CURE Update: Spread Epilepsy Awareness Online and In-Person
October 4, 2018
Coming soon: November is Epilepsy Awareness Month. By participating in events online and in-person, you can spread awareness about the critical need for epilepsy research.
Ahead of Epilepsy Awareness Month, let your friends and family know how important epilepsy research is by taking part in social media campaigns, such as SUDEP Action Day. Or, attend in-person events such as Epilepsy Awareness Day at Disneyland Resort and CURE’s Day of Science in Raleigh-Durham and Miami.
Also in this update…
- Discover the Real Risks and Benefits of Cannabidiol During a Free Webinar
- Enter to Win A Mind Unraveled, a Memoir by New York Times Bestselling Author Kurt Eichenwald
- Preview of Spectacular Online Auction Items to Support Epilepsy Research!
- Next CURE Events
Best regards,
Laura S. Lubbers, PhD
Spread the Word About the Critical Need for Research on SUDEP Action Day
SUDEP Action Day on October 23 strives to raise awareness worldwide about Sudden Unexpected Death in Epilepsy. SUDEP occurs when a seemingly healthy person with epilepsy dies for no known, obvious reason and is perhaps the most devastating possible consequence of epilepsy.
Funding research to discover what causes SUDEP is vital to preventing it. Be a part of a growing movement driving research, awareness, advocacy, and increased funding to tackle this problem.
Discover the Real Risks and Benefits of Cannabidiol During a Free Webinar
The uses and risks of treating epilepsy with cannabidiol (CBD) has been a controversial yet exciting discussion in the epilepsy community. Discover what the latest research says about epilepsy and CBD in our upcoming webinar Cannabidiol and Epilepsy: The Real Risks and Benefits on Wednesday, October 24 at 1:00PM CT.
This webinar explores why CBD can be an effective treatment for certain types of epilepsy, what risks are associated with CBD, and what the FDA approval of the CBD-based drug Epidiolex means for the future of epilepsy research and treatment.
Pediatric neurologist Anup D. Patel, MD, will lead the presentation and address your questions in a live Q&A. You can ask Dr. Patel questions, such as:
- Are all CBD products effective for the treatment of epilepsy?
- What side effects can result from taking CBD products, such as Epidiolex?
- Could CBD make my seizures worse?
Enter to Win A Mind Unraveled, a Memoir by New York Times Bestselling Author Kurt Eichenwald
In A Mind Unraveled, Kurt Eichenwald tells his raw and inspirational story about pursuing dreams while living with uncontrolled epilepsy.
Stigma and ignorance about epilepsy among medical professionals, school administrators, and employers threatened Eichenwald’s physical and emotional well-being for decades. In this memoir, Eichenwald details how he used these challenges to create a guide for reaching the future he desired.
A Mind Unraveled is available for preorder and hits shelves on October 16, but you can enter now to win a free copy.
“A Mind Unraveled left me overwhelmed and speechless. Eichenwald’s story is breathtaking: devastation and inspiration all under one cover.” – Susan Axelrod, Founder, CURE
Day of Science is coming to Raleigh-Durham and Miami!
At CURE’s Day of Science in Raleigh-Durhamand Miami, leading experts answer your questions about epilepsy.
These free events give those impacted by epilepsy and their families the chance to learn from researchers and local physicians in an encouraging environment.
At Day of Science, a panel of epilepsy experts address audience questions and participate in small-group discussions over lunch with the attendees.
When you join us at Day of Science, you can ask questions, such as:
- What targeted treatments have been developed due to the discovery of new epilepsy genes?
- What are some of the breakthrough therapies for pediatric patients, including those with infantile spasms?
- What are the risks associated with epilepsy surgery?
Register now for Day of Science in Raleigh-Durham or Miami.
Join Us for Epilepsy Awareness Day at Disneyland Resort
Let’s paint Disneyland purple at the 6th Annual Epilepsy Awareness Day at Disneyland Resort! This family-friendly event on November 5-7 unites epilepsy patients, families, doctors, researchers, and organizations.
On November 5 and 6, join us at the expo where you can get access to epilepsy resources while learning about new treatment options and devices. On November 7, head to Disneyland Park to enjoy the rides, build lasting friendships, and spread epilepsy awareness.
CURE has something super planned for this event – stay tuned for details!
Preview of Spectacular Online Auction Items to Support Epilepsy Research!
The online auction for CURE’s 20th Annual Chicago Benefit opens on October 9. This auction features exclusive items, such as:
- An E-Street Band signed guitar with 2 tickets to the sold-out Springsteen on Broadway show
- An Eddie Vedder signed guitar
- A Paul Simon personalized and signed guitar
- A James Taylor signed guitar
Stay tuned to learn how to place your bid on October 9!
Next CURE Events
The Hidden Truths Project’s 7th Annual 1:26 The Art of Epilepsy in Chicago – October 14
CURE’s 20th Annual Chicago Benefit – October 15
Webinar on Cannabidiol and Epilepsy: The Real Risks and Benefits – October 24
Day of Science in Raleigh-Durham – October 27
Day of Science in Miami – November 3