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FamilyInfantile Spasms
October 4, 2023

#126 Infantile Spasms Diagnosis and Treatment Journey Inspires Children’s Book

Guest: Kate Kostolansky

This week on Seizing Life® Kate Kostolansky shares her daughter’s infantile spasms diagnosis and treatment journey, and explains how these experiences inspired a children’s book to help newly-diagnosed families.

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AdvocacyFamily
September 20, 2023

#125 An Extraordinary Life of Autism, Epilepsy, and Advocacy

Guest: Barbara D'Amora

This week on Seizing Life® Barbara D’Amora tells us about her son Nicholas, who lived with autism and epilepsy and became an active and inspirational advocate for the autistic community despite being nonverbal.

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Living with EpilepsyTypes of Epilepsy
September 6, 2023

#124 A Young Woman’s Journey with Jeavons Syndrome

Guest: Kiley Flowers

This week on Seizing Life®, recent college graduate and CURE Epilepsy summer intern Kiley Flowers joins us to talk about Jeavons syndrome and share her personal journey with this rare form of generalized epilepsy.

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AdvocacyFamily
August 23, 2023

#123 Pursuing Effective Epilepsy Treatment and Running for Research

Guest: Clare Phelps

This week on Seizing Life® Clare Phelps shares the difficult diagnosis and frustrating treatment journey of her young daughter Sophie, whose epilepsy has so far been treatment resistant.

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AdvocacyLiving with Epilepsy
August 9, 2023

#122 From Hiding Diagnosis to Advocating for Awareness: A Young Woman’s Epilepsy Journey

Guest: Mariah Mayhugh

This week on Seizing Life® Mariah Mayhugh recounts her epilepsy journey, from hiding her diagnosis to becoming a passionate advocate for epilepsy awareness.

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Living with EpilepsyTypes of Epilepsy
July 26, 2023

#121 A Teen Uncovers the Emotional Impacts of Childhood Seizures

Guest: Hailey Yoon

This week on Seizing Life®, we speak with Hailey Yoon about the emotional and psychological impacts that childhood epilepsy may have even years after seizures subside.

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HealthcareLiving with Epilepsy
July 12, 2023

#120 Comprehensive Epilepsy Centers: An Insider’s Guide

Guest: Dr. Dave Clarke

This week on Seizing Life® Dr. Dave Clarke gives us a thorough overview of the specialists and services available at comprehensive epilepsy centers and offers advice about when and how to access these care options.

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AdvocacyLiving with Epilepsy
June 28, 2023

#119 Love, Marriage, and Epilepsy

Guest: Tiffany and Chris Kairos

This week on Seizing Life® we speak with epilepsy advocates and married couple Tiffany and Chris Kairos about the impact that epilepsy has had on their marriage and professional lives.

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FamilyLiving with Epilepsy
June 14, 2023

#118 The Caregiver Journey: A Father’s Story

Guest: Bud Hager

This week on Seizing Life®, father and therapist Bud Hager discusses the daily responsibilities and the overarching emotional journey of parenting a child with a rare disease.

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