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Latest Episodes

September 1, 2021

#73 Epilepsy… It’s Complicated (rebroadcast)

Guest: Dr. Charles Marcuccilli

In a rebroadcast of an episode from June 2019, Dr. Charles Marcuccilli, Director of Pediatric Epilepsy at Rush University Medical Center in Chicago, explains why epilepsy is so misunderstood, discusses the stigma around it, and suggests what patients, caregivers and healthcare professionals can do to increase awareness and education around epilepsy.

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Living with EpilepsyTypes of Epilepsy
September 1, 2021

#73 Epilepsy… It’s Complicated (rebroadcast)

Guest: Dr. Charles Marcuccilli

In a rebroadcast of an episode from June 2019, Dr. Charles Marcuccilli, Director of Pediatric Epilepsy at Rush University Medical Center in Chicago, explains why epilepsy is so misunderstood, discusses the stigma around it, and suggests what patients, caregivers and healthcare professionals can do to increase awareness and education around epilepsy.

featured episode
Epilepsy Research
August 18, 2021

#72 Funding Epilepsy Research: How CURE Epilepsy advances science to find a cure

Guest: Beth Dean

CURE Epilepsy CEO Beth Dean explains how the organization funds research, why it remains “patient-focused” in its mission, and what areas of epilepsy research offer the most promise for finding cures.

featured episode
FamilyLiving with Epilepsy
August 4, 2021

#71 Epilepsy and College: Students and Parents Share Advice and Recommendations

Guest: Eva & Michelle Wadzinski, Caroline Pratt & Ashleigh Henrichs, Chrisin Godale

With students preparing to head back to college campuses, we revisit several previous episodes in which students with epilepsy and their parents share experiences and offer advice about choosing and attending college.

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Epilepsy ResearchLiving with Epilepsy
July 21, 2021

#70 From Epilepsy Researcher to Epilepsy Patient: A New Perspective

Guest: Dr. Steve White

Today on Seizing Life, we speak with epilepsy researcher, educator, and patient Dr. Steve White.  Dr. White has been involved in the field of epilepsy research for over 40 years, is a former CURE Epilepsy grant-recipient and a current member of the organization’s Scientific Advisory Board. He is also an epilepsy patient, having experienced his first seizure in 2010.

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FamilyTypes of Epilepsy
July 7, 2021

#69 Infantile Spasms: Awareness, Observation, and Intervention

Guest: Lissy Griffin

A mother’s awareness of infantile spasms and persistence contributes to a positive outcome for her daughter.

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Epilepsy and AdvocacyLiving with Epilepsy
June 23, 2021

#68 Living and Thriving with Epilepsy

Guest: Jon Sadler

Epilepsy patient, counselor, and author Jon Sadler discusses living with epilepsy for more than 50 years and how his experiences have shaped his perspective on epilepsy and informed his efforts to become a counselor and help fellow patients and caregivers.

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Epilepsy and AdvocacyFamily
June 9, 2021

#67 After SUDEP: A Journey of Grief and Hope

Guest: Geoff Applegate

After the loss of his fiancé to SUDEP, Geoff Applegate a single-parent was left coping with his own grief while also learning how to help his young son understand the loss of his mother.

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Epilepsy and AdvocacyFamily
May 26, 2021

#66 Epilepsy Education and Seizure Safety in Schools

Guest: Colleen Quinn & Paul St. Pierre

When Paul St. Pierre encountered a lack of understanding of epilepsy at his school, he and his mother, Colleen, took action to ensure that all schools in the state of New Jersey were educated on epilepsy and seizure safety.

featured episode
Epilepsy and AdvocacyLiving with Epilepsy
May 12, 2021

#65 Finding Balance: Managing Epilepsy and Work

Guest: Lauren Panco

For many people, their 20’s are an exciting time of personal and professional growth.  It may be the first time you’re on your own, beginning a career and making new friends. Your world is a mix of social activities and work responsibilities. You are young, ambitious, and in the prime of your life.  Then, out of nowhere, you have a seizure, and find yourself navigating a new world of doctors, neurologists, tests, and medications in an effort to balance epilepsy with your busy life. https://youtu.be/IT2x2GbL2Yk Lauren Panco was 26 years old, in the midst of a promising career with a fast-growing company, engaged to be married, and enjoying a busy professional and social lifestyle when she suddenly suffered a seizure. On this week’s Seizing Life®, Lauren, now 32, discusses the disturbing initial diagnosis she received, her concerns about the impact of epilepsy on her career, and how she has navigated workplace challenges with a determination not to allow epilepsy to define her. Lauren also offers advice for communicating with employers and co-workers and making the decision to have a baby as a woman with epilepsy.

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