CURE Epilepsy was founded in 1998 by a group of parents desperate for answers to save their children. Since then, CURE Epilepsy has led a dramatic shift in the epilepsy research community from simply treating seizures to enhancing understanding of underlying mechanisms and causes so that cures and preventative strategies can be found.
From creating groundbreaking initiatives on SUDEP and genetics, to developing a team-science approach to study post-traumatic epilepsy for the U.S. Department of Defense, we remain laser-focused on funding research to find the cures for epilepsy.
Hear from both researchers and families affected by epilepsy to learn about some of the issues affecting the epilepsy community–and how CURE Epilepsy is working to solve them.
Thanks to technological advancements, we know there are hundreds of genes implicated in different pediatric epilepsies. Jessica Rosini talks about her son Dominic, whose epilepsy appeared before his 3rd birthday. He is counting on researchers like Dr. Gemma Carvill, who is developing precision medicine to cure rare, genetic forms of epilepsy like Dominic’s.
Epilepsy may be acquired through injury, infection, or other factors affecting the brain. Alex, son of former CURE Epilepsy Board Member Paul Heldman, acquired epilepsy at age 19 after a brain infection. Dr. James Gugger explains how someone like Alex can acquire epilepsy, and that research into how epilepsy begins is crucial to finding a cure.
Three in 10 epilepsy patients don’t respond to medication. Nathan Bliss describes childhood with his brother Charles, who has tried hundreds of treatments for Lennox-Gastaut syndrome, a severe, treatment-resistant epilepsy. Dr. Brenda Porter highlights recent advances to help make Charles and others like him seizure-free.
Hear from Cameron Boyce’s family, who only learned about sudden unexpected death in epilepsy (SUDEP) after Cameron passed away at the age of 20, and Dr. Ann Poduri, who discusses potential ways to mitigate the risk of SUDEP.
Dr. Daniel Lowenstein describes the urgency of finding a cure for epilepsy and how research will lead us to that cure.
One in 26 Americans will develop epilepsy in their lifetime and 65 million people worldwide are affected by epilepsy. These are the “faces of epilepsy.”