In this update you will find information on CURE-sponsored conferences and open positions at NINDS. In addition, your input is requested for the following:
- Curing the Epilepsies 2020: Setting Research Priorities – Response Deadline February 20
- Comment on Coordinating Care from Out-of-State Providers for Children with Medically Complex Conditions
Upcoming CURE-Sponsored Conferences
Each year CURE sponsors scientific conferences all around the world. These meetings aim to advance epilepsy research and encourage collaboration. This year we’re thrilled to announce the following CURE-sponsored conferences:
- Boston, MA: Lennox-Lombroso Pediatric Epilepsy Conference
- Dallas, TX: 4th International SLC13A5 Deficiency Research Roundtable
- Tagliacozzo, Italy: 7th International Residential Course on Drug Resistant Epilepsies
- San Servolo, Italy: 18th San Servolo Advanced Epilepsy Course
- Kissimmee, FL: Phelan-McDermid Syndrome Foundation Conference
- Barcelona, Spain: Gordon Research Conference (GRC) on Mechanisms of Epilepsy and Neuronal Synchronization
Career Opportunities: NINDS Small Business Program Director and Epilepsy Therapy Screening Program Scientific Project Manager
NINDS has two openings in Bethesda, MD: Small Business Program Director and Scientific Project Manager for the Epilepsy Therapy Screening Program.
The Small Business Program Director will have broad influence regarding highly complex scientific program and policy issues. Learn more about this position.
The Scientific Project Manager for the Epilepsy Therapy Screening Program will help facilitate the discovery and development of new therapeutic interventions for epilepsy. Learn more about this position.
Curing the Epilepsies 2020: Setting Research Priorities – Request for Information Response Deadline February 20
Ahead of this pivotal conference, which you can learn more about here, that will be convened to discuss advances in understanding the causes of epilepsy and the paths toward potential cures, NINDS is requesting input from doctors, researchers, impacted patients, and families.
Please use this form to provide perspective on the 2014 Epilepsy Research Benchmarks and share suggestions for new or ongoing research opportunities critical for advancing research toward cures for the epilepsies.
Request for Information on Coordinating Care from Out-of-State Providers for Children with Medically Complex Conditions
The Centers for Medicare & Medicaid Services (CMS) is requesting comment on coordinating care from out-of-state providers for children with medically complex conditions. Your responses will help inform efforts to craft guidance for state Medicaid directors.
CMS is seeking public comments on:
- Best practices for using out-of-state providers in coordinating care for children with medically complex conditions
- How care for such children is coordinated when that care occurs out-of-state
- Processes for screening and enrolling out-of-state providers, including efforts to streamline these processes or reduce the burden of these processes on such providers and states