July 15, 2020 / Sherri Brady
Our guest this week is mother and advocate, Sherri Brady. Her daughter, Lauren was diagnosed with Rett Syndrome, a rare disorder that can have devastating impacts, including seizures. For the past 20 years, Sherri has gathered the tools she needs to advocate for Lauren’s care in a biased system.
July 1, 2020 / Christin Godale
As a child growing up with epilepsy, Christin Godale experienced stigma and exclusion by her peers, driving her to hide her condition from friends and classmates. But a neurologist’s encouragement sparked Christin’s interest in understanding her own epilepsy and eventually brought her to acceptance, advocacy, and the pursuit of her PhD in neuroscience with the ultimate the goal of becoming an epilepsy researcher.
June 17, 2020 / Ashleigh Henrichs and Caroline Pratt
Caroline Pratt was diagnosed with epilepsy at 8 years old. Now 17, Caroline has battled seizures and the physical and emotional impacts. But with Caroline now attending college and living away from home for the first time, both parent and child have had to make concessions and changes within their relationship.
June 3, 2020 / Dr. Andres Kanner
In this episode of Seizing Life, explore the psychological impacts of epilepsy that can result in mood disorders, like depression and anxiety with Dr. Kanner, Director of the International Comprehensive Epilepsy Center and Chief of Epilepsy Division at the University of Miami, Miller School of Medicine.
May 20, 2020 / Rob Moss
While this app comes from humble beginnings, Seizure Tracker now provides patients, families, and physicians the ability to track, understand, and treat seizures, as well as tools to manage treatment regimens and document medication side effects.
May 6, 2020 / Patricia Gibson
One in 26 Americans will develop epilepsy in their lifetimes and millions more will be touched by this devastating condition. While the diagnosis can be challenging there are people and groups who can provide support in many different ways. The trick is how to find them.
April 22, 2020 / Jessica Rosini and Beth Scolis
In these challenging times of the COVID-19 pandemic, we are all trying to adjust to a “new normal”. But for individuals, caregivers, and families battling epilepsy, current shelter-in-place guidelines bring additional challenges and concerns.
April 8, 2020 / Dr. Vicky Whittemore
On this episode of Seizing Life, Dr. Vicky Whittemore, Program Director for Epilepsy and Epileptogenesis at NINDS and CURE Scientific Advisory Council member, explains how NINDS sets priorities, funds research, and collaborates with non-profits to move science forward in pursuit of new treatments for epilepsy.
March 25, 2020 / Dr. Jeffrey Loeb
On this episode of Seizing Life, CURE Post-Traumatic Epilepsy Initiative Grantee Dr. Jeffrey Loeb from the University of Illinois at Chicago explains how EEG data is used in diagnosing, treating, and researching epilepsy.
