March 27, 2019 / Laurel Henson and Wendy Katten
In this episode of Seizing Life, hear what mother and advocate Laurel Henson and her son, Mason, face as a result of a nursing shortage in their school district. Laurel describes the daily physical and emotional challenges Mason experiences as a student with epilepsy due to the lack of a full-time nurse assigned to his school.
March 20, 2019 / Tom Stanton
Sudden Unexpected Death in Epilepsy (SUDEP) is a risk for the more than 1/3 of people with epilepsy whose seizures are uncontrolled, and one the wider epilepsy community needs to be aware of. Often occurring when a person is asleep, SUDEP is a major concern for epilepsy patients and families alike.
March 13, 2019 / Howard Zwirn
The decision to explore brain surgery for epilepsy is both medical and personal. Discover how Howard Zwirn made this difficult decision and gained 15 years of freedom from seizures.
March 6, 2019 / Dr. Laura Lubbers
Cannabidiol (CBD) and epilepsy made headlines, but what do patients and parents need to know about using CBD as a treatment option?
February 27, 2019 / Dr. John Millichap
Hundreds of genes are associated with epilepsy, but what causes the variations in those genes which lead to this condition? And how do you know if you or your child are a candidate for genetic testing? Learn the answers to your epilepsy genetics questions in this episode of Seizing Life, produced by CURE.
We speak with Dr. John Millichap, Pediatric Epileptologist at Ann and Robert H. Lurie Children’s Hospital of Chicago and Associate Professor of Neurology and Pediatrics at Northwestern University Feinberg School of Medicine. He discusses both the basics of epilepsy genetics and the potential power of genetic testing for epilepsy patients.
While we have made steps towards understanding how genetics causes epilepsy, we have so much more to do.
More than 50% of people with epilepsy still do not know the cause. Without this information, it can be extremely challenging to find the best treatment. But further funding of genetic epilepsy research could close this gap. CURE has been instrumental in leading us towards personalized medicine based on epilepsy and genetics. Help us do more by donating to Citizens United for Research in Epilepsy.
February 20, 2019 / Stacey Pigott and Shalee Cunneen
CURE Chair Elect Stacey Pigott and CURE Champion Shalee Cunneen discuss individualized education programs (IEPs) on this episode of Seizing Life.
February 19, 2019 / Susan Axelrod
CURE Founder Susan Axelrod discusses her daughter Lauren’s fight against epilepsy and how it inspired her mission to find a cure in this episode of Seizing Life.
February 6, 2019 / Kurt Eichenwald
In A Mind Unraveled, journalist and New York Times bestselling author Kurt Eichenwald tells his gripping and inspirational story about living with intractable epilepsy and the discrimination he faced over the years due to his epilepsy. His life-and-death struggle with his health and difficulty finding a medical professional willing to help him paints an astounding portrait, emphasizing why spreading epilepsy awareness and eliminating stigma is critical.
January 22, 2019 / Lauren Schrero
In this episode, The Nora Project co-founder and executive director, Lauren Schrero discusses how to teach students to be compassionately curious about differences.
