Episode #96 - Determination and New Technology Lead to Successful Epilepsy Surgery featuring Kate Neale Cooper

Seizing Life > Determination and New Technology Lead to Successful Epilepsy Surgery

This week on Seizing Life® epilepsy advocate and mother Kate Neale Cooper shares her daughter Virginia’s 16-year epilepsy journey. She explains how a new diagnostic tool enabled doctors to localize Virginia’s seizures, and ultimately perform successful epilepsy surgery.

Kate discusses her daughter’s initial seizure onset and epilepsy diagnosis at 17 months of age, and details their long journey through various treatments, numerous doctors, and recurring disappointments as they sought seizure control. Facing the end of treatment options after 16 years, Kate explains how a doctor with the Twitter handle “The Notorious EEG” provided hope, and how a new diagnostic tool finally made brain surgery an option for her daughter. Kate describes the process of discovering where Virginia’s seizures were located and the subsequent surgical procedure that finally brought her daughter seizure freedom. Along the way Kate provides insights and advice for parents of children with epilepsy and explains how advances in research and technology continue to provide hope for those with drug-resistant epilepsy.

Download Audio

Want to download this episode? Fill out the form below and enjoy the podcast any time you’d like!

    Back to Episode Download PDF

    Determination and New Technology Lead to Successful Epilepsy Surgery

    Related Episodes

    featured episode
    Epilepsy and AdvocacyLiving with Epilepsy
    March 8, 2023

    #111 Sharing Epilepsy Diagnosis After Decades Leads to Climbing for Research

    Guest: Carmen Zannier

    This week on Seizing Life® Carmen Zannier shares her 35 year epilepsy journey, discusses her recent decision to go public with her diagnosis, and explains how her passion for mountain climbing has led her to raising funds for epilepsy research.

    featured episode
    FamilyLiving with Epilepsy
    February 22, 2023

    #110 Epilepsy Can’t Stop Young Girl’s Competitive Spirit

    Guest: Christiane, Christy, and Lawrence Tsane

    This week on Seizing Life®, the Tsane family share daughter Christiane’s epilepsy diagnosis and treatment journey, and explain how they manage her seizures while nurturing her love of competitive running.

    featured episode
    Living with Epilepsy
    February 8, 2023

    #109 After Decades of Seizures, an Epilepsy Diagnosis Begins to Provide Answers

    Guest: Ara Carbonneau

    This week on Seizing Life® Ara Carbonneau shares her decades-long epilepsy journey from initial febrile seizures caused by meningitis at seven months old to her epilepsy diagnosis at the age of 36.