CURE supports the new AAN / AES practice guidelines on SUDEP and strongly urges patients, caregivers and physicians to openly discuss this devastating outcome of epilepsy. CURE has been a leader in increasing the awareness of SUDEP and a pioneer in supporting research that has led to a better understanding of the underlying causes of SUDEP. However, more research is urgently needed to understand the incidence of SUDEP across the epilepsies and identify effective prevention strategies that save lives.
Laura Lubbers, PhD
Chief Scientific Officer, CURE