Questions? Please reach out to us at scholarship@cureepilepsy.org.

CURE Update: Scholarships, Infantile Spasms Resources, and Giving Opportunities

As 2018 draws to a close, CURE is looking ahead toward the future of epilepsy research.

This week, we were proud to announce our 2018 grant recipients at the American Epilepsy Society Meeting. Their innovative projects range from using cutting-edge technology to control the precise moment inhibitory neurons fire to identifying the origin of seizures by analyzing DNA fragments in the blood. These novel studies aim to enhance our understanding of epilepsy and develop treatments with the goal of “no seizures, no side effects.”

Ensure our mission continues: join a generous donor who will match all new and increased donations made before December 31 up to $250,000, by making your year-end gift today. Read more about the matched donation below or make a gift here.

Also in this update…

Best regards,

Laura S. Lubbers, PhD

Starting December 15 – Apply for a $5,000 Scholarship!

Mark your calendars! We’re accepting applications for the 2019 Education Enrichment Fund (EEF) scholarship starting December 15. The application deadline is April 15, 2019. The EEF scholarship covers up to $5,000 of the recipient’s tuition, books, and any other course-required materials.

Made possible by generous support from Lundbeck for the fourth year, this one-time scholarship is awarded to those living with epilepsy or to family members and caregivers of those impacted by epilepsy. The scholarship supports coursework aiming to advance personal knowledge in epilepsy research, health education, awareness, or advocacy.

For details regarding eligibility and requirements, click here.

Questions? Please reach out to us at scholarship@cureepilepsy.org.

One Donation, Double Impact: Your December Gift will be Matched!

Matched DonationThis giving season, a single gift can make an even bigger difference in the fight against epilepsy. A generous donor will match all new and increased donations made in December up to $250,000.

CURE is working to find a cure for epilepsy by remaining laser-focused on research. Help save and transform millions of lives through research with your doubled year-end donation.

Your gift to CURE is 100% tax deductible.

Donate Now

It’s the Final Day of Infantile Spasms Awareness Week: Share These Resources

Infantile spasms appear subtle but can have devastating consequences for children. Primary care doctors and parents alike are often not familiar with the signs and symptoms of infantile spasms, so many children don’t receive treatment during the critical window following the emergence of symptoms.

Learn the signs of infantile spasms and what to do if you detect them from this video by the Brain Recovery Project, created on behalf of the Infantile Spasms Action Network:

Sadly, even with timely medical intervention, many infants do not respond to available treatments for infantile spasms, giving these children a dire prognosis.

More research on infantile spasms and the development of new treatments is critical. We encourage you to share this video with friends and family to help them better understand this need:

To learn more about infantile spasms, head to our FAQ.

How Your Holiday Shopping Can Support Epilepsy Research

Whether you’re wrapping up your holiday shopping or just getting started, your online purchases can help fund epilepsy research.

When you click here, Amazon will donate 0.5% of your eligible purchases to CURE at no cost to you. Bookmark and shop at smile.amazon.com this holiday season to make your gifts extra special!

In addition to AmazonSmile, you can support epilepsy research and find the perfect gifts for friends and family through other organizations, such as Giftfluence.

Looking to give a book-lover the gift of awareness? Consider giving A Mind Unraveled and VOICES from the HEART!

A Mind Unraveled, a critically-acclaimed memoir by New York Times Best Selling author Kurt Eichenwald, is an inspiring book that tackles epilepsy stigma head-on. 50% of royalties from A Mind Unraveled benefit CURE. In Louis Stanislaw’s VOICES from the HEART, you’ll find 30 essays from people impacted by epilepsy exploring the challenges, triumphs, and truths about living with this condition. 50% of sales from VOICES from the HEART benefit CURE.

Shop to Help Fund Research

New CURE-Funded Research Projects

Announcing the next round of promising epilepsy research projects funded by the CURE Taking Flight and Innovator Awards! Read on to learn about our latest grantees and their studies.

CURE grants support both early-career and seasoned investigators whose projects are at the forefront of epilepsy research. The grantees’ promising projects aim to find the cures for epilepsy and address the ultimate goal of “no seizures, no side-effects.”

Taking Flight Grantees – $100,000 for 1 year

Jennifer Gelinas, MD, PhD
Columbia University Medical Center 

Treating focal epilepsy is difficult due to the condition’s unpredictability. To identify brain regions at risk of becoming epileptic and provide targets for novel therapeutics, Dr. Gelinas and her team will leverage new technology to acquire high-resolution “maps” of neural networks in animals with progressive focal epilepsy.

Learn More

Juliet Knowles, MD, PhD
Stanford University
Supported by the generosity of the Ravichandran
Foundation

Dr. Knowles and her team will explore the potential role of white matter in the brain (myelin) in seizure development. The project will determine if seizures cause myelin abnormalities, as well as if abnormal myelin contributes to the development of epilepsy and associated cognitive impairment. This work may help pinpoint new therapeutic targets for absence and other forms of epilepsy.

Learn More

Tristan Shuman, PhD
Icahn School of Medicine at Mount Sinai 

Dr. Shuman’s previous work shows that cells which inhibit neuronal activity turn on at the wrong times in mice with epilepsy. Using state-of-the-art technology, Dr. Shuman and his team will make inhibitory cells fire at the correct times to see if this can reduce seizures and improve memory. This study could lead to new treatment options based on correcting the firing patterns of inhibitory cells.

Learn More

Lakshmi Subramanian, PhD
The Regents of the University of California at San Francisco

Focal Cortical Dysplasia (FCD) is a brain malformation which stems from genetic mutations and leads to epilepsy in children. To understand how FCD develops, Dr. Subramanian and her team plan to explore how genetic mutations lead to the malformations associated with seizures. The study aims to help discover new drug targets and therapeutic interventions.

Learn More

Innovator Award Grantee – $50,000 for 1 year

Jozef Gecz, PhD
University of Adelaide, Australia 

Seizures may cause neurons and supporting cells to die at a much higher rate in a person with epilepsy than in a person without epilepsy. Evidence suggests that dying brain cells cause small amounts of DNA fragments called cfDNA to make their way into blood circulation. Dr. Gecz and his team will investigate genetic causes of epilepsy by isolating cfDNA from patients’ blood in the hours after a seizure.

Learn More

 

#MugsForAdelaide

CURE Update: Stand Up for Epilepsy Research and Awareness

Greetings from the Epilepsy Awareness Expo at Disneyland Resort!

With so many events around the country happening now for Epilepsy Awareness Month, I want to take a moment to express my gratitude to you, the incredible epilepsy community. You helped raise a record-breaking $2.3 million for CURE’s 20th Anniversary Benefit! With your support, we will continue driving epilepsy research forward.

Though the Benefit is over, Epilepsy Awareness Month events and campaigns, such as CURE’s webinar on epilepsy and stigma, #GivingTuesday, and the #MugsForAdelaide giveaway, are bringing epilepsy and the need for a cure into the spotlight. Read on to learn more about these events.

Also in this update…

Best regards,

Dr. Laura Lubbers, PhD

Laura S. Lubbers, PhD

Free Webinar on Separating Stigma from Truth: Epilepsy Research and Resources

Dive into the science of epilepsy stigma and gain tools to combat harmful stereotypes during CURE’s free webinar, Separating Stigma from Truth: Epilepsy Research and Resources. This free webinar and live Q&A is happening Wednesday, November 28 at 11:00am CT.

Learn what research reveals about public attitudes and beliefs towards epilepsy, as well as how likely people with epilepsy are to encounter stigma. Ann Jacoby, PhD, reviews how negative stereotypes affect quality of life and discusses what communities can do to reduce epilepsy stigma.

Bring your questions for the live Q&A! You can ask Dr. Jacoby questions, such as:

  • What should I do if I believe I’m being discriminated against due to my epilepsy?
  • What resources are available to help me or my child talk more openly about epilepsy?
  • What difference is there in how epilepsy affects people from differing cultures or social statuses?

Learn More or Register Now

On #GivingTuesday, Show the World How Much Epilepsy Research Funding Means to You

#GivingTuesdayGet ready to join the #GivingTuesday movement on Tuesday, November 27! Show the world why epilepsy research matters to you by giving to CURE, posting to social media with the hashtag “#GivingTuesday”, and asking your friends and family to do the same.

Plus, double your #GivingTuesday impact by starting a Facebook fundraiser! Facebook and PayPal are matching up to $7 million dollars in donations made on Facebook for #GivingTuesday. Start your Facebook fundraiser on November 27 and get your Facebook friends involved.

Learn how to start your Facebook fundraiser

How Your Holiday Shopping Can Support Epilepsy Research

Did you know your Black Friday and Cyber Monday shopping could help fund epilepsy research? When you click here, Amazon will donate 0.5% of your eligible purchases to CURE at no cost to you. Be sure to click the link, then shop on smile.amazon.com this holiday season!

In addition to AmazonSmile, you can support epilepsy research and find the perfect gifts for friends and family through other organizations, such as Giftfluence.

Discover how to shop and give

Give the Gift of Awareness: A Mind Unraveled, a Memoir by Kurt Eichenwald, is Available Now

A Mind Unraveled ReviewA Mind Unraveled, the latest book from New York Times bestselling author Kurt Eichenwald, reveals everything about his experiences living with epilepsy. The goal of this book is not only to show those with epilepsy they can accomplish what they want in life, but also to educate the general public about epilepsy, tackling the stigma head-on.

A Mind Unraveled discusses what onlookers should do when someone has a seizure, the risk of SUDEP, terrible potential side effects of antiepileptic drugs, and what forms epilepsy stigma and discrimination can take.

50% of the royalties from A Mind Unraveled support CURE’s mission to find a cure for epilepsy. This holiday season, purchase a copy for your friends and family to spread epilepsy awareness and fund vital research.

Learn More or Purchase A Copy

Chicago: Enter to Win a HAMILTON VIP Experience and Spread Epilepsy Awareness

#MugsForAdelaideEnter the #MugsForAdelaide giveaway for the chance to win two tickets to the Chicago production of HAMILTON, as well as a backstage tour with Miguel Cervantes!

Chicago businesses are serving Adelaide’s Blend coffee during Epilepsy Awareness Month to spread awareness around the critical need for a cure. This coffee is named in honor of Adelaide Cervantes, daughter of HAMILTON Chicago star Miguel Cervantes and CURE board member Kelly Cervantes. Adelaide has infantile spasms, a rare and severe form of epilepsy.

Fairgrounds Coffee, creator of Adelaide’s Blend, donates 20% of the proceeds from the sales of this coffee to CURE.

Learn More

Don’t live in Chicago, but want your own bag of Adelaide’s Blend? Order your coffee online.

Today: Join Us for Epilepsy Awareness Day at Disneyland Resort

Let’s paint Disneyland purple at Epilepsy Awareness Day at Disneyland Resort! This family-friendly event happening today, November 7 unites epilepsy patients, families, doctors, researchers, and organizations.

Head to Disneyland Park to enjoy the rides, build lasting friendships, and spread epilepsy awareness.

Next CURE Events

Epilepsy Awareness Day at Disneyland Resort – November 7

1:26 The Art of Epilepsy Art Show and Wine Tasting in San Francisco – November 10

Speaking of Seizures Poetry Slam – November 10

Understanding and Coping with the Risks of SUDEP – November 15

Walk With Me Art Exhibition – November 24

Webinar on Separating Stigma from Truth: Epilepsy Research and Resources – November 28

Virginia Tech Team

Virginia Tech Leads $2.6 Million Study of Brain Trauma, Epilepsy Connection

Featuring the work of CURE Grantee, Dr. Harald Sontheimer

Virginia Tech is launching a $2.6 million study to determine if traumatic brain injuries can cause changes within the brain that lead to epilepsy.

Funded by the nonprofit Citizens United for Research in Epilepsy (CURE) and the U.S. Department of Defense, the three-year study seeks to identify the root causes behind why a person may develop epilepsy after he or she has suffered brain trauma, including sports-related concussion and focal contusion injuries.

Five Virginia Tech groups are heading the study: The School of Neuroscience, part of the College of Science; the Virginia Tech Carilion Research Institute (VTCRI); the Virginia-Maryland College of Veterinary Medicine; and the College of Engineering. All of the research leaders have wide experience in brain injury and neurological disorders.

Epilepsy Awareness Day at Disneyland

Disneyland to Host Sixth Annual Epilepsy Awareness Day

The sixth annual Epilepsy Awareness Day will be held at Disneyland Resort from November 5 – 7, 2018. Epilepsy Awareness Day at Disneyland was founded out of one family’s thankfulness for their young daughter’s recovery and a community-wide passion for the fight against epilepsy. Now, the event is held every year in November (Epilepsy Awareness Month) for epileptic patients and their families to enjoy Disneyland Resort and spread awareness.

Epilepsy Awareness Day at Disneyland is an annual event operated by the Irvine based nonprofit foundation Sofie’s Journey/Epilepsy Awareness Day. “We wanted to create an opportunity to drive epilepsy awareness, with awareness the key to overcoming challenges created by epilepsy,” stated Candy Levy, the non-profit’s cofounder, in a press release for the 2017 event. “At our event we bring together patients, physicians, advocates, non-profits, services, pharma and [in 2017] we had a large section of the convention facility for people to meet their possible and future service dogs.”

Sofie’s Journey, the organization behind Epilepsy Awareness day at Disneyland, began with Sofie Levy, who had her first seizure at 5 years old. For years, her seizures intensified, until she finally underwent surgery to remove the part of the brain that was the source of her seizures. Since her surgery over nine years ago, Sofie has been seizure-free. She is now finishing high school and is studying neurodiagnostics, so that she can soon be working as an EEG Tech. Sofie’s story inspired the Levy family to start Epilepsy Awareness Day, as well as their own private family business, an in-home EEG monitoring service, catering to kids and adults specializing in Autism & Epilepsy.

Over 2,000 people and 100 support groups worldwide are expected to attend this year’s Epilepsy Awareness Day at Disneyland. This year, Epilepsy Awareness Day at Disneyland is partnering with International League Against Epilepsy and working with international and national leaders, including The Danny Did Foundation, Epilepsy Foundation, and Citizens United for Research in Epilepsy, for their commitment in uniting the world’s epilepsy communities.

This year’s Epilepsy Awareness Day at Disneyland also includes a three-day expo held at the Disneyland Hotel. The is free to attend and will feature information booths hosted by various organizations and individuals including nonprofit organizations, Epilepsy centers, service dogs, seizure device apps, and other services. Throughout the expo, guests can attend a variety of talks hosted by Epilepsy physicians and specialists from renowned hospitals and organizations. Attendees can even partake in special Disneyland Resort character photo opportunities throughout the weekend. For more information in the event schedule, visit the website here.

Each attendee who purchases a Disneyland park ticket through the Epilepsy Awareness Day website will receive a Participation Pack, which includes an event t-shirt, lunch bag cooler, commemorative magnet, and other souvenirs. Disneyland annual passholders who participate in the event can donate $25 to receive a Participation Pack. Disneyland park tickets for this event will be sold through Saturday, November 3.

Announcing the 2018 Post-Traumatic Epilepsy Initiative Grantees

Announcing the grant recipients in CURE’s Post-Traumatic Epilepsy Initiative! Read about this team’s innovative projects below:

Post-traumatic epilepsy (PTE) is a frequent and debilitating complication of traumatic brain injury (TBI). Over 40% of combat troops who suffer severe TBI will develop PTE.

Having secured a $10 million grant from the US Department of Defense, CURE has launched an unprecedented Post-Traumatic Epilepsy Initiative. This initiative is a team science, multi-disciplinary program that will expand the knowledge around the types of injuries that predispose the brain to epilepsy, as well as a develop new models to study epilepsy that results from injury.

Meet CURE’s pioneering Post-Traumatic Epilepsy Initiative team:

Victoria E. Johnson, MBChB, PhD

University of Pennsylvania

Dr. Johnson will characterize the relationship between the detrimental neural changes which can follow TBI and the development of PTE. These changes include chronic leakage of the blood-brain barrier, neuronal degeneration, and gliosis. The research team will utilize tissue from humans following TBI, as well as novel models of TBI.

Learn More

Harald Sontheimer, PhD

Virginia Tech

Dr. Sontheimer and his team of collaborators have identified the need for additional animal models of PTE. The team’s hope is that identifying alternative animal models will lead to the discovery of new PTE biomarkers and, eventually, to novel treatments. To identify new animal models, Dr. Sontheimer’s team plans to investigate how TBI leads to PTE in a new mouse model compared to an established one.

Learn More

Kevin Staley, MD

Harvard Medical School

Dr. Staley will test if changes in the brain’s neuronal support system after TBI alter the balance of inhibitory and excitatory neurotransmission. His team is also set to explore why PTE following TBI is often difficult to treat. Using highly innovative imaging techniques, Dr. Staley aims to provide new insight into how PTE develops and new methods to identify high-risk patients.

Learn More

Kevin Wang, PhD

University of Florida

Dr. Wang has developed a robust rat model of penetrating TBI to understand how this type of injury can lead to PTE. His team will compare rats that develop PTE to those that do not. The goal is to uncover the unique chemical and molecular processes which lead to PTE following a penetrating TBI. These findings could provide new areas of focus and potential biomarkers for developing treatments.

Learn More

Day of Science

CURE Update: Spread Epilepsy Awareness Online and In-Person

Coming soon: November is Epilepsy Awareness Month. By participating in events online and in-person, you can spread awareness about the critical need for epilepsy research.

Ahead of Epilepsy Awareness Month, let your friends and family know how important epilepsy research is by taking part in social media campaigns, such as SUDEP Action Day. Or, attend in-person events such as Epilepsy Awareness Day at Disneyland Resort and CURE’s Day of Science in Raleigh-Durham and Miami.

Also in this update…

Best regards,

Dr. Laura Lubbers, PhD

Laura S. Lubbers, PhD

Spread the Word About the Critical Need for Research on SUDEP Action Day

SUDEP Action DaySUDEP Action Day on October 23 strives to raise awareness worldwide about Sudden Unexpected Death in Epilepsy. SUDEP occurs when a seemingly healthy person with epilepsy dies for no known, obvious reason and is perhaps the most devastating possible consequence of epilepsy.

Funding research to discover what causes SUDEP is vital to preventing it. Be a part of a growing movement driving research, awareness, advocacy, and increased funding to tackle this problem.

Learn How to Get Involved

Discover the Real Risks and Benefits of Cannabidiol During a Free Webinar

The uses and risks of treating epilepsy with cannabidiol (CBD) has been a controversial yet exciting discussion in the epilepsy community. Discover what the latest research says about epilepsy and CBD in our upcoming webinar Cannabidiol and Epilepsy: The Real Risks and Benefits on Wednesday, October 24 at 1:00PM CT.

This webinar explores why CBD can be an effective treatment for certain types of epilepsy, what risks are associated with CBD, and what the FDA approval of the CBD-based drug Epidiolex means for the future of epilepsy research and treatment.

Pediatric neurologist Anup D. Patel, MD, will lead the presentation and address your questions in a live Q&A. You can ask Dr. Patel questions, such as:

  • Are all CBD products effective for the treatment of epilepsy?
  • What side effects can result from taking CBD products, such as Epidiolex?
  • Could CBD make my seizures worse?

Learn More or Sign-Up Now

Enter to Win A Mind Unraveled, a Memoir by New York Times Bestselling Author Kurt Eichenwald

A Mind UnraveledIn A Mind Unraveled, Kurt Eichenwald tells his raw and inspirational story about pursuing dreams while living with uncontrolled epilepsy.

Stigma and ignorance about epilepsy among medical professionals, school administrators, and employers threatened Eichenwald’s physical and emotional well-being for decades. In this memoir, Eichenwald details how he used these challenges to create a guide for reaching the future he desired.

A Mind Unraveled is available for preorder and hits shelves on October 16, but you can enter now to win a free copy.

A Mind Unraveled left me overwhelmed and speechless. Eichenwald’s story is breathtaking: devastation and inspiration all under one cover.” – Susan Axelrod, Founder, CURE

Enter to Win or Preorder Now

Day of Science is coming to Raleigh-Durham and Miami!

Day of Science

At CURE’s Day of Science in Raleigh-Durhamand Miami, leading experts answer your questions about epilepsy.

These free events give those impacted by epilepsy and their families the chance to learn from researchers and local physicians in an encouraging environment.

At Day of Science, a panel of epilepsy experts address audience questions and participate in small-group discussions over lunch with the attendees.

When you join us at Day of Science, you can ask questions, such as:

  • What targeted treatments have been developed due to the discovery of new epilepsy genes?
  • What are some of the breakthrough therapies for pediatric patients, including those with infantile spasms?
  • What are the risks associated with epilepsy surgery?

Register now for Day of Science in Raleigh-Durham or Miami.

Join Us for Epilepsy Awareness Day at Disneyland Resort

Let’s paint Disneyland purple at the 6th Annual Epilepsy Awareness Day at Disneyland Resort! This family-friendly event on November 5-7 unites epilepsy patients, families, doctors, researchers, and organizations.

On November 5 and 6, join us at the expo where you can get access to epilepsy resources while learning about new treatment options and devices. On November 7, head to Disneyland Park to enjoy the rides, build lasting friendships, and spread epilepsy awareness.

CURE has something super planned for this event – stay tuned for details!

Learn More or Register Now

Preview of Spectacular Online Auction Items to Support Epilepsy Research!

The online auction for CURE’s 20th Annual Chicago Benefit opens on October 9. This auction features exclusive items, such as:

  • An E-Street Band signed guitar with 2 tickets to the sold-out Springsteen on Broadway show
  • An Eddie Vedder signed guitar
  • A Paul Simon personalized and signed guitar
  • A James Taylor signed guitar

Stay tuned to learn how to place your bid on October 9!

Next CURE Events

The Hidden Truths Project’s 7th Annual 1:26 The Art of Epilepsy in Chicago – October 14

CURE’s 20th Annual Chicago Benefit – October 15

Webinar on Cannabidiol and Epilepsy: The Real Risks and Benefits – October 24

Day of Science in Raleigh-Durham – October 27

Day of Science in Miami – November 3

CURE Update: Explore Epilepsy Research at Webinars and Events

You may have heard about the FDA’s landmark approval of Epidiolex, an epilepsy treatment which is over 98% cannabidiol (CBD). While CBD is a compound found in marijuana, it does not have psychoactive effects.

Since this approval, clinicians and patients have been asking great questions about how cannabidiol works to treat epilepsy and what risks may accompany its use.

An upcoming CURE webinar addresses the benefits and risks of using CBD to treat epilepsy. We’re excited to share what the latest research says and answer your questions about CBD and epilepsy. You can learn more about the webinar in this update. I hope you can join us to explore this fascinating topic.

Also in this update…

I hope you’re having a great summer,
Laura S. Lubbers, PhD

Free Webinars on CBD & Epilepsy and The New Way to Describe Your Seizure Type

Curious how cannabidiol (CBD) can be harnessed to treat epilepsy? Discover what the latest research says in our upcoming webinar Cannabidiol and Epilepsy: The Real Risks and Benefits on Wednesday, October 24, at 1:00PM CT.

In this webinar, you will learn why CBD may be an effective treatment for certain types of epilepsy, the risks associated with CBD, and what the FDA approval of the CBD-based drug Epidiolex means for the future of epilepsy research and treatment.

Pediatric neurologist Anup D. Patel, MD, will lead the presentation and address your questions in a live Q&A.

Learn More and Sign-Up Now

Learn to communicate more effectively with your doctor by attending this month’s free webinar about The New Way to Describe Your Seizure Type on Wednesday, September 26, at 12:00PM CT.

During this presentation, you will learn the improved terminology recently adopted by the International League Against Epilepsy (ILAE) for organizing and describing seizure and epilepsy types.

Knowing these terms can help you communicate with your doctor about the treatment you need, the triggers to avoid, and what to expect in the future. Robert S. Fisher, MD, PhD, will present the webinar. Dr. Fisher led the ILAE taskforce responsible for these updated definitions and classifications.

Learn More and Sign-Up Now

Register Now for Day of Science in Los Angeles and Raleigh-Durham!

Day of Science

Get answers to your questions about epilepsy at CURE’s Day of Science in Los Angeles and Raleigh-Durham!

These free events give those impacted by epilepsy and their families the chance to learn from researchers and local physicians in an encouraging environment.

At Day of Science, a panel of epilepsy experts address audience questions and participate in small-group discussions over lunch with the attendees.

When you join us at Day of Science, you can ask questions, such as:

  • What targeted treatments have been developed due to the discovery of new epilepsy genes?
  • What are some of the breakthrough therapies for pediatric patients, including those with infantile spasms?
  • What minimally invasive techniques are available to someone who may be considering surgery?

Registration for Day of Science in Los Angeles and Raleigh-Durham is open now.

Stay tuned – registration for Day of Science in Miami opens soon.

CURE Champion Spotlight: How Erin Earnest Raised $73,000 for Epilepsy Research in Honor of Her Sister

Since 2011, CURE Champion Erin Earnest, along with family and friends, has hosted Teresa’s Birthday Benefit in honor of her sister, Teresa Walsh.

In November 2010, shortly after graduating college and while preparing to begin a master’s program, Teresa passed from Sudden Unexpected Death in Epilepsy (SUDEP). Teresa was diagnosed with epilepsy only five years earlier. In the years following her diagnosis, she dealt with dozens of seizures, countless doctors’ appointments, and several different medications, none of which stopped her seizures.

Erin is unrelenting in spreading epilepsy awareness and promoting epilepsy research. To date, Erin has raised $73,000 and brought 300 people together in Teresa’s honor with her CURE Champion event.

Erin’s commitment doesn’t stop there. As a member of CURE’s Development Committee since 2011, Erin has provided CURE with strategic direction and guidance on fundraising initiatives. Her professional experience as a campaign manager and current Director of Campaign Operations at the Asian Art Museum in San Francisco, CA makes her a tremendous asset.

Learn more about Teresa’s Birthday Benefit 2018

Secure Your Tickets to CURE’s 20th Annual Chicago Benefit on October 15

We are celebrating 20 years of CURE’s impact and emerging discoveries at the 20th Annual Chicago Benefit on October 15 at Navy PierTicketstables, and sponsorship opportunities are now available.

This event features a reception, dinner, and musical performances by Rock & Roll Hall-of-Famers Eddie Vedder and Nils Lofgren, as well as the star of Chicago’s production of HAMILTON, Miguel Cervantes.

You’ll have the chance to bid on spectacular online auction items, including an E-Street Band signed guitar and 2 tickets to Springsteen on BroadwaySee more auction items.

Interested in underwriting opportunities? Please contact Meghan Jorgensen at events@cureepilepsy.org or 312-255-1801.

Learn More and Secure Your Tickets

Next CURE Events 

Webinar on The New Way to Describe Your Seizure Type – September 26

Day of Science in Los Angeles – September 29

The Hidden Truths Project’s 7th Annual 1:26 The Art of Epilepsy in Irvine – September 29

The Hidden Truths Project’s 7th Annual 1:26 The Art of Epilepsy in Chicago – October 14

CURE’s 20th Annual Chicago Benefit – October 15

Webinar on Cannabidiol and Epilepsy: The Real Risks and Benefits – October 24

Day of Science in Raleigh-Durham – October 27