Episode #64 - A Mother’s Determination: Advocating for Your Child’s Epilepsy Care featuring Elissa Moore

Seizing Life > A Mother’s Determination: Advocating for Your Child’s Epilepsy Care
Share
Subscribe

It’s a parent’s worst fear: Your child is suddenly stricken with a serious, debilitating chronic illness. You go to the hospital, listen to physicians and specialists, and follow the path they set out for your child’s treatment … but there’s no improvement. In fact, the situation worsens. Frustration increases and becomes desperation. You’re not a doctor, but you know your child better than anyone. When and how do you push back against medical professionals? Where do you go for information, and how do you access the best care for your child?

On this week’s Seizing Life, we speak with Elissa Moore about her journey to get effective treatment for her son Cormac when he experienced a sudden and explosive onset of seizures at age nine. Elissa recounts their journey to a diagnosis and details the challenges they encountered in pursuit of the right treatment for Cormac’s epilepsy. She talks frankly about the debilitating physical and mental side effects of medication and her increasing frustration with the healthcare system. Elissa also offers advice for parents and caregivers who find themselves in similar circumstances and advocates for better epilepsy awareness and training within the medical system.

Download Audio

Want to download this episode? Fill out the form below and enjoy the podcast any time you’d like!

    Back to Episode Download PDF

    A Mother’s Determination: Advocating for Your Child’s Epilepsy Care - Transcript

    Related Episodes

    featured episode
    Epilepsy and AdvocacyEpilepsy Research
    May 31, 2023

    #117 Epilepsy Researcher Compounds Lab Work with Fundraising

    Guest: Dr. Patrice Jackson-Ayotunde

    This week on Seizing Life® Dr. Patrice Jackson-Ayotunde discusses her 20+ years of epilepsy drug research and her decade-long epilepsy fundraising efforts.

    featured episode
    Epilepsy and AdvocacyLiving with Epilepsy
    May 17, 2023

    #116 A Daughter’s Diagnosis Inspires Concerts for Epilepsy

    Guest: Matt Perrone

    This week on Seizing Life® Matt Perrone shares his epilepsy journey, discusses the impacts of epilepsy on his mental health, and explains how his daughter’s diagnosis spurred him to create EpiPalooza.

    featured episode
    HealthcareLiving with Epilepsy
    April 5, 2023

    #113 The Crucial Role of Nurses in Epilepsy Care

    Guest: Lucretia Long

    This week on Seizing Life® Advanced Practice Provider Lucretia Long shares her 30 years of experience in the epilepsy field and discusses the crucial role nurses and other non-physician providers play in epilepsy care.