Recently I had the pleasure of joining a panel of epilepsy experts at CURE’s Day of Science in Philadelphia. It was a terrific opportunity for those affected by epilepsy to connect with researchers and clinicians to learn about the most recent epilepsy research.
During the panel discussion, the audience had the opportunity to ask the experts questions about the process of finding a cure and how the epilepsy community can help advance research. Afterwards, the conversation between panelists and attendees continued in small group discussions. Several CURE grant recipients attended the event and contributed their thoughts on the importance of recent research.
It was heartwarming to see the positive impact that CURE’s Day of Science in Philadelphia had on those with epilepsy, and to see people leave the event feeling hopeful and inspired.
There will be more Day of Science events around the US this year, and you can find details about them in this update. Read on to also learn about: how Seizure Tracker integrates with Amazon Alexa; a free epilepsy webinar; applying to host a CURE-funded seminar; and our 20th Annual Chicago Benefit.
Record Seizure Activity with Seizure Tracker and Amazon Alexa
Voice control systems like Amazon Alexa have the potential to help improve access to electronic seizure diaries while increasing the accuracy of epilepsy-related data. Now Seizure Tracker can be used with Amazon Alexa voice commands to record the start and end times of seizures. Seizure Tracker logs data gathered from the Amazon Alexa, allowing patients to create and share reports with their doctors.
CURE’s Epilepsy Genetics Initative (EGI) is partnered with Seizure Tracker to enable patients and physicians to monitor seizure activity and understand its relationship with epilepsy-related treatments. Patients with information in both EGI and Seizure Tracker can now link their data and share it with researchers to advance our understanding of epilepsy.