EPILEPSY RESEARCH AND COVID-19
Epilepsy Research Must Continue
A message from Susan Axelrod, CURE Founder
Status of Epilepsy Research at CURE
A message from Beth Lewin Dean, CURE CEO
The coronavirus pandemic has been the central force driving all aspects of life since March of this year. It has changed how we live, how we work, how we interact socially, and how we view the future. As the CEO of CURE, COVID-19 permeates everything that I do. From thinking about the safety of my team to the funding of our research grants to the planning of our annual benefit, I am constantly asking myself how do we continue to move forward, because although most aspects of our daily life have stopped amid COVID-19, epilepsy has not.
Every Dollar Counts
In these challenging times, we remain steadfast in our commitment to our mission: funding research to find a cure for epilepsy. Our researchers’ important work continues through the current public health crisis and beyond. This is only possible because of generous donors who, like us, want to realize our vision of a world without epilepsy.
We have a responsibility to ensure that we act in our community’s and the public’s best interests. We have postponed public events for the time being. Now more than ever, it is critical that we do everything to minimize risk to the epilepsy community.
Even with the suspension of public events, the community’s creativity and passion continues. We have been amazed by our many CURE Champions who have reimagined their events so they can continue to bring together their community and raise funds. To make a gift or start your own fundraiser, please use the links below.
Full Live Streams
COVID-19 and Epilepsy Management
Facebook Live Stream, March 18, 2020
During this live stream, a panel of neurologists fielded audience questions on COVID-19 and how this disease may impact individuals with epilepsy.
This live stream featured pediatric epileptologist Dr. Douglas Nordli from UChicago Medicine, as well as neurologist Dr. Jeffrey Loeb and neuroimmunologist Dr. Michael Carrithers from the University of Illinois at Chicago.
[Update] Thank you so much to everyone for your insightful questions! You can find a list of all the questions our speakers addressed and timestamps in the comments of this post._____Do you have questions on COVID-19 and epilepsy? Ask epileptologist Dr. Jeffrey Loeb and neuroimmunologist Dr. Michael Carrithers during this live stream! Comment with your questions below ahead of the stream or join us live for the opportunity to have your questions answered.
Posted by CURE: Citizens United for Research in Epilepsy on Wednesday, March 18, 2020
Healthcare Trends and Working with Insurance
Facebook Live Stream, April 14, 2020
In this live stream, panelists update us on the latest research on COVID-19 and epilepsy management, as well as field questions from the community about the medical supply chain, expanded access to telehealth, and beyond.
This live stream featured Comprehensive Epilepsy Program Director and pediatric neurologist Dr. James Wheless from Le Bonheur Children’s Hospital, BlueCross BlueShield of Illinois Medical Director Dr. Tony R. Vancauwelaert, and Health Research Institute Leader at PwC United States Benjamin Isgur.
Thank you so much to everyone for joining us and asking such insightful questions! We will update the CURE website to include this live stream, as well as a list of the questions our speakers addressed and a downloadable transcript.
Posted by CURE: Citizens United for Research in Epilepsy on Tuesday, April 14, 2020
The information contained herein is provided for general information only and does not offer medical advice or recommendations. Individuals should not rely on this information as a substitute for consultations with qualified health care professionals who are familiar with individual medical conditions and needs. CURE strongly recommends that care and treatment decisions related to epilepsy and any other medical condition be made in consultation with a patient’s physician or other qualified health care professionals who are familiar with the individual’s specific health situation.
Additional Information and Resources
CDC Resources & Statements
Wellness & Support
Some Coronavirus Patients Show Signs of Brain Ailments
New York Times, 4/1/2020