December 1, 2021 / Dr. Renée Shellhaas, Kari Rosbeck, Beth Dean
This week on Seizing Life®, we focus on infantile spasms (IS), a rare and particularly severe epilepsy syndrome that typically begins within the first year of life. How do you get an accurate diagnosis? And what do you do if your baby is diagnosed with IS?
November 17, 2021 / Daniel, Paula and David Allbeck
This week on Seizing Life we speak with Daniel Allbeck and his parents Paula and David Allbeck about their family’s journey with epilepsy. From the time of Daniel’s first seizure and subsequent diagnosis at the age of 22, Paula began researching and learning as much as she could about epilepsy.
November 3, 2021 / Dr. Lauren Harte-Hargrove, Patty and Patrick Horan, Alec Beauseigneur-Jimenez and Katie Beauseigneur
In observance of Veterans Day, this week on Seizing Life ® we focus on TBI and PTE in veterans. We revisit past conversations with Retired Army Captain Patrick Horan and former Marine Alec Beauseigneur-Jimenez, both of whom suffered a TBI in the line of duty and developed PTE as a result of their injuries. Additionally, we speak with Dr. Lauren Harte-Hargrove, Associate Director of Research at CURE Epilepsy.
October 20, 2021 / Dr. Elizabeth Donner
On this episode of Seizing Life, we speak with former CURE Grantee and the Director of the Comprehensive Epilepsy Program at The Hospital for Sick Children in Toronto Dr. Elizabeth Donner about all aspects of SUDEP.
October 6, 2021 / Cindy and Elvin Angulo
For many people living with epilepsy, seizures are just one of the challenges. Often an epilepsy diagnosis comes with other medical issues. While rare, one such condition can be Sturge-Weber, a vascular disorder in which blood vessels in the brain form abnormally, resulting in a facial birthmark (referred to as a port-wine stain), eye abnormalities such as glaucoma, and often seizures
September 22, 2021 / Mary and Tom Nugent
This week on Seizing Life® we speak with Mary and Tom Nugent, parents of 3 young men, two of whom have grown-up with epilepsy. With one son severely impacted from infancy and another diagnosed at the age of 9, the Nugents have experienced the vastly different impacts of epilepsy in the microcosm of their own household.
September 1, 2021 / Dr. Charles Marcuccilli
In this rebroadcast of a Seizing Life episode from June 2019, we speak with Dr. Charles Marcuccilli, Director of Pediatric Epilepsy at the Rush University Medical Center. Dr. Marcuccilli explains why epilepsy is so misunderstood, discusses the history and impact of stigma around it, and suggests what patients, caregivers and healthcare professionals can do to increase awareness and education around epilepsy.
April 28, 2021 / Elissa Moore
When and how do you push back against medical professionals? Where do you go for information, and how do you access the best care for your child?
August 18, 2021 / Beth Dean
If you have listened to the Seizing Life podcast you know that it’s produced by CURE Epilepsy. But do you know what CURE Epilepsy, the organization, actually does? Are you aware of its mission and how it funds epilepsy research to help accelerate science and find a cure?