Episode #92 - Epilepsy Stories and the Research Making a Difference featuring Patty & Patrick Horan, Dr. Pavel Klein, Lisa Maffie, Barbara Manley, Dr. Nuria Lacuey, Channing Seideman, Dr. Detlev Boison


This week on Seizing Life we present short videos about three key areas of epilepsy research on which we focus: Post-Traumatic Epilepsy (PTE), Sudden Unexpected Death in Epilepsy (SUDEP), and Refractory (or Drug-Resistant) epilepsy. Each video tells the personal epilepsy story of a community member and offers information and insights from a CURE Epilepsy-funded researcher working in that area.

Our first story focuses on U.S. Army Captain Patrick Horan and his journey with Post-Traumatic Epilepsy (PTE) following a traumatic brain injury (TBI) that he suffered while serving in the Iraq War. Dr. Pavel Klein, Director of the Mid-Atlantic Epilepsy and Sleep Center, provides background on PTE and discusses the research he is currently conducting that may one day help prevent TBI from becoming PTE.

The second story highlights SUDEP. Though his seizures were well-controlled, Anthony Maffie passed away from SUDEP when he was only 22 years old. His mother and his aunt tell Anthony’s story, discuss what they wish they had known, and share how they keep his memory alive by raising funds for SUDEP research. Dr. Nuria Lacuey explains what we know about SUDEP, what can be done to mitigate risks, and what we hope to learn through research to help prevent SUDEP in the future.

Our final story focuses on Channing Seideman and her journey with refractory (or drug-resistant) epilepsy. Channing discusses how it impacts her day-to-day life, and why it’s important for her to support epilepsy research. Dr. Detlev Boison explains drug-resistant epilepsy and discusses the pre-clinical research study he is currently conducting with the goal of understanding how to block the enzyme that prevents the brain’s natural seizure-terminator, adenosine, from working properly.

Download Audio

Want to download this episode? Fill out the form below and enjoy the podcast any time you’d like!

    Back to Episode Download PDF

    Epilepsy Stories and the Research Making a Difference

    Related Episodes

    featured episode
    October 18, 2023

    #127 Searching for Answers, Providing Support, and Understanding Grief After the Death of a Child

    Guest: Dr. Richard Goldstein

    This week on Seizing Life® Dr. Richard Goldstein, Associate Professor of Pediatrics at Harvard Medical School, discusses his research into both Sudden Unexpected Death in Pediatrics (SUDP) and the grieving process of bereaved parents.

    featured episode
    Living with EpilepsyTypes of Epilepsy
    September 6, 2023

    #124 A Young Woman’s Journey with Jeavons Syndrome

    Guest: Kiley Flowers

    This week on Seizing Life®, recent college graduate and CURE Epilepsy summer intern Kiley Flowers joins us to talk about Jeavons syndrome and share her personal journey with this rare form of generalized epilepsy.

    featured episode
    Living with EpilepsyTypes of Epilepsy
    July 26, 2023

    #121 A Teen Uncovers the Emotional Impacts of Childhood Seizures

    Guest: Hailey Yoon

    This week on Seizing Life®, we speak with Hailey Yoon about the emotional and psychological impacts that childhood epilepsy may have even years after seizures subside.