Episode #122 - From Hiding Diagnosis to Advocating for Awareness: A Young Woman’s Epilepsy Journey featuring Mariah Mayhugh


This week on Seizing Life® Mariah Mayhugh discusses her epilepsy journey, from hiding childhood absence seizures to becoming an active and creative advocate for epilepsy awareness, education, and representation.

Mariah Mayhugh was diagnosed with absence seizures at age seven and tried to gain seizure control through various medications for the next nine years. During this time, Mariah kept her diagnosis a secret from friends, peers, and teachers. She experienced social and emotional impacts as a result of her epilepsy, but excelled in school through homeschooling and a blended learning program, so much so that she began taking college classes at the age of 15. After achieving seizure control at the age of 16, Mariah wrote a school research paper on childhood epilepsy that ignited her desire to not only go public with her epilepsy diagnosis, but also become a passionate advocate for epilepsy awareness and education. Mariah recounts her journey for us, discusses her many advocacy efforts including creating videos and events, publishing a children’s book, and becoming Miss El Paso County by running on an epilepsy advocacy platform. She also talks about her plans for future advocacy efforts, discusses the importance of representation in media, and offers advice for other young people who are living with epilepsy.

Download Audio

Want to download this episode? Fill out the form below and enjoy the podcast any time you’d like!

    Back to Episode Download PDF

    From Hiding Diagnosis to Advocating for Awareness: A Young Woman’s Epilepsy Journey

    Related Episodes

    featured episode
    September 20, 2023

    #125 An Extraordinary Life of Autism, Epilepsy, and Advocacy

    Guest: Barbara D'Amora

    This week on Seizing Life® Barbara D’Amora tells us about her son Nicholas, who lived with autism and epilepsy and became an active and inspirational advocate for the autistic community despite being nonverbal.

    featured episode
    Living with EpilepsyTypes of Epilepsy
    September 6, 2023

    #124 A Young Woman’s Journey with Jeavons Syndrome

    Guest: Kiley Flowers

    This week on Seizing Life®, recent college graduate and CURE Epilepsy summer intern Kiley Flowers joins us to talk about Jeavons syndrome and share her personal journey with this rare form of generalized epilepsy.

    featured episode
    August 23, 2023

    #123 Pursuing Effective Epilepsy Treatment and Running for Research

    Guest: Clare Phelps

    This week on Seizing Life® Clare Phelps shares the difficult diagnosis and frustrating treatment journey of her young daughter Sophie, whose epilepsy has so far been treatment resistant.