Race for Epilepsy 2018

EVENT OVERVIEW

Race For Epilepsy, INC. is a non-profit organization to raise money and awareness for individuals with epilepsy. The organization holds a half marathon, 5k race, and fun walk on the last Saturday of every February.  All money received is donated to CURE. Race For Epilepsy, INC. primary goal is to educate the public and individuals with epilepsy, that depending on certain variables, individuals with epilepsy can have a job.

Race for Epilepsy is a USA Track & Field sanctioned event: Certificate #NC16046BW.

To register and learn more please visit www.raceforepilepsy.org.

About the organizer:

James P. Patterson III first started having seizures when he was 5 years old in 1985. As he got older his seizures became more frequent and more intense. At 17 years old, James was having an average of 25 seizures per day. It was then he decided to have brain surgery since his medication was having little to no effect on his epilepsy. In the summer of 1997 his left temporal lobe and hippocampus were removed. James has been seizure free since the surgery. His side effects from the surgery are: difficulties in expressive communication, weak vocabulary, and difficulties in recalling information (memory). After years of therapy, medication, and counseling, James has adapted to the issues.

While working on his bachelors at Appalachian State University, James started speaking publicly about his disability. He graduated from Appalachian in 2004 and immediately got a full-time job providing public service to the community that he still has at this day. Staying physically active (mostly running) has helped James handle the side effects due to epilepsy. James enjoys running half marathons, marathons, and ultras.

Get Your Shoes On – Fitt and Fashion for a CURE for Epilepsy

Please join us at FITT RX!

Kristin Rozmus will have you shaking your tail feather in support of epilepsy research! Childcare will be provided at FITT RX for your little ones at no additional cost.

The day does not end after your cool down. Please join us after our dance off and head over to MAXINE HANDBAGS & ACCESSORIES (122 N York) for an afternoon mimosa. Jennifer Blanchette has very generously offered to donate 15% of her sales on April 13, directly to CURE.

Suggested Donation: $20 per person

For questions about the dance off or sponsorship opportunities, please email Katie Eberspacher at rfeberspacher@gmail.com.
For more information or to make an online donation visit: http://cureep.convio.net/goto/olivia

 

Special thanks to FITT RX, Kristin Rozmus and Jennifer Blanchette for donating their time,space,love, and money, to such an important cause

3rd Annual Ella’s Race for a CURE

EVENT OVERVIEW

Join us for the 3rd annual fun run/walk dedicated to Ella and everyone touched by epilepsy.

5K Fun Run/Walk, 1 Mile Walk & Kids Dash
9:00 am – Sign In
9:30 am – Kids Dash
10:00 am – Fun Run/Walk starts

Suggested donation: $25 per person. T-shirts will be provided.

For questions about the run or sponsorship opportunities, please email Shalee Cunneen at smcunneen@gmail.com.

Day of Science 2017 – Boston, MA

EVENT OVERVIEW

Day of Science is a free, educational and networking opportunity for patients, families, medical professionals, researchers and all those touched by or interested in learning more about epilepsy. Day of Science includes:

  • Plenary and Q&A Session of medical experts
  • Opportunities for small group discussions with experts
  • Information on cutting-edge therapies and treatments
  • Opportunity to engage with others in epilepsy community
  • Access to local and national epilepsy resources

PANELISTS

MODERATOR

  • Annapurna Poduri, M.D., M.P.H., Boston Children’s Hospital

LOCAL EXPERTS

  • Bernard Chang, MD, MMSc, Beth Israel Deaconess Medical Center
  • Page Pennell, MD, Brigham and Women’s Hospital
  • Beth Sheidley, MS, CGC, Boston Children’s Hospital
  • Kevin Staley, MD, Massachusetts General Hospital

GUEST EXPERT

  • Anne Berg, PhD, Ann & Robert H. Lurie Children’s Hospital of Chicago

PLENARY AND Q&A TOPICS

THE FUTURE OF EPILEPSY

  • Comorbidities: The “other” fight in the battle against epilepsy
  • Genetic and Acquired Epilepsies: Advances in epilepsy research across the spectrum
  • Devices: Minimizing the invasiveness of epilepsy treatment
  • Impact of Epilepsy Research on the Family: From bench to bedside

VOLUNTEER INFO

Please contact the Day of Science team at DOS@CUREepilepsy.org or (312) 255-1801 if you are interested in volunteering at Day of Science. It’s a great opportunity for teens to earn service hours!

SPONSORSHIP INFO

Learn how you or your organization can sponsor Day of Science and bring the power of science to communities across the country!

Sunday Brunch Monthly Meetup

For details about this brunch, please request to join this Meetup.

This Meetup group is intended for those in Chicago who are affected by seizures/epilepsy directly or through someone in their lives. We also welcome those interested in learning more about it! 1 in 26 individuals will develop epilepsy in their lifetime. The purpose of the group is to bring young adults affected by seizures/epilepsy together to socialize, find support, learn more about each other’s experiences and to have FUN! This group meets the last Sunday of each month.

Strikeout Epilepsy

Join Miguel Cervantes, star of the Chicago production of HAMILTON, at the first-ever Strikeout Epilepsy, a family fun picnic and home run derby!

SOMa Sport and Social, the group behind the popular SOMa Co-ed Softball League, is partnering with Vanessa Pollock’s Care Serve Give, E Quality Systems, and Blink Fitness to host the first-ever Strikeout Epilepsy, a Home Run Derby fundraiser and picnic that promises fun for the whole family this Labor Day.

Miguel Cervantes, a co-founder of SOMa’s Coed Softball League, will take a break from his leading role in the Chicago production of HAMILTON to help raise funds to support epilepsy research.

This event will feature:

  • Women’s and Men’s Home Run Derby (Pre-registration required) with a grand prize of one-year membership to Blink Fitness
  • Food from Benji’s Taqueria of West Orange
  • Ice Cream Truck
  • DJ Matty Stuart of MD Music and Entertainment
  • Inflatables for the Kids
  • Dunk Tank
  • And More
SUDEP Family Panel

Understanding and Coping with the Risks of SUDEP

This was an exciting event which brought together health care providers, researchers, and advocacy groups to advance our understanding of SUDEP. The event welcomed patients and families living with the risks of SUDEP, and coping with the loss of a family member due to SUDEP.

The seminar features scientific and medical experts on various proposed causes for SUDEP, and new seizure detecting technologies. Dr. Cynthia Harden spoke on the practice guidelines for SUDEP incidence and risk factors, which she developed.

The program included:

  • Understanding and Coping with the Risks of SUDEP, which will teach you how to discuss SUDEP with your doctor
  • Guidelines for Assessing the Risks of Sudden Unexpected Death in Epilepsy (SUDEP), presented by Dr. Harden.
  • A presentation on NYS Legislation for Reporting of SUDEP (Senate Bill S2422)
  • A panel discussion by parents who lost a child to SUDEP

CURE’s Frontiers in Research Seminar Series is made possible by the generous support of Nussenbaum-Vogelstein family.

The Cervantes Family

Meet & Greet with Hamilton’s Miguel Cervantes!

Join us for a Meet and Greet with star of the broadway smash, HAMILTON, Miguel Cervantes, at Fairgrounds Coffee and Tea in Bucktown from 10:00 am – 11:30 am. We are celebrating the launch of the brand new Adelaide’s Blend, named after Miguel’s two-year-old daughter who suffers from a rare childhood epilepsy syndrome.

There is also an opportunity all month long to enter for the chance to win two heavily discounted tickets to see HAMILTON! Attendees of the Meet and Greet event who purchase a bag of Adelaide’s Blend will receive two entries into the drawing. If you are unable to attend, you can share your purchase of Adelaide’s Blend on social media using #MyShotAtEpilepsy to receive one entry through April 30!

20% of sales from each bag of Adelaide’s Blend will be donated to CURE.

Grand Rapids Whitecaps VIP Experience

Don’t throw away your shot to see Miguel Cervantes from Chicago’s HAMILTON production on August 6!

Miguel will be:

  • Singing the National Anthem
  • Throwing a first pitch with his son Jackson
  • Singing the 7th inning stretch

If you want something special this night, there are a limited number of VIP experience package tickets available for $50. The VIP experience is a Field Box seat ticket, hot dog and soda, a photo with Miguel and an autographed Hamilton playbill.

You only need to purchase a VIP ticket if you want the VIP option. If you are coming for the game and don’t want a VIP package you can purchase regular tickets.

If anyone in your group does NOT want the VIP ticket, you will need to order Field Box seats instead of the VIP option. For instance, if you are a group of four and two want VIP tickets and two do not, you’ll need to select two from the VIP drop down in the Field Box area and then two tickets from the Field Box seat drop down.

VIP entry is at 4:45pm. at Gate A.

Money raised from the VIP tickets will go to CURE.