Woman sitting at a laptop participating in a CURE webinar.

Webinar: Epilepsy, Pregnancy, and Contraception

Pregnancy and contraception can be a difficult subject for women with epilepsy to discuss with their doctors, however it is critical for reproductive health. Estimates suggest there are more than 1.1 million women in the US with epilepsy of childbearing age.

Women with epilepsy must face certain considerations when starting a family. This webinar will focus on the research surrounding epilepsy and pregnancy, as well as provide strategies to help minimize risks for both mother and baby.

This webinar will address questions, such as:

  • What does research show about the safety of certain anti-seizure drugs in pregnancy?
  • What resources are available to women with epilepsy who are planning a family?
  • Which forms of contraception interact with anti-seizure medications?

This webinar will be conducted by Dr. Elizabeth Gerard, Associate Professor of Neurology with a specialty in epilepsy at Northwestern University. Her clinical focus is contraceptive and pre-conception counseling as well as the management of epilepsy during pregnancy.

Woman sitting at a laptop participating in a CURE webinar.

Webinar: Separating Stigma from Truth – Epilepsy Research and Resources

Have you ever been afraid to talk about your epilepsy to friends and coworkers for fear of repercussions? Epilepsy stigma is prolific and can affect all aspects of a person’s life. Approximately 50% of people in the US and Europe report feeling stigmatized because of their epilepsy diagnosis, according to recent studies.

Discover research findings about the public attitudes and beliefs about epilepsy, as well as how likely people with epilepsy are to encounter stigma due to negative public attitudes. We review how these harmful stereotypes affect quality of life, and explore what recent evidence suggests communities can do to improve public attitudes and reduce epilepsy stigma.

Let’s end these epilepsy stereotypes and shine a light on the truth.

Featured Presenter: Ann Jacoby, PhD, is Professor Emerita in the Department of Public Health and Policy at the University of Liverpool, UK. She is a social scientist whose research career has focused on the lived experiences of individuals with ill health, in relation to its daily life impacts and healthcare outcomes.  She has had a particular interest in chronic neurological illness, with a major focus on epilepsy.

Woman sitting at a laptop participating in a CURE webinar.

Webinar: Cannabidiol and Epilepsy – The Real Risks and Benefits

Recently, there has been a great deal of focus on the uses and risks of marijuana in the field of epilepsy. Epidiolex, a treatment of cannabidiol (CBD), recently gained FDA approval for the treatment of seizures associated with Lennox-Gastaut syndrome and Dravet syndrome, two rare and severe forms of epilepsy. This is the first FDA-approved plant based treatment with greater than 98% CBD.

Unlike THC, one of the other components in marijuana, CBD does not cause the euphoria (the “high”) that comes from THC.

In this webinar, you will learn why CBD may be an effective treatment for certain types of epilepsy, what risks can be associated with CBD, and what the FDA approval of means for the future of epilepsy research and treatment.

Featured Presenter: Anup D. Patel, MD, is Section Chief of Pediatric Neurology at Nationwide Children’s and Associate Professor of Clinical Pediatrics and Neurology at The Ohio State University College of Medicine

This webinar is made possible thanks to the generous funding provided by Sunovion Pharmaceuticals.

Woman sitting at a laptop participating in a CURE webinar.

Webinar: The New Way to Describe Your Seizure Type

Managing epilepsy can be a challenge, but understanding the most up-to-date medical terms can help.

Learn the International League Against Epilepsy’s (ILAE) new ways to organize and describe seizures and epilepsy types. Becoming familiar with this new language can enable you and your doctor to better communicate about your treatment options, triggers to avoid, and what to expect in the future.

The webinar is presented by Dr. Robert S. Fisher, who led the taskforce responsible for the ILAE’s new classification system.

During a live Q&A session with Dr. Fisher, you can ask questions such as:

  • How can I tell what type of seizures I have?
  • Why don’t we use the terms “grand mal” and “petit mal” seizures anymore?
  • How could these new classifications impact my child’s treatment?

Susan And David Axelrod Join Leaders In Innovation Dinner

Frustrated with the inability to protect her child from the devastation of uncontrollable seizures and the side effects of medications, Susan Axelrod joined forces with two other concerned parents to spearhead the search for a cure for epilepsy. Axelrod became the Founding Chair of Citizens United for Research in Epilepsy (CURE), and along with her husband David Axelrod has raised more than $43 million to fund research grants around the world.

On Nov. 19, Susan and David Axelrod will join scientists, researchers and community members for the 2018 Leaders in Innovation Dinner hosted by Robarts Research Institute. This year’s dinner celebrates research excellence in the field of epilepsy.

Woman sitting at a laptop participating in a CURE webinar.

Webinar: Epilepsy’s Impact on Memory and Cognition Over Time

Cognitive deficits and memory problems are common among adults with chronic epilepsy. This webinar discusses the course of cognitive and memory aging in people with chronic epilepsy. The presentation addresses factors which contribute to healthy cognitive and brain aging, as well as what patients can do to help prevent cognitive decline.

This webinar is presented by Dr. Bruce Hermann, PhD, Director of the Charles Matthew Neuropsychology Section at the University of Wisconsin School of Medicine and Public Health. Dr. Hermann is an expert in brain and cognitive aging in people with chronic epilepsy. His research focuses on the impact of epilepsy on brain structure, cognition, and psychiatric status.

Dr. Hermann’s presentation is followed by an interactive Q&A session, where he answers questions such as:

  • Can any measures be taken to prevent or combat the cognitive decline that accompanies getting older with epilepsy?
  • Does research suggest specific therapies to help prevent memory loss associated with epilepsy?
  • Are certain individuals with epilepsy more likely to experience cognitive decline as they age than others?
Woman sitting at a laptop participating in a CURE webinar.

Webinar: Diagnostic and Treatment Challenges of Infantile Spasms

This webinar focuses on the challenges of diagnosing and treating Infantile Spasms, and how advances in epilepsy medicine and technology have improved this process. This presentation will also examine currently available treatment options.

The presenter is Dr. Shaun Hussain, Assistant Professor of Pediatrics at UCLA, Director of the UCLA Infantile Spasms Program, and inaugural recipient of the Elsie and Isaac Fogelman Endowed Chair in Pediatric Neurology. His clinical and research endeavors focus on Infantile Spasms and other forms of severe pediatric epilepsy, including Lennox-Gastaut syndrome and Dravet syndrome.

Dr. Hussain’s presentation is followed by an interactive Q&A session, where viewers asked questions like:

  • What are the consequences of Infantile Spasms if they are not controlled?
  • How are Infantile Spasms treated and how often are treatments effective?
  • Could a ketogenic diet help control my child’s Infantile Spasms?
Woman sitting at a laptop participating in a CURE webinar.

Webinar: Anxiety and Depression Associated with Epilepsy

Know someone with epilepsy who is anxious or depressed? They are not alone. One-third of people with epilepsy suffer from some form of psychiatric disorder, of which anxiety and depression are the most common.

If you or a loved one struggle with epilepsy combined with a mood disorder, we invite you to watch an online, educational webinar about Anxiety and Depression Associated with Epilepsy.

This webinar discusses how anxiety and depression in people with epilepsy negatively impacts quality of life, reduces tolerance of antiepileptic medications, and increases the risk of suicidal ideation and behavior. The presentation also reviews how stress effects epileptic seizures and will offer strategies that patients can use to better cope with stress.

Dr. Andres M. Kanner, a leading expert on epilepsy and psychiatric disorders, will present this webinar. Dr. Kanner is Chief of the Epilepsy Division in the Department of Neurology and Director of the International Comprehensive Epilepsy Center in the University of Miami Miller School of Medicine.

During a live Q&A session with Dr. Kanner, you can ask questions, such as:

  • What can I do to lower the stress and anxiety that could potentially trigger seizures?
  • How do I know if my depression is linked to my epilepsy or my medications?
  • Are anxiety and depression symptoms dependent upon factors, such as seizure-type or age of epilepsy onset?
Woman sitting at a laptop participating in a CURE webinar.

Webinar: Promising Anti-Epileptic Drugs in Development

This free webinar outlines therapies in development for epilepsy and seizures, including promising therapies for patients with treatment-resistant epilepsy and children with severe epilepsy. The webinar also focuses on drugs that may not only reduce seizures, but improve treatment of the underlying disease.

The webinar is presented by Dr. Jacqueline French, a professor of Neurology in the Comprehensive Epilepsy Center at NYU Langone School of Medicine and Founder/Director of the Epilepsy Study Consortium. Dr. French’s presentation was followed by an interactive Q&A session.

Woman sitting at a laptop participating in a CURE webinar.

Webinar: Epilepsy’s Impact on Learning and School Performance

This webinar highlights the latest research on how epilepsy impacts cognition, learning, and school performance.

The webinar is presented by Dr. Madison Berl, a neuropsychologist at Children’s National Hospital in Washington, DC. Dr. Berl’s presentation is followed by an interactive Q&A session. Some of the questions you might hear addressed include:

  • How do schools build an IEP for a child with epilepsy?
  • Are there services available to help my child transition into adulthood?
  • What laws are in place to support my child?