fbpx

Episode #78 - A Family’s Epilepsy Journey: From Diagnosis to Surgery featuring Daniel, Paula and David Allbeck

Seizing Life > A Family’s Epilepsy Journey: From Diagnosis to Surgery
Share
Subscribe

An epilepsy diagnosis doesn’t just impact the person who is diagnosed, it affects everyone close to them. In particular, the family often plays a significant role providing emotional and physical support, advice, and sometimes even information and recommendations on care and treatment. Many people with epilepsy will tell you that their support team is vital to achieving their best life while also maintaining their health and safety.

This week on Seizing Life we speak with Daniel Allbeck and his parents Paula and David Allbeck about their family’s journey with epilepsy. From the time of Daniel’s first seizure and subsequent diagnosis at the age of 22, Paula began researching and learning as much as she could about epilepsy. As Daniel’s seizures became more frequent, resulting in the loss of his job and much of his independence, his parents continued to research epilepsy and advocate with doctors for effective treatments. Paula’s discovery of CURE Epilepsy and Lauren Axelrod’s story led to speaking to an epileptologist about Keppra, which provided Daniel with his first significant relief from seizures. Eventually, Paula and David’s quest for epilepsy information led them to volunteer at a CURE Epilepsy Day of Science* event where they received valuable information on surgery options. This ultimately led Daniel to undergo brain surgery, a choice that has led to a dramatic decrease in his seizures and significantly improved his quality of life.

*Since renamed CURE Epilepsy CARES

Download Audio

Want to download this episode? Fill out the form below and enjoy the podcast any time you’d like!

    Back to Episode Download PDF

    A Family’s Epilepsy Journey: From Diagnosis to Surgery

    Related Episodes

    featured episode
    Epilepsy and AdvocacyLiving with Epilepsy
    March 8, 2023

    #111 Sharing Epilepsy Diagnosis After Decades Leads to Climbing for Research

    Guest: Carmen Zannier

    This week on Seizing Life® Carmen Zannier shares her 35 year epilepsy journey, discusses her recent decision to go public with her diagnosis, and explains how her passion for mountain climbing has led her to raising funds for epilepsy research.

    featured episode
    FamilyLiving with Epilepsy
    February 22, 2023

    #110 Epilepsy Can’t Stop Young Girl’s Competitive Spirit

    Guest: Christiane, Christy, and Lawrence Tsane

    This week on Seizing Life®, the Tsane family share daughter Christiane’s epilepsy diagnosis and treatment journey, and explain how they manage her seizures while nurturing her love of competitive running.

    featured episode
    Living with Epilepsy
    February 8, 2023

    #109 After Decades of Seizures, an Epilepsy Diagnosis Begins to Provide Answers

    Guest: Ara Carbonneau

    This week on Seizing Life® Ara Carbonneau shares her decades-long epilepsy journey from initial febrile seizures caused by meningitis at seven months old to her epilepsy diagnosis at the age of 36.