September 1, 2021 / Dr. Charles Marcuccilli
In this rebroadcast of a Seizing Life episode from June 2019, we speak with Dr. Charles Marcuccilli, Director of Pediatric Epilepsy at the Rush University Medical Center. Dr. Marcuccilli explains why epilepsy is so misunderstood, discusses the history and impact of stigma around it, and suggests what patients, caregivers and healthcare professionals can do to increase awareness and education around epilepsy.
April 28, 2021 / Elissa Moore
When and how do you push back against medical professionals? Where do you go for information, and how do you access the best care for your child?
August 18, 2021 / Beth Dean
If you have listened to the Seizing Life podcast you know that it’s produced by CURE Epilepsy. But do you know what CURE Epilepsy, the organization, actually does? Are you aware of its mission and how it funds epilepsy research to help accelerate science and find a cure?
August 4, 2021 / Eva & Michelle Wadzinski, Caroline Pratt & Ashleigh Henrichs, Chrisin Godale
With students preparing to head back to college campuses, we revisit several previous episodes in which students with epilepsy and their parents discuss their experiences choosing and attending college.
July 21, 2021 / Dr. Steve White
Today on Seizing Life, we speak with epilepsy researcher, educator, and patient Dr. Steve White. Dr. White is a professor and Chair of the Department of Pharmacy at the University of Washington. He is also an epilepsy patient, having experienced his first seizure in 2010.
July 7, 2021 / Lissy Griffin
On this episode of Seizing Life, Lissy recounts her daughter’s onset, diagnosis and ACTH steroid treatment for infantile spasms. She also explains why early detection and treatment are so important, where to find infantile spasms support groups, and how awareness and education among parents, caregivers, and doctors can result in positive outcomes for infants with I.S.
June 23, 2021 / Jon Sadler
On this week’s Seizing Life, epilepsy patient, counselor, and author Jon Sadler discusses his 50-year journey living with epilepsy. Jon’s experiences reflect many of the challenges and concerns of people with epilepsy including stigma, employment, family, dealing with changing treatments and side-effects, and undergoing life-changing brain surgery.
June 9, 2021 / Geoff Applegate
n August of 2020, Geoff Applegate lost his fiancé Zsatara to SUDEP just weeks before the couple was to be married. Geoff shares his ongoing journey through the grieving process including what he has personally found helpful, what he’s learned about helping his son cope with the loss, and how he keeps Zsatara’s memory alive by raising awareness about SUDEP.
May 26, 2021 / Colleen Quinn & Paul St. Pierre
When a recurring eye twitch led to a diagnosis of epilepsy, Paul St. Pierre found himself trying to gain seizure control while managing medication side effects and trying to maintain his grades. With the help of their state senator, they gathered support for a bill to ensure epilepsy education and seizure safety in all New Jersey schools.