This week on Seizing Life®, we focus on infantile spasms (IS), a rare and particularly severe epilepsy syndrome that typically begins within the first year of life. Our panel of experts addresses everything you need to know about IS, from diagnosis, to consultation, to treatment.
Category Archives: Family
A Family’s Epilepsy Journey: From Diagnosis to Surgery
This week on Seizing Life we speak with Daniel, Paula and David Allbeck about their family’s journey with epilepsy from Daniel’s initial diagnosis over 15 years ago to the results of his recent brain surgery.
A Brave Little Girl’s Journey with Sturge-Weber Syndrome
Today on Seizing Life®, we speak with Cindy and Elvin Angulo about their daughter Vera’s Sturge-Weber Syndrome diagnosis and its connection to epilepsy.
One Family, Two Different Epilepsy Diagnoses
The numerous types of seizures and the widely varying impacts of epilepsy are two key factors contributing to the public’s misunderstanding of the condition. This week on Seizing Life® we speak with parents who have two children with epilepsy that manifests very differently, and discuss the implications this has had for their family.
Epilepsy and College: Students and Parents Share Advice and Recommendations
With students preparing to head back to college campuses, we revisit several previous episodes in which students with epilepsy and their parents share experiences and offer advice about choosing and attending college.
Infantile Spasms: Awareness, Observation, and Intervention
A mother’s awareness of infantile spasms and persistence contributes to a positive outcome for her daughter.
After SUDEP: A Journey of Grief and Hope
After the loss of his fiancé to SUDEP, Geoff Applegate a single-parent was left coping with his own grief while also learning how to help his young son understand the loss of his mother.
Epilepsy Education and Seizure Safety in Schools
When Paul St. Pierre encountered a lack of understanding of epilepsy at his school, he and his mother, Colleen, took action to ensure that all schools in the state of New Jersey were educated on epilepsy and seizure safety.
Raising A Child with Both Autism and Epilepsy
Author and journalist Liane Kupferberg Carter speaks to us about her journey raising a son with a dual diagnosis of autism and epilepsy.
Growing Up Alongside a Sibling with Epilepsy
College students Emma Cardwell and Nathan Bliss discuss their experiences growing up with a sibling who has epilepsy.