Episode #109 - After Decades of Seizures, an Epilepsy Diagnosis Begins to Provide Answers featuring Ara Carbonneau

Seizing Life > After Decades of Seizures, an Epilepsy Diagnosis Begins to Provide Answers

This week on Seizing Life® Ara Carbonneau shares her difficult and remarkable decades-long journey to an epilepsy diagnosis. Years after recovering from meningitis as an infant, Ara began experiencing seizures as a teenager. Despite visiting numerous neurologists and trying various medications, Ara continued to experience seizures for decades. Yet, she continued to pursue her dreams, attending college and graduate school, earning her teaching certificate and masters degree, getting published and building a career.

At seven months old, Ara Carbonneau experienced febrile seizures as a result of meningitis. She eventually recovered from the meningitis, but began experiencing seizures as a high school student at the age of 15. Though she saw a number of doctors and specialists and was prescribed numerous epilepsy medications over the next two decades, she was not given a definitive epilepsy diagnosis until she was in her mid-30s, instead tagged with a diagnosis of “generalized seizure disorder.” It wasn’t until Ara became a patient of a Washington, DC doctor who specialized in post-pediatric meningitis epilepsy that she received an official diagnosis and began to connect the meningitis to the development of seizures. Ara’s unique and troubling epilepsy journey highlights the value of an accurate epilepsy diagnosis and emphasizes the importance of persistence in the pursuit of quality epilepsy care and treatment.

Download Audio

Want to download this episode? Fill out the form below and enjoy the podcast any time you’d like!

    Back to Episode Download PDF

    After Decades of Seizures, an Epilepsy Diagnosis Begins to Provide Answers

    Related Episodes

    featured episode
    Epilepsy and AdvocacyLiving with Epilepsy
    March 8, 2023

    #111 Sharing Epilepsy Diagnosis After Decades Leads to Climbing for Research

    Guest: Carmen Zannier

    This week on Seizing Life® Carmen Zannier shares her 35 year epilepsy journey, discusses her recent decision to go public with her diagnosis, and explains how her passion for mountain climbing has led her to raising funds for epilepsy research.

    featured episode
    FamilyLiving with Epilepsy
    February 22, 2023

    #110 Epilepsy Can’t Stop Young Girl’s Competitive Spirit

    Guest: Christiane, Christy, and Lawrence Tsane

    This week on Seizing Life®, the Tsane family share daughter Christiane’s epilepsy diagnosis and treatment journey, and explain how they manage her seizures while nurturing her love of competitive running.

    featured episode
    Living with Epilepsy
    January 25, 2023

    #108 Recent Advances in Diagnostic and Surgical Tools for Epilepsy

    Guest: Kristen Kotsimbos, Scott Strong, Gabriele Richardson, Ryan Chu

    This week on Seizing Life® we look at diagnostic and surgical tools that assist physicians in localizing and removing areas of the brain that produce seizures.