My journey is hard. I have hit my head a lot in my life. I take care of other people. I’m a Certified nurse assistant. I have been for 20 yrs. I love doing what I do. But I have this condition and it is complicated . I’m told I can’t drive, can’t be in sports, I can’t suba-dive , I’m always told what I can’t do. Its hard to keep a job. Its hard to keep my FMLA so I don’t get fired. I’m always getting hurt. Breaking my teeth is so embarrassing. I want to smile once for my husband with 100% confidence. He deserves to see smile to the fullest. He tries so hard to keep me happy and feeling normal. I want him to see that. It would mean the world to me. To be free.