July 5, 2018

July CURE Update: Epilepsy Advocacy, Events, and Webinar

CURE has been active on Capitol Hill advocating for epilepsy research and I recently participated in several media interviews about the FDA approval of a new epilepsy drug. But in this month’s update, I’ll primarily focus on how you can advance epilepsy research by becoming a CURE Champion.

When you host a CURE Champion event, you bring your community together to increase awareness about epilepsy and the critical need for a cure. Whether a dance class, art exhibition, 5K run, or meet-up, your CURE Champion event can make a real difference in the quest for a cure.

Our CURE Champions are parents like the Cunneens, friends of families dealing with epilepsy like Arielle Singer, inspiring children like Belle Leal, and committed professionals like Dr. Julie Thompson-Dobkin. This month, take a moment to learn more about our CURE Champions and consider becoming one.

CURE Champion Spotlight: How the Cunneen Family Raised Over $100,000 for Epilepsy Research  

Blake and Shalee Cunneen, along with their children Ella and Sean, have been CURE Champions for three years. The Cunneens host Ella’s Race in La Grange, IL, which has raised nearly $100,000 and brought over 500 people together to support CURE and help combat epilepsy.

Blake and Shalee became CURE Champions for their daughter, Ella, who was first diagnosed with epilepsy just days after her first birthday. Ella is 8 years old now and has endured countless prolonged hospital stays and the side effects of 18 different medications. Unfortunately, Ella continues to have seizures.
Due to her frequent seizures, Ella’s development has been significantly slowed, but her indelible spirit remains untouched. She continues to attack each new challenge she faces with a smile.

“Finding a new and novel treatment and changing technology is currently our only hope for Ella to become seizure-free. CURE is constantly at the forefront of the epilepsy research community, and they are also very fiscally responsible with all the contributions they receive. We are proud to be volunteers for CURE, and Blake is also a Board Member for the organization. We are very passionate about this cause and believe CURE is the best agency out there to help us and Ella.” – Shalee Cunneen 

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