Back to top
Privacy Policy

Citizens United for Research in Epilepsy (CURE) is committed to safeguarding the privacy of its users. Information gathered by CURE is used to monitor the effectiveness of our Site, personalize your Internet experience, and respond to your questions and requests. This statement explains our online information practices and the choices you can make about the way the information you provide us is collected and used. CURE is the sole owner of and the only organization that uses the personal information collected on this Site.

We will not sell or rent this information to others under any circumstances. This Privacy Policy applies to all information received by CURE, both online and offline, as well as any electronic, written or oral communication.

CURE reserves the right to amend this Privacy Policy at any time. Please check back frequently in order to see changes. Your use of the Site constitutes your acceptance of the Privacy Policy, as it may be amended from time to time.


This Site uses cookies. By using this Site, you agree that CURE may place cookies on your device and access them when you visit our Site. A cookie is a small file of letters and numbers that we put on your computer. The cookies we use aid us in improving our Site and your experience by tracking which areas and features of our Site are popular, making the Site easier to navigate, count visits, and allow a registered user to remain signed in to his/her user profile throughout a visit. We may also use cookies placed on our Site by third parties acting on our behalf. If you want to opt out of our cookies, you can delete them and any other cookies that are already on your computer. Please refer to the help and support areas on your Internet browser for instructions on how to locate the file or directory that stores cookies. Some functionalities on our Site may be affected if you delete our cookies.

Collection of Personal Information

You may browse our Site without giving us any personally identifiable information about yourself. If you elect to register with CURE to join our mailing list and receive updates and additional information, you will be asked to provide personal information that may include among other things your name, address, e-mail address, phone number, and areas of interest. This information tells us about the people who use our Site, helps us tailor the Site to our audience, and allows us to better respond to you and your desired level of involvement with CURE. This information is securely stored internally and accessed only when we correspond with our mailing list periodically during the year, or when we are working to compile content and information for our Site that we think our audience might be interested in.

Use of Personally Identifiable Information

CURE will not sell or otherwise transfer or disclose your personally identifiable information to third parties except as may be required by federal, state or local law, or by exigent circumstances. We may use your personally identifiable information to compile and display content and information that we think you might be interested in. CURE also may use your profile information on an aggregate basis—without personal identifiers—to develop and display new features and content for the Site and to perform statistical analyses of user behavior (on an aggregate basis) in order to measure interest in and use of the various areas of the Site.

Donor Privacy Policy

We will not sell, share or trade our donors' names or personal information with any other entity, nor send mailings to our donors on behalf of other organizations. This policy applies to all information received by CURE, both online and offline, on any Platform ("Platform", includes the CURE website and social media channels), as well as any electronic, written, or oral communications. To the extent any donations are processed through a third-party service provider, our donors’ information will only be used for purposes necessary to process the donation. 

CURE collects the following information through our secure online donation page: name, address, e-mail address, phone number, and credit card or direct debit information. This personally identifiable information is used to acknowledge receipt of your donation for your tax records and to include you on CURE’s mailing list. When you submit a contribution in honor or in memory of someone and request that an acknowledgement be sent to another individual or a family, we will use the name and address of that individual or family for acknowledgement purposes only.

Third-Party Websites

Users will find content on the Site that enables linking to the sites of third parties. These third-party sites may have their own privacy policies or no policy at all. The CURE Privacy Policy does not apply to such other sites. CURE has no control over and is not responsible for the content displayed on such sites, nor over the measures, if any, that are taken by such sites to protect the privacy of user information. Users should check the privacy policy of any third-party site before providing personally identifiable information.


We care about the security of your transactions and use industry standard SSL (Secure Sockets Layer) encryption technology to safeguard your credit card information. We use high-grade encryption and the secure https protocol to communicate with your browser software, which guards against interception of the credit card information you give us. We also employ several different security techniques to protect your personally identifiable information from unauthorized access by users inside and outside the organization. The Web servers for CURE are located in a locked, secure environment, and computer systems are maintained in accordance with industry standards to secure information. You should be aware, however, that "perfect security" does not exist on the Internet, and third parties may unlawfully intercept or access transmissions or private communications.

Release of Information to Comply with Legal Requirements or Government Request

CURE reserves the right at all times to disclose any information uploaded to or appearing on the Site to the extent necessary to comply with any applicable law, regulation, legal process, subpoena or governmental request.

Parental Permission

CURE does not intend that children will use the Site. Some of the information available on the Site may not be appropriate for children. USERS UNDER 18 YEARS OF AGE MUST OBTAIN PARENTAL PERMISSION TO USE THE SITE. Adults should not assist unauthorized children to access the Site. CURE will not knowingly collect, use or disclose personally identifiable information about visitors under 18 years of age.

Contact Us

If you have any questions regarding this Privacy Policy or you would like to review, change, and/or remove your personal information, you may contact us at