You may have heard about the FDA’s landmark approval of Epidiolex, an epilepsy treatment which is over 98% cannabidiol (CBD). While CBD is a compound found in marijuana, it does not have psychoactive effects.
Since this approval, clinicians and patients have been asking great questions about how cannabidiol works to treat epilepsy and what risks may accompany its use.
An upcoming CURE webinar addresses the benefits and risks of using CBD to treat epilepsy. We’re excited to share what the latest research says and answer your questions about CBD and epilepsy. You can learn more about the webinar in this update. I hope you can join us to explore this fascinating topic.
Also in this update…
- A Free Webinar on The New Way to Describe Your Seizure Type
- Register Now for Day of Science in Los Angeles or Raleigh-Durham!
- CURE Champion Spotlight: How Erin Earnest Raised $73,000 for Epilepsy Research in Honor of Her Sister
- Secure Your Tickets to CURE’s 20th Annual Chicago Benefit on October 15
- Next CURE Events
I hope you’re having a great summer,
Laura S. Lubbers, PhD
Free Webinars on CBD & Epilepsy and The New Way to Describe Your Seizure Type
Curious how cannabidiol (CBD) can be harnessed to treat epilepsy? Discover what the latest research says in our upcoming webinar Cannabidiol and Epilepsy: The Real Risks and Benefits on Wednesday, October 24, at 1:00PM CT.
In this webinar, you will learn why CBD may be an effective treatment for certain types of epilepsy, the risks associated with CBD, and what the FDA approval of the CBD-based drug Epidiolex means for the future of epilepsy research and treatment.
Pediatric neurologist Anup D. Patel, MD, will lead the presentation and address your questions in a live Q&A.
Learn to communicate more effectively with your doctor by attending this month’s free webinar about The New Way to Describe Your Seizure Type on Wednesday, September 26, at 12:00PM CT.
During this presentation, you will learn the improved terminology recently adopted by the International League Against Epilepsy (ILAE) for organizing and describing seizure and epilepsy types.
Knowing these terms can help you communicate with your doctor about the treatment you need, the triggers to avoid, and what to expect in the future. Robert S. Fisher, MD, PhD, will present the webinar. Dr. Fisher led the ILAE taskforce responsible for these updated definitions and classifications.
Register Now for Day of Science in Los Angeles and Raleigh-Durham!
These free events give those impacted by epilepsy and their families the chance to learn from researchers and local physicians in an encouraging environment.
At Day of Science, a panel of epilepsy experts address audience questions and participate in small-group discussions over lunch with the attendees.
When you join us at Day of Science, you can ask questions, such as:
- What targeted treatments have been developed due to the discovery of new epilepsy genes?
- What are some of the breakthrough therapies for pediatric patients, including those with infantile spasms?
- What minimally invasive techniques are available to someone who may be considering surgery?
Stay tuned – registration for Day of Science in Miami opens soon.
CURE Champion Spotlight: How Erin Earnest Raised $73,000 for Epilepsy Research in Honor of Her Sister
Since 2011, CURE Champion Erin Earnest, along with family and friends, has hosted Teresa’s Birthday Benefit in honor of her sister, Teresa Walsh.
In November 2010, shortly after graduating college and while preparing to begin a master’s program, Teresa passed from Sudden Unexpected Death in Epilepsy (SUDEP). Teresa was diagnosed with epilepsy only five years earlier. In the years following her diagnosis, she dealt with dozens of seizures, countless doctors’ appointments, and several different medications, none of which stopped her seizures.
Erin is unrelenting in spreading epilepsy awareness and promoting epilepsy research. To date, Erin has raised $73,000 and brought 300 people together in Teresa’s honor with her CURE Champion event.
Erin’s commitment doesn’t stop there. As a member of CURE’s Development Committee since 2011, Erin has provided CURE with strategic direction and guidance on fundraising initiatives. Her professional experience as a campaign manager and current Director of Campaign Operations at the Asian Art Museum in San Francisco, CA makes her a tremendous asset.
Secure Your Tickets to CURE’s 20th Annual Chicago Benefit on October 15
This event features a reception, dinner, and musical performances by Rock & Roll Hall-of-Famers Eddie Vedder and Nils Lofgren, as well as the star of Chicago’s production of HAMILTON, Miguel Cervantes.
You’ll have the chance to bid on spectacular online auction items, including an E-Street Band signed guitar and 2 tickets to Springsteen on Broadway. See more auction items.
Interested in underwriting opportunities? Please contact Meghan Jorgensen at events@CUREepilepsy.org or 312-255-1801.
Webinar on The New Way to Describe Your Seizure Type – September 26
Day of Science in Los Angeles – September 29
CURE’s 20th Annual Chicago Benefit – October 15
Day of Science in Raleigh-Durham – October 27