During the next three years Sophia had many seizures, many different types of seizures; absence seizures, myoclonic seizures, and tonic clonic seizures. Sophia has tried many different cocktails of medications. We traveled from our small town to larger areas with children’s hospitals and neuro-specialists. Doctor after doctor was mesmerized by our girl. They couldn’t believe with her history that she could walk, talk and function the way she did/does. They warned of us the reality of this disease and prepared us for the worst.
Today, Sophia is a wide eyed five year old. She is sensitive and caring. She is living with epilepsy, and for that we are thankful. She takes daily medication and still has ‘breakthrough seizures’ from time to time.
We understand the heartache and lives that are destroyed by epilepsy and while our daughter has been one of the lucky ones, there is a very scary reality that is constant in our minds.
Join us in remembering those who live day to day with epilepsy and those who have lost their lives to this disease.