Orange Theory Fundraiser

Olivia is 11 years old and was diagnosed with epilepsy in March of 2019. It was the scariest time in her family’s life and her parents don’t want any other families to have this experience.

Now Team Olivia will RUN…ROW…and LIFT for a cure for epilepsy!

They ask for your support. Visit their team page to donate in honor of Olivia!

Dressage for a Cause

Saddle up for a wonderful day at the stables with Dressage for a Cause, a fundraiser for CURE!

CURE Champion Channing and Majestic Farms are hosting this event as part of the annual Turkey Trot Horse show. Channing had her first seizure days before her very first horse show. Instead of competing, she underwent a CT scan just a few days before her 10th birthday.

Channing’s love of horse riding continued and she was eventually able to compete. After countless anti-seizure medication combinations, her doctors arrived at a cocktail of meds that control the tonic-clonics. But now, 16 years into epilepsy, it’s the side-effects of the meds that can sometimes take days to recover from.

And that’s why Channing is taking her fight into the arena with Dressage for a Cause. Dressage is a true test of horse & rider that has its roots in the military, which is fitting, since Channing is a fierce epilepsy warrior in the arena fighting for a cure!

The goal is to raise $2,500! Donations are always welcome, and we now have sponsorship opportunities available (message TeamChanning or Majestic Farm on Instagram or Facebook to become a sponsor):

Baby Carrot Sponsors– Sponsor as many purple carrots as you like for only $1/carrot, or a bunch of 6 for $5! Horses love carrots, and we want to give the horses at the C.U.R.E. horse show a lot of purple-carrot-love! We’re sowing seeds for a cure in July for a purple carrot harvest in November during Epilepsy Awareness Month!

Carrot Cake Sponsors – There are over 50 different classes (divisions) at the November 9- 10 CURE Epilepsy Horse Show. Sponsorships are $25 each on a first come, first served basis.
Want to be a sponsor? Great! Want to add a class to sponsor? No problem! Just message TeamChanning or Majestic Farm on Instagram or Facebook!

Carrot Top Sponsors – Corporate sponsorships are now available! Want to be a sponsor? No problem! Just message TeamChanning or Majestic Farm on Instagram or Facebook!

Find a Cure Title Sponsorship – $1,850 includes Title sponsorship (‘Your Company Name’ presents Dressage for a Cause: a Fundraiser for CURE); 5 of your company banners (supplied by you) prominently displayed in the main show arenas and show grounds entrance; Your company name as official sponsor in all print and advertising; Your company name and logo on all competitor ribbons ($850 for custom ribbons, $1,000 to CURE!).

Quality of Life Sponsorship – $750 includes 3 of your company banners (supplied by you)prominently displayed in the main show arenas and show grounds entrance; Your company name and logo in all print and advertising; Your company name and logo on all competitor numbers ($100 for custom numbers, $650 to CURE!).

End the Stigma Sponsorship – $100 includes 2 of your company banners (supplied by you)prominently displayed in the main show arenas and show grounds entrance; Your company name and logo in all print and advertising.

Facebook Fundraising

#GivingTuesday

Facebook FundraisingJoin the #GivingTuesday movement on Tuesday, December 3!

Support cutting-edge epilepsy research by starting a Facebook Fundraiser or donating to one on #GivingTuesday and show your friends and family just how important finding a cure is to you.

Processing fees are waived for donations made to CURE through Facebook, ensuring 100% of your gift supports CURE’s mission to find a cure for epilepsy, by promoting and funding patient-focused research.

Your gift on #GivingTuesday makes double the impact! A generous donor will match all gifts made on December 3 up to $25,000.

Epilepsy Awareness Day at Disneyland

Let’s paint Disneyland purple at the 7th Annual Epilepsy Awareness Day at Disneyland Resort! This family-friendly event on November 4-6 unites epilepsy patients, families, doctors, researchers, and organizations.

At the CURE booth, you can learn about the latest developments in epilepsy research and win the opportunity to share your story on stage!

Each expo day, CURE will interview researchers and clinicians from around the country. They will share their insights on a wide range of topics in the field of epilepsy. Drop by our booth in the morning to see the schedule of who will be speaking when.

Additionally, share your story about how a cure for epilepsy would change your life, and be entered to win the chance to be interviewed live! Each day, five lucky people who’ve shared their “When You Wish Upon A CURE” story will be selected to be filmed live.

CURE will also host two informational sessions featuring a panel of expert clinicians and researchers in the field of epilepsy.  This will allow attendees an opportunity to engage directly with the panel through an interactive Q&A portion.

The first session titled “The Changing Landscape: New Epilepsy Therapies” will cover the latest research in new treatments for epilepsy and will be held on Monday, November 4th from 3:30pm to 4:30pm in the Sleeping Beauty Pavilion .  Our experts will cover topics such as CBD use, rescue medications that have recently been approved and those in the pipeline, devices, and new research in surgical approaches to treating epilepsy.

The second session titled “Clinical Trials for New Therapies: Understanding Your Role” (Tasia will modify) will be held on Tuesday, November 5th from 10:30am to 11:30am in the Sleeping Beauty Pavilion. This session will cover how the clinical trial process works from start to finish and beyond, explain commonly used terms in clinical trials, talk about issues such as privacy and confidentiality that participants should be aware of, and discuss how the patient community can lend their voice to the process. You will also have the opportunity to hear from people who have participated in trials.

Both sessions will be 60 minutes long and will include a Q&A session where you will have the opportunity to ask questions such as:

  • Are rescue meds only for those individuals who experience seizure clusters?
  • Is it safe to use CBD supplements?
  • What are the benefits and risks associated with participating in clinical trials?

At the conclusion of each session, you will have time to interact with the panelists and/or the CURE team. We hope that you can join us!

Chicago Half Marathon/5K

CURE is proud to be a partner of the 2019 Chicago Half Marathon/5K here in our hometown, and is inviting you to join our team!

As a part of Team CURE, you’ll be a CURE Champion who helps us race to end epilepsy.  100% of Team CURE fundraising efforts support our mission to find a cure for epilepsy, by promoting and funding patient-focused research.

Team CURE members who meet these fundraising levels receive:

  • Patron of Discovery (Raise $250 and above)
    • $10 off race entry
    • Personalized Team CURE online fundraising page
    • Team CURE race hat
    • Invitation to race weekend activities and cheering fans along the course
    • Coaching and training plans via email
    • Prizes from fundraising challenges
  • Patron of Research (Raise $500 and above)
    • Team CURE performance race shirt
    • $10 off race entry
    • Personalized Team CURE online fundraising page
    • Team CURE race hat
    • Invitation to race weekend activities and cheering fans along the course
    • Coaching and training plans via email
    • Prizes from fundraising challenges
  • Patron of Determination (Raise $1000 and above)
    • Team CURE performance race jacket
    • Team CURE performance race shirt
    • $10 off race entry
    • Personalized Team CURE online fundraising page
    • Team CURE race hat
    • Invitation to race weekend activities and cheering fans along the course
    • Coaching and training plans via email
    • Prizes from fundraising challenges
  • Patron of Hope (Raise $2500 and above)
    • Free entry into the 2019 CURE Benefit, where past entertainers include Eddie Vedder, Paul Simon, John Stewart, and Barack Obama
    • Team CURE performance race jacket
    • Team CURE performance race shirt
    • $10 off race entry
    • Personalized Team CURE online fundraising page
    • Team CURE race hat
    • Invitation to race weekend activities and cheering fans along the course
    • Coaching and training plans via email
    • Prizes from fundraising challenges

Registration Fees:

  • Half Marathon:  $105 until July 26
  • Life Time 5K:  $40 until July 5

To register, email Brandon Laughlin at events@cureepilepsy.org

Fitzgerald Physical Therapy Golf Outing Fundraiser

CURE Champions Megan Cullen and Garrett McCarthy are co-hosting the Fitzgerald Physical Therapy Golf Outing Fundraiser. Megan was diagnosed at the age of 18 and battled epilepsy for years before gaining seizure freedom through medications.  She has now been seizure-free for nearly 10 years.

Megan and Garrett are co-hosting the tournament in collaboration with Fitzgerald Physical Therapy Associates to raise money for epilepsy research and spread awareness of this condition that effects so many.

The sign-up deadline is April 18.

Please contact Megan or Garrett to register to participate:
Megan Cullen 781-307-5678
Garrett McCarthy 781-307-5677

A portion of all registration fees will benefit CURE. If you cannot attend, but would like to donate, visit: http://cureep.convio.net/goto/Golf

Altitude Jump-a-thon

CURE Jump-A-Thon

Go ahead and jump at Altitude Trampoline Park’s first-ever charity event, benefiting CURE!

All families are welcome to join us to raise funds for epilepsy research on Sunday, May 19th from 10am-1pm. In addition to access to all 14 of Altitude Chicago’s trampoline park attractions, there will be a designated area on the trampolines as well as a sensory room for those individuals with limited abilities to continue to enjoy and participate in the event.

We are honored to collaborate with Kelly and Miguel Cervantes who are passionate advocates for epilepsy awareness in Chicago because of their daughter, Adelaide. They will be attending the event with Adelaide and their son, Jackson.  Miguel, who also plays Alexander Hamilton in Hamilton will be performing a few songs for our guests, as well.

Complimentary food and beverage will be provided by local food trucks throughout the event.

This event is open to the public. Purchase tickets ahead of the event online or at Altitude on the day of the event.

All attendees, including both parents and children, require a ticket for the Jump-A-Thon.
Ticket prices:
$20 – Children (2-6 years)
$35 – Children (7 years and older) and Adults

100% of the proceeds from ticket sales benefit CURE.

1:26 The Art of Epilepsy in Boston

1:26 The Art of Epilepsy art exhibition was an inspiring event. We’re so grateful to the artists, guests, and sponsors who made this amazing event possible. Hear from the artists themselves about how they explore their experiences living with epilepsy in this video produced by Ingrid Pfau.

Join Hidden Truths Project and CURE for the 1:26 The Art of Epilepsy reception and art exhibit. This event honors Dr. Steven Schachter, Chief Academic Officer and Program Leader of Neurotechnology at the Consortia for Improving Medicine with Innovation & Technology (CIMIT) and Professor of Neurology at Harvard Medical School, as well as CURE Grantee Dr. Kevin Staley, Chief of Pediatric Neurology at Massachusetts General Hospital and the Joseph P. and Rose F. Kennedy Professor of Child Neurology and Mental Retardation, Harvard Medical School.

This will be an evening of inspired artwork created by artists, who span the globe linked by the common thread of epilepsy. The reception and art exhibition are being held at the newly renovated EpiCenter of Boston. At 1:26 The Art of Epilepsy, you will learn more about this nationwide art event, the fight against epilepsy stigma, and why epilepsy research is so critically needed in the quest for a cure.

The exhibit will focus on epilepsy-based art that reflects the seizure state, the psychosocial impact of living with epilepsy, and the technology involved in evaluating these individuals, including the multiple MRIs, EEGs and other diagnostic tests.

The goal of the night is to provide a platform for this diverse population of individuals to let their voices be heard and their stories told. Although each of these artists stories’ are unique, their works become a collective force to combat the injustices, discrimination, and marginalization directed against these individuals, many who continue to live in the shadows of this diagnosis.

Proceeds from 1:26 The Art of Epilepsy benefit CURE.

Tickets may be purchased in advance online or in-person on the day of the event. 1:26 The Art of Epilepsy is a 21+ event. The original art will be on display and available for sale the night of the event.

Make a weekend of it! 1:26 The Art of Epilepsy is happening the evening before CURE’s Day of Science event in Boston on Saturday, May 11. Learn more about this educational, community event and register.

A Mind Unraveled

A Mind Unraveled Book Signing in Corte Madera

Kurt Eichenwald is heading to Corte Madera to give a reading of A Mind Unraveled: A Memoir, the compelling story of his ongoing struggle with epilepsy, his torturous decision to keep his condition a secret to avoid discrimination, and his ensuing decades-long battle to not only survive, but to thrive.

In addition to reading a passage from A Mind Unraveled, Kurt Eichenwald will take questions and sign books. 50% of the royalties from the purchase of A Mind Unraveled benefit CURE.

“Eichenwald’s Story is breathtaking: devastation and inspiration all under one cover.”
Susan Axelrod, CURE Founder

Can’t make this reading? Eichenwald will also read and sign books at Mrs. Dalloway’s in Berkeley. Learn more here.

A Mind Unraveled

A Mind Unraveled Book Signing in Berkeley

Kurt Eichenwald is heading to Berkeley to give a reading of A Mind Unraveled: A Memoir, the compelling story of his ongoing struggle with epilepsy, his torturous decision to keep his condition a secret to avoid discrimination, and his ensuing decades-long battle to not only survive, but to thrive.

In addition to reading a passage from A Mind Unraveled, Kurt Eichenwald will take questions and sign books. 50% of the royalties from the purchase of A Mind Unraveled benefit CURE.

“Eichenwald’s Story is breathtaking: devastation and inspiration all under one cover.”
Susan Axelrod, CURE Founder

Reserve your seat by purchasing a copy of A Mind Unraveled by ordering through the Mrs. Dalloway’s website. or by speaking to a bookseller in-store.

Can’t make this reading? Eichenwald will also read and sign books at Book Passage in Corte Madera. Learn more here.