CURE Epilepsy CARES (Conversations About Research in Epilepsy & Seizures) is a free, educational event for patients, families, medical professionals, researchers, and all those touched by or interested in learning more about epilepsy. Join us as clinicians answer your questions about cutting-edge research and epilepsy treatments.

This Q&A event will be moderated by Dr. Rusty Novotny, Head of the Epilepsy Program at Seattle Children’s Hospital and Professor of Neurology and Pediatrics at UW School of Medicine.

CURE Epilepsy CARES includes:

• A panel discussion with Q&A, featuring epilepsy experts, with topics and questions determined by the attendees. The panel will discuss the latest in epilepsy research and what it means for patients and families.
• Lunch and Learn featuring intimate, roundtable discussions with epilepsy experts. A free boxed lunch will be provided.
• An Epilepsy Resource Center including information about community resources for epilepsy, available treatment options, and clinical trial opportunities.
• The opportunity to network and engage with other families and advocacy groups in the epilepsy community.

Topics of Conversation May Include:

• New Epilepsy Treatment Options
• Genetics and Precision Medicine
• Drug-Resistant Epilepsy and Surgery
• Anxiety and Depression in Epilepsy
• Adult-onset Epilepsy and Women’s Health
• ….and other topics related to advancements and research in epilepsy

Speakers:

• Ghayda Mirzaa, MD

Assistant Professor of Pediatrics and Genetics

Seattle Children’s (University of Washington)

• Michelle S. Kim, PhD

Neuropsychologist

Harborview Regional Epilepsy Center

• Jason Scott Hauptman, MD, PhD

Interim Surgical Director of the Epilepsy Surgery Program; Co-Director of the TSC Program

Seattle Children’s

• Stephanie Carapetian Randle, MD, MS

Director of TSC Clinic; Medical Director of Epilepsy Surgery

Seattle Children’s

• Franck Kalume, PhD

Associate Professor of Neurological Surgery; Adjunct Associate Professor of Global Health and Pharmacology

Seattle Children’s (University of Washington)

• Jan Ramirez, PhD

Director of the Center for Integrative Brain Research; Principal Investigator

Seattle Children’s

• Michelle Guignet

Postdoctoral Scholar in UW School of Pharmacy

Location: Seattle Children’s Sand Point Learning Center, 5801 Sand Point Way Northeast, Seattle, WA 98105

Register

FAQs

Will meals be provided? 
YES! CURE Epilepsy will provide morning refreshments and lunch.

Can my guests register onsite?
YES! Staff will be available to register anyone onsite.

How can I contact the organizer with any questions?
Please contact us at events@CUREepilepsy.org or 312-255-1801. If you need to contact the organizer on the day of the event, you must email events@CUREepilepsy.org.

CURE Epilepsy is proud to be a new partner of the 2023 Marine Corps Marathon. On October 29th, 2023, you can join fellow Team CURE Epilepsy runners in our nation’s capital as we raise critical funds and awareness in our efforts to find a cure for epilepsy, by promoting and funding patient-focused research.

As part of Team CURE Epilepsy, all persons who meet our fundraising requirements will receive:

• Personalized Team CURE Epilepsy online fundraising page
• Team CURE Epilepsy race kit with promo items
• Invitation to race weekend activities and cheering fans along the course
• Coaching and training plans via email
• Prizes from fundraising challenges

Registration for the 5K stride for Epilepsy is now open!  This year’s race will be held on UMES Campus at the New Pharmacy Building and it will take place on May 7, 2023.

Registration is $20. All proceeds from this event will benefit CURE Epilepsy and United Needs & Abilities (UNA).

Welcome to our second annual Mansfield Walk to Cure Epilepsy, hosted by the Maffie Family. Our team name, “Ant’s Arrows”, was created to honor our son, brother, nephew, cousin, and dear friend who passed away on January 4, 2019 at the age of 22 from SUDEP (Sudden Unexpected Death in Epilepsy). Anthony was lovingly referred to as “Ant”. The arrows in our team name and part of our logo symbolize our efforts to move forward in our lives, while bringing Anthony and his motto “ expect nothing, appreciate everything “ with us. It is our hope those with this disease can also find the strength to move forward, as they confront the many daily challenges a diagnosis of epilepsy may bring.

Run/Walk registration: A donation of $25 per runner/walker includes your walk T-shirt to wear that day!

Donate: Can’t attend but still want to help find a cure for epilepsy? Make a tax-deductible donation!

Event Details: On Sunday, June 4, 2023, Ella’s Race will have a 2.6 Mile Fun Run and a one-mile walk through La Grange Park to raise awareness and funds for epilepsy research! One in 26 people will develop epilepsy in their lifetime, and our 2.6-mile fun run route brings awareness to this fact. This is a family-friendly event, with music, snacks, and lots of smiles!

Ella, who is the inspiration for this race.

All available slots are currently filled. If more slots become available, we will update this page with registration information.

Race to fund epilepsy research when you join Team CURE Epilepsy at the 2023 TCS New York City Marathon! Represent the 3.4 million Americans who are impacted by epilepsy at this iconic race through all 5 boroughs. 

Team CURE Epilepsy members will receive:

• Personalized Team CURE Epilepsy online fundraising page
• Team CURE Epilepsy performance shirt & swag bag
• Team social coordinated closer to the event
• Family and friend participation in the Charity Cheer Zone along the course
• Encouragement through inspirational stories and the latest research discoveries in epilepsy
• Special recognition and prizes for top fundraisers

Looking for free training resources? TCS New York City Marathon has you covered! Head to their website and view their running resources.

CURE Epilepsy CARES (Conversations About Research in Epilepsy & Seizures) is a free, educational event for patients, families, medical professionals, researchers, and all those touched by or interested in learning more about epilepsy. Join us as clinicians answer your questions about cutting-edge research and epilepsy treatments.

This Q&A event will be moderated by Carl E. Stafstrom, M.D., Ph.D. Dr. Stafstrom is the Lederer Endowed Chair of Pediatric Epilepsy, and serves as the Director of Pediatric Neurology and Director of the John M. Freeman Pediatric Epilepsy Center. The panel will consist of medical professionals from around the Baltimore region.

CURE Epilepsy CARES includes:

• A panel discussion with Q&A, featuring epilepsy experts, with topics and questions determined by the attendees. The panel will discuss the latest in epilepsy research and what it means for patients and families.
• Lunch and Learn featuring intimate, roundtable discussions with epilepsy experts. A free boxed lunch will be provided.
• An Epilepsy Resource Center including information about community resources for epilepsy, available treatment options, and clinical trial opportunities.
• The opportunity to network and engage with other families and advocacy groups in the epilepsy community.

Topics of Conversation May Include:

• New Epilepsy Treatment Options
• Genetics and Precision Medicine
• Drug-Resistant Epilepsy and Surgery
• Anxiety and Depression in Epilepsy
• Adult-onset Epilepsy and Women’s Health
• ….and other topics related to advancements and research in epilepsy

Speakers:

• Carl E. Stafstrom, M.D., PhD (John Hopkins)
• Perry J. Foreman, MD, PHD (LifeBridge Health Brain & Spine
  Institute)
• Camilo Gutierrez, MD (University of Maryland School of
  Medicine)
• Christa Habela, MD, PHD (Johns Hopkins University)
• Emily Johnson, MD, PHD (Johns Hopkins University)
• Ahmad Marashly, MD (Johns Hopkins University)

Location: Johns Hopkins Hospital, Bloomberg Children’s Center, 1800 Orleans Street Baltimore, MD 21287

Register

FAQs

Will meals be provided? 
YES! CURE will provide morning refreshments and lunch.

Can my guests register onsite?
YES! Staff will be available to register anyone onsite.

How can I contact the organizer with any questions?
Please contact us at events@CUREepilepsy.org or 312-255-1801. If you need to contact the organizer on the day of the event, you must email events@CUREepilepsy.org.

Let’s paint Disneyland purple at the annual Epilepsy Awareness Day at Disneyland! This family-friendly event takes places October 31-November 1 and unites epilepsy patients, families, doctors, researchers, and organizations. This event includes a free 2-day expo that allows attendees to learn from some of the leading epilepsy professionals from around the US, as well as learn about the latest research, technological advancements, and epilepsy services available to those living with epilepsy and their loved ones.

Join CURE Epilepsy live for the following:

Monday, October 31 from 4 pm – 5 pm – Kelly Cervantes and Kate Neale-Cooper discuss “Advocating For Your Child, Unleashing Your Inner Mamma Bear”

Tuesday, November 1 from 1:45 pm – 3 pm – Kelly Cervantes hosts a new Seizing Life(r) episode “Kids Ask Docs The Darndest Things”

CURE Epilepsy CARES (Conversations About Research in Epilepsy & Seizures) is a free, educational event for patients, families, medical professionals, researchers, and all those touched by or interested in learning more about epilepsy. Join us as clinicians answer your questions about cutting-edge research and epilepsy treatments.

This CARES event featured medical professionals from around the Cincinnati area.

CURE Epilepsy CARES includes:

• A panel discussion with Q&A, featuring epilepsy experts, with topics and questions determined by the attendees. The panel will discuss the latest in epilepsy research and what it means for patients and families.
• Lunch and Learn featuring intimate, roundtable discussions with epilepsy experts. A free boxed lunch will be provided.
• An Epilepsy Resource Center including information about community resources for epilepsy, available treatment options, and clinical trial opportunities.
• The opportunity to network and engage with other families and advocacy groups in the epilepsy community.

Topics of Conversation May Include:

• New Epilepsy Treatment Options
• Genetics and Precision Medicine
• Drug-Resistant Epilepsy and Surgery
• Anxiety and Depression in Epilepsy
• Adult-onset Epilepsy and Women’s Health
• ….and other topics related to advancements and research in epilepsy

Speakers: Medical professionals from around the Cincinnati area.

Location: University of Cincinnati Gardner Neuroscience Institute, 3113 Bellevue Ave, Cincinnati, OH 45219

Register

FAQs

Will meals be provided? 
YES! CURE will provide morning refreshments and lunch.

Can my guests register onsite?
YES! Staff will be available to register anyone onsite.

How can I contact the organizer with any questions?
Please contact us at events@CUREepilepsy.org or 312-255-1801. If you need to contact the organizer on the day of the event, you must email events@CUREepilepsy.org.

Ella’s Race 2022–Sunday, August 21st
to benefit CURE Epilepsy

Please walk or run with us!

Run/Walk registration: A donation of $25 per runner/walker is suggested, and that includes your walk T-shirt to wear that day!

Donate: Can’t attend but still want to help us cure epilepsy? Make a tax-deductible donation!

Event Details: On Sunday, August 21st, we will have a 2.6 Mile Fun Run AND a one-mile walk through La Grange Park to raise awareness and funds for epilepsy research! 1 in 26 people will develop epilepsy in their lifetime, and our 2.6-mile fun run route brings awareness to this fact. This is a family-friendly event, with music, snacks, and lots of smiles!

The event will begin at 10 am at the 500 N. Catherine block in La Grange Park. The race route will be closed for the event, so we encourage parking on Kensington or Ashland. Additional details for the event will be emailed to participants prior to race day!

Exciting News!

Epilepsy is frustrating and difficult to treat for many reasons, not the least of which is all the different ways it can manifest. Ella’s primary form of epilepsy, epileptic spasms, is particularly difficult because it is rare and there is very little research on it. In all the second (3^rd/4^th/5^th/etc.) opinions that we have solicited, one refrain is common amongst the doctors, there just is not that much out there on epileptic spasms. With this as motivation, we have worked with CURE Epilepsy to set up a special $500k grant to fund research on epileptic spasms specifically. This year, all money we raise in Ella’s race will go to fund this grant!  We are so excited for this amazing opportunity!

About Ella’s Race to CURE Epilepsy

Ella, who is the inspiration for this race.

First off, thank you for coming to visit our site! Our 12-year-old daughter Ella has severe epilepsy, and we’re raising money in her honor to help support research in epilepsy. Ella was first diagnosed with epilepsy days after her first birthday. Since that day we have tried approximately 20 different medications, special diets, prolonged hospital stays, surgical consults, second/third/fourth/etc. opinions all in hopes of bringing her seizures under control. Unfortunately, she still has frequent seizures that, when combined with all the medications she takes, have significantly slowed her development. Yet despite the seizures, meds, hospital stays, blood draws, and therapy appointments, Ella’s indelible spirit remains untouched. She continues to be our driving force, attacking each new challenge with a smile. You can learn more about Ella here.

Unfortunately, epilepsy’s reach extends far beyond just Ella, affecting over 3.4 million Americans, with 200,000 more cases being diagnosed each year. Approximately 50,000 deaths occur from seizures and seizure-related causes in the U.S. each year. CURE Epilepsy is the leading nongovernmental agency fully committed to funding research in epilepsy. CURE Epilepsy funds research grants for young and established investigators around the globe, and we believe these are the people who are going to be able to someday cure our Ella. Finding a new and novel treatment and changing technology is currently our only hope for Ella to become seizure-free. CURE Epilepsy is constantly at the forefront of the epilepsy research community, and they are also very fiscally responsible with all the contributions they receive. We are proud to be volunteers for CURE Epilepsy, and Shalee is also a Board Member for the organization. We are very passionate about this cause and believe CURE Epilepsy is the best agency out there to help us and Ella.

Waiver: In consideration of acceptance of this entry, I waive any and all claims for myself and my heirs against officials and sponsors of Ella’s Race for illness and injury which may result

We hope to see you there!