EPILEPSY RESEARCH AND COVID-19
COVID-19 Vaccines and Epilepsy: What You Should Know
Dr. Elizabeth Thiele, MD, PhD, and Director of the Pediatric Epilepsy Program at Massachusetts General Hospital addresses questions and concerns that people with epilepsy and their families have about getting vaccinated.
Status of Epilepsy Research at CURE Epilepsy
A message from Beth Lewin Dean, CURE Epilepsy CEO
Our promise to you is that we will fund groundbreaking research to find the causes of epilepsy to help accelerate science to find a cure. Our commitment is that we will not stop until we can live in a world without epilepsy.
While the world was focused on finding a vaccine for COVID-19, CURE Epilepsy remained steadfast in our commitment to fund science to find a cure for epilepsy, because even during times of pandemic, epilepsy doesn’t stop, and neither did we.
CURE Epilepsy Resources
Live Stream: COVID-19 and Epilepsy Management (March 18, 2020)
Live Stream: Healthcare Trends and Working with Insurance (April 14, 2020)
Seizing Life Podcast: The Impact of COVID-19 on Epilepsy Research
Seizing Life Podcast: Parenting, Epilepsy, and COVID-19
Guide to Virtual Healthcare Visits
TSC Now Podcast on Managing COVID-19 and Epilepsy with Dr. Laura Lubbers
CURE Epilepsy Responds to Researchers' Needs
CURE Epilepsy provides additional funding to researchers impacted by COVID-19
We are delighted to announce our most recent grant recipients for our newest grant mechanism. Recognizing a need to support the epilepsy research community as it faces unanticipated challenges due to the pandemic, we launched the CURE Epilepsy Research Continuity Fund, made possible by the generous support of the Cotton Family, in memory of Vivian Cotton.
Every Dollar Counts
In these challenging times, we remain steadfast in our commitment to our mission: funding research to find a cure for epilepsy. Our researchers’ important work continues through the current public health crisis and beyond. This is only possible because of generous donors who, like us, want to realize our vision of a world without epilepsy.
We have a responsibility to ensure that we act in our community’s and the public’s best interests. We have postponed public events for the time being. Now more than ever, it is critical that we do everything to minimize risk to the epilepsy community.
Even with the suspension of public events, the community’s creativity and passion continues. We have been amazed by our many CURE Epilepsy Champions who have reimagined their events so they can continue to bring together their community and raise funds. To make a gift or start your own fundraiser, please use the links below.
Full Live Streams
COVID-19 and Epilepsy Management
Facebook Live Stream, March 18, 2020
During this live stream, a panel of neurologists fielded audience questions on COVID-19 and how this disease may impact individuals with epilepsy.
This live stream featured pediatric epileptologist Dr. Douglas Nordli from UChicago Medicine, as well as neurologist Dr. Jeffrey Loeb and neuroimmunologist Dr. Michael Carrithers from the University of Illinois at Chicago.
[Update] Thank you so much to everyone for your insightful questions! You can find a list of all the questions our speakers addressed and timestamps in the comments of this post._____Do you have questions on COVID-19 and epilepsy? Ask epileptologist Dr. Jeffrey Loeb and neuroimmunologist Dr. Michael Carrithers during this live stream! Comment with your questions below ahead of the stream or join us live for the opportunity to have your questions answered.
Posted by CURE: Citizens United for Research in Epilepsy on Wednesday, March 18, 2020
Healthcare Trends and Working with Insurance
Facebook Live Stream, April 14, 2020
In this live stream, panelists update us on the latest research on COVID-19 and epilepsy management, as well as field questions from the community about the medical supply chain, expanded access to telehealth, and beyond.
This live stream featured Comprehensive Epilepsy Program Director and pediatric neurologist Dr. James Wheless from Le Bonheur Children’s Hospital, BlueCross BlueShield of Illinois Medical Director Dr. Tony R. Vancauwelaert, and Health Research Institute Leader at PwC United States Benjamin Isgur.
Ask the Experts! COVID-19, Epilepsy, Medication Trends, and Working with Insurance
Thank you so much to everyone for joining us and asking such insightful questions! We will update the CURE website to include this live stream, as well as a list of the questions our speakers addressed and a downloadable transcript.
Posted by CURE: Citizens United for Research in Epilepsy on Tuesday, April 14, 2020
The information contained herein is provided for general information only and does not offer medical advice or recommendations. Individuals should not rely on this information as a substitute for consultations with qualified health care professionals who are familiar with individual medical conditions and needs. CURE strongly recommends that care and treatment decisions related to epilepsy and any other medical condition be made in consultation with a patient’s physician or other qualified health care professionals who are familiar with the individual’s specific health situation.
Additional Information and Resources
CDC Resources & Statements
Epilepsy Research
COVID Can Affect Brains of Hospitalized Kids
The initial impact of the SARS-COV2 pandemic on epilepsy research
Seizure a First Sign of COVID in Kids?
Delta, Omicron Infections: Seizures, Brain Fog, Dementia Risk Still High After 2 Years
Get Involved
Support The RISE Act to access increased funding for medical research
Wellness & Support
Paxlovid Information from FDA and Guidance for AES Members
COVID-19 Vaccine Information & Overview
Webinar series: COVID-19 Vaccination and Reaching People with Disabilities
What Is the Difference Between an Essential and a Nonessential Visit?
RISE Family Grants from the Child Neurology Foundation
Managing Anxiety in the Face of a Pandemic
People With Epilepsy at Slightly Increased Risk of More Severe COVID-19 Symptoms, Study Suggests